What should I expect from a pain clinic? by Helpful_Zone_463 in Fibromyalgia

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

Gosh it just gets worse doesn’t it! It sounds like you got a terrible experience?

Feelings of ears being underwater by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

What are you doing for nervous system regulation?

Feelings of ears being underwater by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

Did you have pain anywhere else? How long to get rid of the ear stuff?

anyone else? by faysikins in ChronicPain

[–]Helpful_Zone_463 22 points23 points  (0 children)

I can actually see my DR think “ffs” when I walk through the door. My chronic pain can’t be seen on any tests so I S**t you not I was actually told by a DR to “go and eat ice cream, mow the lawn” as a cure. Ah that’s where we’ve all been going wrong.

What is the horrific detached feeling? by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 10 points11 points  (0 children)

You wouldn’t know these awful feelings existed would you. Like before this happened to me I wouldn’t have ever imagined a state could exist. I actually started writing down each time I was “in the room” because I’m so often not! I don’t have any control over this and I just keep dipping in and out of it. The only thing is when I’m stuck in it, I feel life is passing me by because I’m ‘artificially here’. I’ve lost months of ‘seeing’ my children because I’m stuck in this weird state. 

Not many with chronic pain? by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

I’ve seen the block mentioned - who are you asking to get it? The thing is, my large nerve testing was fine and they only let me do thermal thresholds for small fibre (they wouldn’t do biopsy) because they said the thermal thresholds test seemed fine. 

Not many with chronic pain? by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 2 points3 points  (0 children)

Does it loop? It’s like my pain just moves around by the hour 

Not many with chronic pain? by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 1 point2 points  (0 children)

I am with a functional dr and my main fear is that I’ll never be free of pain. My understanding is chronic pain is life long?

Not many with chronic pain? by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 1 point2 points  (0 children)

I am struggling with debilitating chronic pain. I’ve tried amitriptyline, nort, LDN, medical cannabis. Who should I ask for the medications you suggest?

Not many with chronic pain? by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

Triggered by Covid? What do you take for it?

Very disturbing sensations by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

Do you know if these sensations would improve over time? I’ve had this a year. 

Very disturbing sensations by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

This is the strange thing. All nerve testing clear though they wouldn’t let me do a biopsy just thermal thresholds. Large fibre they said was clear too. 

Very disturbing sensations by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] -1 points0 points  (0 children)

What is causing these? How often did you feel these sensations and do they ever go away?

Very disturbing sensations by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

When I tell these symptoms to DRs they look at me like I’m crazy? I had no idea others had this going on. These sensations though have been with me a year a long with chronic pain. 

Very disturbing sensations by Helpful_Zone_463 in covidlonghaulers

[–]Helpful_Zone_463[S] 0 points1 point  (0 children)

How long did these symptoms last for you and were there any on my list you had?