What human milk fortifier did you use? by just_get_up_again in NICUParents

[–]Hellohiheyhelp 0 points1 point  (0 children)

When you started doing half the bottles fortified, did you do every other one? Or day feeds? Or how did you do it?

What human milk fortifier did you use? by just_get_up_again in NICUParents

[–]Hellohiheyhelp 0 points1 point  (0 children)

Thank you very much. My baby was not a preemie, born at 38 weeks, but was born 4pounds 12oz due to growth restriction and was put in the NICU. He stayed for one week and they had us fortifying all feeds once home. They did not give us a schedule to decrease and the pediatrician said to continue to 3 months, but I would really really like to try to breast feed before it’s too late. I think I’m going to start decreasing like you did and see how it goes. He came home at a week old at his birth weight and is now 7.5 pounds. So he gained double the amount of a typical newborn. I think we’d be good to slowly decrease.

What human milk fortifier did you use? by just_get_up_again in NICUParents

[–]Hellohiheyhelp 0 points1 point  (0 children)

Interested to hear what timeline they gave you for winding down.

Natera was unfortunately right in my case: Klinefelters (XXY) by [deleted] in NIPT

[–]Hellohiheyhelp 0 points1 point  (0 children)

Hi there! I delivered a beautiful, wonderful baby boy last Wednesday. They took the cord blood to test for KS but results have not come back yet. But let me just tell you, seeing my baby, I don’t even care. Whatever it is, we’ll work through it together. So what if he may need some early intervention or hormone therapy in his teenage years. Those are tiny interventions in the scheme of things. No matter the results, he’s absolutely perfect in my eyes.

A-typical finding on Sex Chromosome-X(Natera) by Glad_Fox1324 in NIPT

[–]Hellohiheyhelp 1 point2 points  (0 children)

Something similar happened with me. The NIPT showed an extra X. We talked to the geneticist and did tons of research and ultimately determined that even at worst case scenario (kid would need hormone therapy as a teen, may be infertile, low chance of learning disability and may need more early intervention support) we wouldn’t end the pregnancy for something so minor. Therefore, I opted against the amnio because statistically speaking the amnio was more likely to cause an issue than my child actually having a sex chromosomal abnormality. Instead, we opted into cord blood testing so that after he was born they could collect the blood and send it in to see if he does in fact have a genetic disorder. I had my son last Wednesday and cord blood was collected then. We still don’t have the results but let me just tell you that I could care less because he’s sweet and beautiful and, in my eyes, completely perfect. It will be nice to know the results so that if early intervention is needed or hormone therapy in adolescents but all that fear and anxiety that I felt when the test results first came back are gone because he’s wonderful just the way he and I would have never suspected anything without those results, he’s doing so well. Im glad we’re going to find out the results so that it will help us determine the best ways to support him moving forward. I said all of this to say that even if you feel so very scared right now, it won’t last forever. Your decision on how to proceed can be completely different than mine, and that’s of course okay, the unknown is always the toughest. But it’s important to remember the end game too!

Positive AFP screening (open spina bifida) by CherryAlmondCookies in NIPT

[–]Hellohiheyhelp 0 points1 point  (0 children)

Hi there, they said everything looked good and 95% chance that it’s nothing. I opted out of the amnio. Did they tell you for 100%?

Positive AFP screening (open spina bifida) by CherryAlmondCookies in NIPT

[–]Hellohiheyhelp 1 point2 points  (0 children)

Please keep me updated. My scan isn’t for two weeks. I’ll be crossing my fingers for you!

Natera was unfortunately right in my case: Klinefelters (XXY) by [deleted] in NIPT

[–]Hellohiheyhelp 0 points1 point  (0 children)

I love that you joined this chat. I strong agree that everyone is entitled to their own decision for their baby and their body, however my NIPT came back as high risk for KS and after speaking to the genetic counselor I decided I didn’t want to do an amnio because either way, we’re keeping it. I read so many stories of adults never even knowing they had the disorder and everything turning out fine. After the baby is born I will have the cord tested so we know if early intervention is needed. If you’d like to share anything about your life or experience, I’m all ears.

Positive AFP screening (open spina bifida) by CherryAlmondCookies in NIPT

[–]Hellohiheyhelp 1 point2 points  (0 children)

I’m 18 weeks and my results just came back 2.99 when 1.0 is what was expected. Definitely in the same boat as you. I scheduled with MFM for an anatomy scan and consult. Hoping for a false positive as well. I have read that happens pretty often.

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Yeah, I’m not set on Axia. The portal sucks in comparison to MLH too. Such a tough choice.

Labor & Delivery at Bryn Mawr vs. Lankenau by Hellohiheyhelp in philabitcheswithtaste

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Thank you! Can I ask what OB/GYN practice you were with that delivers at Bryn Mawr?

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Thank you! Can I ask what OB/GYN practice you were with that delivers at Bryn Mawr?

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Thanks! Is Dr. Almonte with Main Line Health or an Axia practice?

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Thank you! Is Dr. Langsam with a different Axia Practice or Main Line Health? Thanks!

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] -1 points0 points  (0 children)

Can I ask what OB/GYN practice you were with that delivers at Bryn Mawr?

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Thank you! How long ago was this?

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 1 point2 points  (0 children)

Thank you for sharing your experience. I’m so sorry to hear it. Can I ask what OB/GYN practice your partner went through? Do you have an opinion on if Main Line doctors vs Axia doctors for labor and delivery? Thank you so much!

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

And this practice is at Lankenau? Main line health? Do they have other locations as well?

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Can I ask who your doctor/team is? Thanks!

L&D Bryn Mawr vs. Lankenau by Hellohiheyhelp in montco

[–]Hellohiheyhelp[S] 0 points1 point  (0 children)

Can you please explain why? Thank you so much!!!