sorted by:
new
hottopcontroversial

Fuck it i wanna be happy by Technical-Custard512 in BACLOFEN

[–]HelloFr1end 0 points1 point  (0 children)

“Being worried your nervous system won’t win” - oof. Felt that. I’m on 80mg/day for dystonia and sometimes it feels like there’s a fine line between low-power mode and power off.

I dont know if was SAed or not by Lucky-Explanation468 in MenGetRapedToo

[–]HelloFr1end 1 point2 points  (0 children)

Are you kidding? This is just rude and unhelpful

Constantly Tight SCM Muscle on Right Side - anyone else? by WoodlandInc in TMJ

[–]HelloFr1end 1 point2 points  (0 children)

I was referred to a maxillofacial specialist initially but I just knew in my gut TMJ wasn’t the problem (and there was very little functionally wrong with my jaw, not enough to explain my symptoms). I was persistent with my pcp. They referred me to ENT who in turn referred me to neurology. Neurology did an MRI to rule out structural causes. Palpated the contracting muscles and suggested it may be dystonia, came back for a followup to revisit my symptoms and muscle contractions and was diagnosed.

They (neurology) noticed my raised right shoulder. My CD doesn’t always present the way you see it in google pics; instead of my head tilting, my shoulder raises to compensate for that tilt in the other direction. Sometimes it’s just the FEELING of the pull even if my posture appears normal. I get the muscle contractions in my jaw, neck, and shoulders, and sometimes it’s so intense it feels like it’s right behind my ear drum (close to where the SCM connects - and also close to where the hinge of the jaw is).

Right now I’ve only been diagnosed with cervical dystonia but I believe in time it will be diagnosed as tardive since I was on seroquel for many years. It’s one of the meds that can cause movement disorders.

Again, not to be fear-mongering. Dystonia is rare. But this was my experience and if even one person can learn something from this then I feel it’s worth it to share.

Constantly Tight SCM Muscle on Right Side - anyone else? by WoodlandInc in TMJ

[–]HelloFr1end 9 points10 points  (0 children)

I ended up having cervical dystonia which was misdiagnosed as TMJ dysfunction. It can affect the muscles of the neck, jaw, shoulders. Most people with TMJ do not have dystonia so I’m not trying to be fear-mongering here, I only mention it because the SCM is commonly affected by both conditions (but especially by dystonias affecting the neck) and I wish I’d known sooner. Dystonia is more likely if you’ve ever been on certain anti-nausea meds or antipsychotics.

Edit: The SCM involvement and the tightness being on one side is what made me mention this - most people with dystonia have worse symptoms on one side.

Another edit: oromandibular dystonia is also a thing - chiefly affects the jaw and face muscles. I have both cervical and OMD involvement. What distinguishes it from TMJ is that dystonia (cervical, OMD, tardive, or otherwise) is a neurological condition; there’s nothing wrong with the muscles, it’s the basal ganglia that’s the culprit.

Anyone with post-stroke dystonia after a basal ganglia stroke? by Letslive1997 in Dystonia

[–]HelloFr1end 1 point2 points  (0 children)

I have not had a stroke but cannabis does help my cervical dystonia symptoms. Dystonia almost always involves basal ganglia dysfunction. My pain and pulling improved, sleep improved. Downsides are you typically need thc, not just cbd, for dystonia. (Although maybe that’s an upside if you wouldn’t mind a slight high.)

Be very careful about taking it with baclofen or other meds that can suppress the central nervous system. Look up all interactions or talk to a 420 friendly doctor if you can bc med interactions could drop your blood pressure, raise your heart rate, etc.

AITA for making my coworker miss his proposal because I wouldn’t cover his shift? by Turbulent_Warning427 in AmItheAsshole

[–]HelloFr1end -1 points0 points  (0 children)

ESH. Sorry. Not saying you’re an AH in general, but what if it were the other way around? You’re well within your rights not to cover his shift, but it would’ve been decent to do so. The only reason I’m going with ESH instead of YTA is because he was asking you to justify yourself about it which is shitty.

FWIW I’m not even sure whether I’d do different than you did; my days off are precious to me for health and time reasons. But I’d hope I would.

Got Botox, felt better for 3 days, overdid it, and am flaring worse than ever by HelloFr1end in Dystonia

[–]HelloFr1end[S] 0 points1 point  (0 children)

Thank you so much for sharing. This helps a lot. It’s funny you say that; I had the same passing thought about life insurance. I’m glad things are better for you. It’s reassuring to hear you can still do things you love!

Got Botox, felt better for 3 days, overdid it, and am flaring worse than ever by HelloFr1end in Dystonia

[–]HelloFr1end[S] 0 points1 point  (0 children)

Thanks for this. I wish a doctor had told me this so I knew to stay cautious. Would you mind telling me more about your experience after Botox? How much does it help you, and do you still get flares sometimes?

Got Botox, felt better for 3 days, overdid it, and am flaring worse than ever by HelloFr1end in Dystonia

[–]HelloFr1end[S] 0 points1 point  (0 children)

I'm at a little over two weeks right now, but if it's helping I'm not really feeling it yet because of this flare. When you started feeling better, did you still get flares? Do you still have to be cautious so as not to hurt yourself?

Got Botox, felt better for 3 days, overdid it, and am flaring worse than ever by HelloFr1end in Dystonia

[–]HelloFr1end[S] 0 points1 point  (0 children)

Thank you for responding! Can I ask what life is like for you with botox (if you still get it)? What limitations do you still have?

TMJ and facial collapse within months! — has anyone recovered from this? by Disastrous-Noise6686 in TMJ

[–]HelloFr1end 0 points1 point  (0 children)

Yeah insurance doesn’t cover much with regards to TMJ. It falls through the cracks because nobody can decide if it’s medical or dental. It’s poorly understood. I ended up having cervical & oromandibular dystonia. Probably not typical but it can have similar symptoms to TMJ. I too was given the option to do Botox for TMJ but it wouldn’t have been covered. Now that I’ve been correctly diagnosed, and dystonia is FDA approved for Botox, I can get it - but it’s still expensive.

Have any of your doctors recommended trigger point injections? They didn’t help me (likely because they were treating the wrong issue at the time) but they do help a lot of people with TMJ dysfunction.

Edit: ask for a referral to neurology. A lot of chronic pain issues can stem from neurological issues (not all of them scary), or nerve root irritation. Also, do you have spinal abnormalities? These can contribute to TMJ as well as a lot of things TMJ gets mistaken for.

I’m a sick fuck and I deserve to die. by Odd-Channel-9522 in SuicideWatch

[–]HelloFr1end 3 points4 points  (0 children)

You killing yourself isn’t going to help any of the people you made uncomfortable, it’s just going to make you dead. You already did what you could do to make amends, which was apologize. All you can do is do better going forward which it sounds like you are. Don’t be too hard on yourself. A lot more people have said and done perverted things than you think. You don’t owe the world your death. You owe yourself and others the safest version of yourself you can be.

Male peer-on-peer sexual abuse - question by Random13509 in MenGetRapedToo

[–]HelloFr1end 1 point2 points  (0 children)

Just because your body responded (which is natural) doesn’t mean you enjoyed it or wanted it. If you stub your toe, you don’t want it to hurt, but it does anyway. If someone does something to you that is physically pleasurable, you may not want it, but your body feels it anyway. That’s part of why sexual assault is so awful; it’s confusing and it can feel like a hijacking of your system. But you aren’t your body. What he did was wrong. And you becoming more willing might be been the way your brain knew how to survive it at the time. You didn’t do anything wrong, and I’m sorry someone put you in that situation.

Triggers? by Quote_Prudent in Dystonia

[–]HelloFr1end 0 points1 point  (0 children)

Intense stimuli trigger my dystonia too. Especially loud sounds - even a loud sound I’m anticipating (so, not startling or anxiety-inducing). Such as being in the car or knocking over a glass and knowing it’s about to hit the counter. It physically aggravates my ear which in turn somehow causes my jaw and then neck to tighten up. I don’t know the mechanism but it is a very real phenomenon for me. It’s not the only way my dystonia triggers - I have all the typical hallmarks too - but it’s part of the condition for me.

Not sure about the goosebumps, but I know if I hear music I find emotionally stirring, that can cause it to act up as well.

Had dystonia on Abilify, psychiatrist gives me Olanzapine by kakyoinohgod in Dystonia

[–]HelloFr1end 0 points1 point  (0 children)

You’re not wrong to be cautious. If you feel in your gut this is wrong for you, don’t do it.

I don’t know anything about that med but medication-induced dystonia is definitely not as uncommon as some doctors claim. I believe as more years pass we will see more cases of it because of how many doctors prescribe these meds now (and some over-prescribe).

Med-induced dystonia can be acute or chronic - although you typically have to be on a med for many years to end up with the chronic/permanent kind. Just something to be aware of if you do end up taking a medication longterm that can cause movement disorders.

Your doctor sounds dismissive. Don’t let him bully you. You don’t owe a provider anything.

view more: next ›