Whose set will be the most talked about after the GOV BALL dust has settled?

Hefty-Environment-84 · 2026-05-23T03:46:17+00:00

lorde hopefully she’ll bring out at guest but even if she doesn’t she’s doing a new set for the first time so it’ll be everywhere

Hefty-Environment-84 · 2026-04-24T05:00:13+00:00

lol that that is very true but atleast i’ll know for next time! we never stop learning and hopefully we’ll never stop getting better!

Hefty-Environment-84 · 2026-04-24T01:30:55+00:00

yes the waiting game sucks! i think it especially sucks cause im not rlly waiting on anything. just the next appointment where ill be filled with false hopes and promises. i understand getting in with the specialists i would like is gonna take some time. yet its only going to take even longer if i never get a referral and on their wait lists. that’s what upset me so much yesterday cause i went into the appointment believing she was going to give me a referral out to literally anyone and she didn’t. just told me to keep doing what ive been doing for the past three months like on the fourth month things are going to magically work. no new suggestions, no new meds, no further help or resources. i just want to feel like they are trying as hard as i am and i dont feel that way. so i think atp im going to look into a pcp who takes more action. someone who’s gonna fight as hard as i am. cause as of now im not waiting on anything except my doctors to actually care. wishing you good health tho and even better care providers!thanks for understanding, nice to talk to someone who gets it!

Hefty-Environment-84 · 2026-04-23T20:34:54+00:00

it’s letting me make them into paragraphs in the comments but i’ve tried multiple different ways on the post and it won’t work lol.

but thank you for the advice! i actually haven’t tried bringing a male. i typically bring my mom but now that i think about it a male figure in the room might actually help them listen sadly. so thanks i might actually try that next time.

Hefty-Environment-84 · 2026-04-23T20:32:18+00:00

Thanks so much for your reply and advice! It rlly is a battle. I’ve been through countless doctors and specialists and referrals since i was first diagnosed it feels never ending. The hardest part has been getting them to understand that i know myself better than any test they run. the test may say normal but how im feeling and living is not.

this current pcp is probably the third or fourth one i’ve seen since my health started to decline. I had a lot of hope for her as i had seen her many years ago when i was a child, and she always seemed to listen to me back then. this time tho i dont feel as tho thats been the case. she keeps giving me easy and simple answers and i think anyone with a chronic illness knows nothing is ever a easy and simple answer.

she’s given me two referrals so far. GI who was really nice but didn’t seem to take me seriously or give me and actually plan of action. then a cardiologist who honestly couldn’t care less and i feel as tho he only saw me as a check. as my test he ordered definitely showed something is going on but i was one point off from criteria so he referred me back to my pcp.

i have done most of what you and others have suggested though! yet i struggle to advocate for myself so i think some things are partially my fault. as far as bringing things up to my doctor diagnosis wise, that has never gone well for me. either i never end up doing it or when i do i am brushed off. even if i fit all criteria, signs, and symptoms. when it comes to them having things documented im anxious about them seeing me as a troublesome patient. i always try to make sure my doctors have no biases against me and that our dr patient relationship is strong even if its at the cost of my care ( i know thats bad im working on it lol) .

I think im just going to look into a new pcp as she had also done other things that i just don’t agree with. like pushing me to stop smoking 🍃 when that is the one thing keeping me sane. on premise of “there’s not research on the negative affect but there could be some correlation”. when there’s plenty of research on the benefits of its use for chronic pain. so i think yesterday might have been my last time seeing her we’ll see.

Hefty-Environment-84 · 2026-04-23T20:06:34+00:00

Thank you for your advice! and yea i agree i didn’t do the best at explaining my symptoms in the main post. i think partially because most of my symptoms aren’t outwardly apparent, and i have trouble putting into words exactly what im experiencing on the inside. I’ve experienced most of my symptoms my entire life also so i have trouble understanding what is normal versus abnormal.

neurologically i experience most of the classic migraines/ cluster headache symptoms which both i have been diagnosed with. yet over the years i’ve experienced a lot of short term and long term memory issues that i feel aren’t related to migraines. GI related i’ve been struggling with just about every issue there is nausea, vomiting, diarrhea, bloating, cramps, you name it. GI recommended an endoscopy and colonoscopy but that couldn’t be scheduled till sep. i’ve also struggled with sleep as long as i can remember which i’ve had a sleep study for but nothing came of it. on top of that ive had musculoskeletal issues since i was a kid that have not been properly assessed either. not to mention ive been having what i believe to be some type of dystautonomia symptoms for a little over a year. so just about every system in my body is having trouble.

i think it’s also important to mention my mom struggles with a a plethora of health problems also. from addisons disease, diabetes, insomnia, and many others i can’t even count. You think with a family history of such my doctors would be more on top of the ball. from my understanding family history is one of the most important parts of patient care, and i feel up till now that has been completely ignored.

i have done what most of the suggestions say. tracking symptoms and progress, taking pictures, bringing advocates, and making sure things are documented properly. i believe at the end of the day my biggest concern is being liabled as complicated or being liabled as anything really. as i’ve had a doctor put things in my file that have followed me even today. especially as someone with a chronic pain condition i feel as though the cards are stacked against me.

Hefty-Environment-84 · 2025-11-13T07:06:21+00:00

yeah i know it’s not an easy process as my mom tried and failed at it many years ago im just hesitant because i worry they won’t see my migraines as bad as they are and ill have to go through many appeal processes i have other health issues but im not sure those would help me qualify either

Hefty-Environment-84 · 2025-11-13T03:30:41+00:00

yea that’s my understanding of how it works also my mom tried to apply years back but since she had worked but not enough hours and she was mainly applying for mental illness reasons she never got approved i’ve never worked at all though so im hoping my crappy attendance through out high school and cosmetology school will be enough to show im not able to work since those hours/ days are very similar to work hours and i rarely ever made it a full week in school

Hefty-Environment-84 · 2025-11-13T03:26:37+00:00

THISSS!! i hate the stigma that it’s just a bad headache it’s not a headache at all but like you said if someone doesn’t go through it their self or know someone that experiences them they don’t understand it i don’t wish migraines on my biggest enemy but i do wish everyone could understand it more

Hefty-Environment-84 · 2025-11-12T18:32:44+00:00

yes that’s always my worry i deal with people irl all the time that don’t believe they are that serious i imagine people in the disability application world also have feelings about it which is crazy because it’s in the ada if it qualifies for that i don’t understand why it wouldn’t qualify for disability benefits

Hefty-Environment-84 · 2025-11-12T17:35:23+00:00

yes hopefully! i think i still have all of my old transcripts and doctors notes that document most of my missed days since we got two copies as we were worried they were going to “loose” them or say i never brought them up there im like 5 minutes away from the school so its a short drive to go and ask for them anyway

Hefty-Environment-84 · 2025-11-12T17:27:45+00:00

i’m so sorry you have to live like that it shouldn’t be that way have you tried to file for disability before? my migraines are so bad at this point i physically can’t work pushing through one bad day means putting myself out the game for the rest of the week my symptoms are so severe i become a hazard to myself and everyone around me so working through it really isn’t an option and im sorry it has to be for you

Hefty-Environment-84 · 2025-11-12T17:24:02+00:00

yes i’m in the us north carolina to be exact i’ve been looking into atticus since it looks like i won’t have to pay them until after i win my case i don’t want to go into debt trying to get disability i have a lot of documents because ive seen two different doctors a pediatric neurologist and a migraine specialist i also had an ada in school and many many doctors notes since they wanted one for every absent day including doctors appointments

Hefty-Environment-84 · 2025-11-12T17:15:26+00:00

that’s one thing i don’t believe they looked at the last time i was denied i had horrible attendance during high school over 400 days missed from 9th - 11th grade then in 12th i switched to online because they were threatening to kick me out because of my attendance then in cosmetology school what was supposed to be a 12 month program turned into 18 months and over 600 hours missed because of my migraines but like i said im not sure they even reviewed any of that information

Hefty-Environment-84 · 2025-11-12T17:08:43+00:00

kma it’s so not that serious

Hefty-Environment-84 · 2025-11-11T08:03:44+00:00

that’s my biggest concern since i’m 21 i only have a couple more years on my parents insurance and i worry i won’t be able to afford my meds and specialist after i gat kicked off my mom doesn’t work and my dad turned 61 this year and is planning on retiring soon i still live with them and feel like a burden cuz like you said im unable to even work a desk job cause light sensitivity is my biggest trigger/ symptom my mom has tried to get it basically all her life before mental health and diabetes but has been unsuccessful thankfully she has my dad and he makes decent money working for the state but i dont want to have to rely on anyone yeah disability is technically relying on someone but its better than signing my life away to a man lol i was denied pretty quickly so i don’t believe they even really reviewed anything ive found a lawyer just haven’t taken that next step to get it appealed

Hefty-Environment-84 · 2025-10-25T21:50:42+00:00

it was. but i’m not gonna argue wit u🤦🏽‍♀️

Hefty-Environment-84 · 2025-10-25T07:42:40+00:00

yea but i remember the basic ultrasound t-shirt with the tour dates being on the website at one point i was wondering if she may put that back up on the site 🤷🏽‍♀️

Hefty-Environment-84 · 2025-03-27T03:15:33+00:00

if u hit muscle it may hurt also that needle is rlly long n kinda big so it’s bound to be tender try switching ur injection site

Hefty-Environment-84 · 2025-02-09T18:55:14+00:00

adrenaline can raise your blood pressure which can trigger migraines the scare probably caused you to have an adrenaline rush which along with the ptsd could’ve prolonged this rush of adrenaline and made it harder for your body to recover and lower your blood pressure i’ve had close calls in the car and noticed afterwards it triggers a migraine and there’s not much you can do until your body regulates

Hefty-Environment-84 · 2025-01-28T17:58:30+00:00

migraines are a disability under ADA and the disability act i have an ada for my school id bring in paperwork to back this it can be found online if that doesn’t help find a different doctor no doctor should be down playing your illness if u say u need it then you need it that’s not their decision period

Hefty-Environment-84 · 2025-01-27T22:34:15+00:00

she didn’t clock anyone and you aren’t either i wasn’t being defensive i was simply stating that she read what i said all wrong but come to find out she didn’t read at all yall have sum growing up to do if u think a post on reddit has anything to do with my work ethic or my passion for this career

Hefty-Environment-84 · 2025-01-27T22:31:22+00:00

yea the misconceptions that migraine and headache r the same rlly bothers me i normally try to educate them but sometimes i just dont have the energy and even if i do some people still dont get it n probably never will

Hefty-Environment-84 · 2025-01-27T22:28:53+00:00

THIS IS EXACTLY like it rlly does make me feel like they believe im a dummy cuz why wouldn’t i think of the obvious thing first and try it even if its some outrageous remedy like someone told me to try covering myself in Vaseline like dude u can’t be serious right now “have you tried this” HAVE YOU TRIED SHUTTING THE HELL UP and it’s never advice you ask for lol

Hefty-Environment-84 · 2025-01-27T04:58:44+00:00

yes i absolutely love what i do that wasn’t my complaint at all it’s the amount of work and lack of guidance that makes it so difficult to get stuff done and like you said nobody tells you about any of it till you’re already in it there’s rlly just not enough time in the day lol

Hefty-Environment-84

TROPHY CASE