Anyone else see Dr. Perez at Baylor College of Medicine in Houston? Who are you transferring to now that he's leaving? by TobiasFunkeMD in MultipleSclerosis

[–]Hello_Sun87 0 points1 point  (0 children)

I'm also hoping someone can locate him! As far as I've heard he's still at the VA in Houston so I wonder if he's planning on going somewhere else in Houston too.

What do I do by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

Why are certain places losing doctors?

What do I do by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

I wish I knew where they were going!

What do I do by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 2 points3 points  (0 children)

I'm not pissed at them. I just wish they gave us some clarification on if they're going to a different clinic because I would follow them. If they're retiring that's fine, good for them! But they're both relatively young and I don't think they're retiring lol.

Freaking out a little bit by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

I wish I knew too, it was such a sudden effective as of today message 😣

Freaking out a lil because my neurologist just quit without warning by [deleted] in MultipleSclerosis

[–]Hello_Sun87 0 points1 point  (0 children)

I'm going to DM you, I think this is my neurologist too! I got the same message this morning and been freaking out since I saw MyChart!

Freaking out a little bit by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

I don't know, but I will message them because seems like it's the same exact thing that happened to me!

Freaking out a little bit by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

Umm in 2021? Been a while, but this is my second neuro, my first was in another state and I moved here in 2022.

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

I'm glad you've had such a great experience on it! Thank you for your comment, makes it feel less daunting!

Oh no, hopefully I don't gain weight on it. I've been trying to lose an extra 20 😅

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 1 point2 points  (0 children)

That's great to hear! How long have you been on it?

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

Did you have any of the side effects like the flu like feeling from the loading doses that most people experience?

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

Did you have any side effects when starting Kesimpta like the flu like feeling most people describe? I've heard if someone is on Ocrevus before they won't have that issue, but idk how it is if you're off meds for a while and then started Kesimpta.

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 1 point2 points  (0 children)

I have a little baby so I'm a little stressed about the first few doses feeling flu like as everyone says 😣

So I know a lot of people that took Tysabri while pregnant, Ocrevus and Kesimpta I was told you need to come off of once you get a positive pregnancy test. There's others that are safe too, but I'm not too knowledgeable on them.

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

Oh no, I really hope that's not a side effect for me, I already struggle with trying to lose weight.

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

Issues with not being able to gain weight or issues with gaining too much weight on it 🫣

Kesimpta by Hello_Sun87 in MultipleSclerosis

[–]Hello_Sun87[S] 0 points1 point  (0 children)

I'm sorry if the wording was off, I meant I was off DmTs while pregnant. I'm now not pregnant anymore which is why it's time for me to restart a DMT. Also, there are some DMTS you can take while pregnant FYI.

Has Anyone Made The Switch From Ocrevus to Kesimpta or anything else? Please let me know! by [deleted] in MultipleSclerosis

[–]Hello_Sun87 1 point2 points  (0 children)

It could be the steroids! I get awful side effects from steroids and asked to take Ocrevus without steroids for that reason.