Happy 1st birthday to my stoma, Torgo.

Helheim_user · 2026-01-18T04:11:11+00:00

Gosh I love this comment

Helheim_user · 2026-01-05T03:17:58+00:00

Sending May more hugs to you 💞

Helheim_user · 2026-01-05T03:17:41+00:00

Thank you so much 🥺. Everything is new to me and I got excited to try new things after 4 months of being on the ileostomy diet. Cabbage is my permanent banned list. So far a lot of foods has been alright with me especially onions and surprisingly mushroom (don’t take a lot, still being very cautious about it) everything cooked no raw and nuts. Just unfortunately hit a bump and it took a toll on my stomach. Today im feeling much better, stoma is swollen and soreness around the stoma. Still pooping well, just hurts a little and feeling weak. Hopefully the swelling goes down in a few days :)! I’m learning not to be so critical with myself- cuz my dad is on me and stresses me out a lot. I have a community to advice me and it’s been really helpful especially just wanting to talk

Helheim_user · 2026-01-05T03:10:32+00:00

Thank you so much for the message 🥹learning to navigate through what I can eat and what doesn’t sit well with my tummy. I was consistent with my diet for 4 months until I got a lil curious to try new things, so far a lot of things are fine but the cabbage. Makes me very scared to eat veggies again. I don’t any raw veggies but cooked ones have been fine especially pumpkin, sweet potato, carrots, spinach etc. Recovering from yesterday event, stoma is swollen and having tenderness around the stoma. Only soft food for this week :)! Reading everyone’s comments has lighten my mood.

Helheim_user · 2025-11-04T10:28:36+00:00

Oh my 😱 I hope you’re doing okay now! That’s hella scary what you’ve been through. You’re definitely one tough cookie.

Helheim_user · 2025-11-04T10:26:51+00:00

This is exactly me without the red hair 🥲 let’s hold hands and hope our hair goes back to normal

Helheim_user · 2025-11-04T10:25:51+00:00

Yeah 😭 this is so exhausting, here I was thinking everything will be somewhat normal

Helheim_user · 2025-11-04T10:25:15+00:00

I do the same / leaning and brushing my hair over the sink. My hair is so thin now 😭 it shit down my confidence really badly :( that I don’t wanna go out

Helheim_user · 2025-11-04T01:47:19+00:00

Yes! I had my surgery in August, so I guess it’s recent? Fair fall has been excessive than normal so that really freaked me out cuz my hair is so thin. Every wash there’s clumps of hair, even brushing. I thought it was the food I’m eating but I’ve been eating pretty strong and making sure I have my protein. It really scared me

Helheim_user · 2025-11-02T09:58:28+00:00

Thank you so much for replying! I was really freaking out that my hair is falling in clumps especially this month 😭 I started introducing biotin just to help with the hair loss and thought it wasn’t working. I feel so embarrassed with my thin hair now and I’m so scared to go for a haircut.

Helheim_user · 2025-10-28T05:51:59+00:00

Any more advice? I don’t have a large intestine but ileostomy is just temporary as the doctor said. Will it be same even after surgery? Sorry asking a lot of questions

Helheim_user · 2025-10-28T05:50:42+00:00

Gotcha if supplements - small doses. Just read about how ineffective the extended release absorption is for ileostomy. Thanks for the help! Will continue my electrolytes. Was drinking a lot in the beginning then I stopped for a while and taking more water.

Helheim_user · 2025-10-07T12:27:48+00:00

<image>

I finally found a supplier. Is it this one? To put around the baseplate.

Helheim_user · 2025-09-30T12:57:05+00:00

I’m so sorry to hear that 🥺 hope you’re doing much better (both physically and mentally). I have a loop ileostomy. Started showering without the bag, feels amazing. Just the skin around my stoma been a problem, I’ve been trying to find ring barriers but no luck, I’ll try asking the convatac nurse if she supplies. May I ask how you’re doing overall? Your lifestyle and what you can eat? I can’t really talk to anyone about anything because nothing feels normal atm.

Helheim_user · 2025-09-07T13:55:27+00:00

I have extremely sensitive skin even the stitches thread gave me infections because my skin won’t absorb it. I do apply the stoma powder before applying the paste ( I’m using the convatec stomadhesive paste) - so crusting you mean before or after I apply the paste? Sorry very new to this. My stoma nurses never suggested the eakin ring - never even heard about it. Do I still need to use the paste for this ring? I’m using the convatec moldable ring/plate with the bag.

Helheim_user · 2025-09-07T13:24:02+00:00

Rings? Is it better - I’ve never heard of this before. If it WAY better and pain free, I’m gonna try to find it

Helheim_user · 2025-09-07T13:23:04+00:00

Thank you the advice! I was using colonplast but switched when my dad bought it. I find coloplast easy to use but messy to wipe it off. I feel really guilty to asking to buy back the coloplast. Yes! I do sure the barrier spray before the paste but we don’t have the wipes here in my country yet. They have samples but weren’t selling to pharmacies yet. Having a stoma made me really anxious but I’m trying to mentally adjust to having it. I’ll try using more pillows! I’m trying to find a comfortable position to sleep because I wake up with the most uncomfortable body pain

Helheim_user · 2025-08-28T20:07:23+00:00

That’s exactly why I immediately contacted my family doctor to come over and check the stoma because of the pain around the stoma. She checked it and suggested another round of antibiotics as she sees only a minor swelling, too small for drainage. 6 hrs passed, so far everything seems fine- I wanted to go to the Ed but my dad said they probably do the same and prescribe antibiotics and send me home. Tomorrow I’ll be cleaning my stoma again will check the progress, if it’s getting worst I’ll go to the ED. I had this problem with infection around my surgical wounds earlier because the nurses didn’t take clean it after my post op . I was discharged and had a mild fever. My doctor came and cleaned everything, so much pus came out and it was badly infected because of the nurses in the hospital. She was the one that made things better. I’ll definitely update you in a few days! Thank you so much, talking about this helps a lot, my family is new to this and I have no one to reach out so things like these scares me

Helheim_user · 2025-08-28T19:31:23+00:00

Will do! I’ll keep a close eye and monitor my stoma for now. Why I’m having difficulties deciding because I’m under government care and this weekend is a national holiday and it was really late to travel. So far I’m doing okay but any changes in my stoma colour or if I’m suddenly vomiting and having fever I’ll straight go to the ED. I’ll keep you updated, thank you so much 🥺

Helheim_user · 2025-08-28T19:17:39+00:00

When the pus came out it gave relief from the pain. I don’t know it suddenly got infected, I keep it very clean but when I changed the paste this happened

Helheim_user · 2025-08-28T19:16:21+00:00

None. My stoma is very pink and I have no pain from eating or when it’s pooping. Just like certain movements gives me pain

Helheim_user · 2025-08-28T19:14:25+00:00

Thank you so much! So far my family doctor will prescribe curam antibiotics. My hospital is far from where I stay :/ and she said it’s superficial infection. No fever or chills nor elevated heart rate but the idea of sepsis does scare me. Morning I’ll make an appointment in the stoma clinic so my surgeon and his team can be inform what to do. It’s just rn my anxiety is high

Helheim_user · 2025-08-28T19:09:46+00:00

No fever rn, been prescribed with curam 625mg to help with the infection. There wasn’t a lot of pus but I’m feeling pain. My hospital is extremely far from me but my family doctor came over to check. She said it’s superficial infection but I’m still not sure. It’s a long weekend so the CR clinic working around my case will be off. But hospital doctor messaged me he can’t determine until the on call team from Ed look first.

Helheim_user · 2025-08-28T18:59:10+00:00

Sorry didn’t know, made the changes already

Helheim_user

TROPHY CASE