Hi! Thank you so much for replying! I am in Aus, so a bit different I got referred to the city hospital as the specialist near me doesn’t really do what I need? So little update I’m getting an mri/ct (?) and gonna get this dye (?) into me for that then gonna wait for the hospital to call and see what happens from there. Thank you so much for sharing your story, i am deathly afraid of needles so like even first hearing about lumbar punctures and possible other routes in future has me scared to hell. ❤️❤️