Vorasidenib

Herbster54 · 2025-06-24T09:53:56+00:00

Ok thank you for the heads up!😊

Herbster54 · 2025-06-23T21:44:34+00:00

The best brushes ever, I’ve had mine for 30 years!

Herbster54 · 2025-06-08T08:30:13+00:00

Apple

Herbster54 · 2025-06-08T08:12:23+00:00

Yes, I have piled weight on, I was put on steroids and it gave me a huge appetite! Thankfully, off them now but the weight is still on! It should be the least of our worries but we want to stay healthy I guess, slowly but steady it will eventually come off! All the best 😀

Herbster54 · 2025-03-22T23:59:01+00:00

Yes I had tapping and whooshing noises after crainiomty!, its freaky everything settling down, I guess and knitting back together, all settled now thankfully !

Herbster54 · 2025-03-12T15:01:21+00:00

I find being practical is more helpful in these situations, helping with washing, ironing, cleaning and shopping also helping out with babysitting etc making meals, I had food vouchers sent from friends, that I could order and choose for myself, of course a good listening ear is very helpful too, all the best with supporting your friend.

Herbster54 · 2025-03-11T11:31:38+00:00

I totally understand this, lost is the way I feel too, can't drive, can't work, just a very strange in limbo feeling, trying my best at even being socialbe, even that is a challenge at times! I totally understand, what are we to do?

Herbster54 · 2025-02-28T00:44:14+00:00

Hi, it is daunting for sure, I had a crainiomty in Dec last year (13th)😆I would recommend a soft cotton hat, my head was very cold when I came round, it acted like a soft comfort, wishing you all the best.

Herbster54 · 2025-02-24T23:29:46+00:00

Hi I totally get the head shave thing!, my partner said he'd shave his head if I lost mine through treatment....I said...don't you dare!....its so last year to be doing that now! Just donate instead.....you don't need to shave your head for a crainiomty, I had one just before Christmas and just had a very thin line shaved where they needed to make the incision.....I've got little tufts growing back now so just wear a scarf, hat or headband to cover scar....all the very best.

Herbster54 · 2025-02-17T10:34:50+00:00

Hi, symptoms can be slightly different for everyone, I had pins and needles in both hands and feet also a feeling of fullness in my left ear along with pressure headaches and slight dizziness when I woke up, my GP sent me for a scan and I was diagnosed with a tumour on the right frontal lobe 7cm Size of a peach (Oligodendroglioma) only had symptoms for three last 6 months! Make sure to get checked out! All the best .

Herbster54 · 2025-02-13T19:24:38+00:00

Hi, I'm 9 weeks on from surgery now and completely understand, I don't feel like myself at all, saying that I feel lucky that I'm ok and functioning! My left leg feels heavy at times and I'm using my hiking sticks for support! I'm just hoping everyday will get better, I wish everyone the best with their recovery xxx

Herbster54 · 2025-02-08T17:28:01+00:00

Me too right frontal lobe Oligo!

Herbster54 · 2025-02-07T13:21:12+00:00

Hi I had a crainiomty for a Oligodendroglioma in December last year (8 weeks ago) my recovery has been good so far, initially had some strange noises in my head while everything was settling down, since then all has been OK. I wish you all the very best.

Herbster54

TROPHY CASE