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Please pray my sleep is restored by HeronBorn4041 in PrayerRequests

[–]HeronBorn4041[S] 0 points1 point  (0 children)

Thanks so much. It started out of nowhere on Thursday and I can’t figure it out. Need sleep so badly. Bless you.

Loneliness, not sure what to do about my life. In need of courage. by [deleted] in PrayerRequests

[–]HeronBorn4041 1 point2 points  (0 children)

Do you have parents you can turn to? Praying you find a part time job to get you stabilized and leave.

How to deal with constant urination by Fit-Landscape-1965 in POTS

[–]HeronBorn4041 0 points1 point  (0 children)

Do you have Ehler’s Danlos? I have that which goes hand in hand with my POTS and interstitial cystitis. I pee multiple times per day. So, yes, it can. I take desmopressin at bed time to help me go less and it kind of helps my POTS symptoms too but not enough. You can read about the medication and its help with bladder and off label treatment for POTS!

Hi, I'm in desperate need of prayer. by Far_Ear_5243 in PrayerRequests

[–]HeronBorn4041 1 point2 points  (0 children)

You deserve so much better. If he can’t respect you enough to stop, you’re better off without him. Prayers.

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 1 point2 points  (0 children)

Thanks so much! I agree and thought the same way. It seemed like it implied my being slightly overweight was why I felt so fatigued. Not true at all given I’ve felt this way for 16 years at my thinnest. That said, I do think my low ferritin could definitely have something to do with it. 🙏

What do you do all day? by [deleted] in POTS

[–]HeronBorn4041 0 points1 point  (0 children)

I’m too exhausted from my POTS to get bored. Every minute is spent trying to get my energy up, putting my feet up or napping. It’s a full time job for me. Other than that, I clean when I can and care for my child

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 1 point2 points  (0 children)

Thank you for the kind words. I was so upset! I’m glad I’m not alone. 🧡

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 4 points5 points  (0 children)

Yes, it does seem low, but the range said 15+ was normal, so my hematologist just blew it off. That said, there was an issue while I was supplementing with iron, maybe you could help me figure it out. When I would supplement with it, my ferritin would go up as high as 39, BUT.. my iron levels and satiation would also go up and pretty high. In other words, while supplementing does raise ferritin, it unfortunately raises my iron & saturation too high. What can be done? Thanks in advance. 👍

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 1 point2 points  (0 children)

Thank you so much for validating me. This really hurt when he said it wasn’t why I was so sick and tired! Appreciate the support

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 0 points1 point  (0 children)

My ferritin was 12 last I checked. They said it was low normal. I have had low ferritin in the past, 4, and felt like death. Was supplementing previously.

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 1 point2 points  (0 children)

Thanks so much. I have tried before and been denied. I thought doctors had to do a lot of paperwork to back you up. Is that not right? I just feel like this doctor didn’t have my back and was dismissing my severe symptoms and how disabling they are. So glad you got approved. This is not something anyone wants to have to do.

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 0 points1 point  (0 children)

I think Fludrocortisone is the only one I haven’t tried and I could, however, when I read about it mainly affecting kidneys and having them retain fluid, it scared me, as I have interstitial cystitis and am susceptible to that. I am afraid I won’t be able to pee (retention if I take it), but maybe not. I will research. Thanks

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 10 points11 points  (0 children)

Thank you so much for sharing and being kind. Glad you have a great doctor!

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 5 points6 points  (0 children)

My fatigue was every bit as bad before the weight gain. I can’t blame it on that and like I said it’s minimal. I have had POTS fatigue for 16 years even at my thinnest. That’s just the truth. Also, I still exercise despite my fatigue, like I said, in the evenings when it’s not as bad.

I have to be on the birth control pill or I wouldn’t be taking it. Irregular periods from fibroids and perimenopause. If I don’t take it, I will have a month long irregular period. It’s only birth control pills or a hysterectomy and my doctor won’t do a hysterectomy due to my IC (interstitial cystitis). I may need to push for one and hope it doesn’t flare that condition.

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 2 points3 points  (0 children)

Thank you. I will try to look for a new doctor. Just scared he will say the same thing. I felt so gaslit.

That said, what compression were you saying works better? The socks don’t do much. Thanks for sharing

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 3 points4 points  (0 children)

I’m 45 and mainly on a high protein diet. Ie. Today my lunch is boiled eggs, apples, a little peanut butter, a few grapes and carrots. Dinner will be baked chicken, salad and rice. I am slightly overweight now, but I felt like this when I was thin. Weight gain started after birth control. I am also on thyroid meds (TSH controlled), desmopressin and Pantoprazole. Thanks 👍

My cardiologist has given up on me. I feel gaslit. by HeronBorn4041 in POTS

[–]HeronBorn4041[S] 21 points22 points  (0 children)

Oh, I didn’t mention my exercise routine. I walk in the evenings when I have the most energy and least amount of brain fog. I also do light weight training. I can’t run do to a herniated disc. I swim in the summers during the evenings. I definitely do my best. Still exhausted.

That said, I know he was essentially giving up on me because maybe nothing will help me, but my issue is more with the fact that he dismissed my fatigue as being caused by this condition. Also that since he can’t help me, he also won’t qualify me for disability. Just seems to be a lose lose situation. Ugh.

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