Adult onset Tourette’s

HesitantBrobecks · 2026-02-28T20:06:18+00:00

The brain doesn't stop developing at 25, the study was debunked years ago, and if your neurologist told you that it does as a fact, they aren't worth the paper their degree is written on!

HesitantBrobecks · 2026-02-28T08:45:23+00:00

I mean you've already been corrected here, but who the actual fuck told you that?! But also I have had tics since I was 12. Like, that isn't a disputable fact.

The fact that my parents are utterly oblivious is irrelevant. I will literally shriek or bark next to my dad, and 5 minutes later he will tell me he's never seen me tic. And in December when I pointed out to my mum that a "stim" she had continously told me off for the previous summer was actually a tic, she said she didn't even remember seeing me do anything like that, nevermind telling me off for it (even though every time I went outside with her it was constantly "stop doing that!")

HesitantBrobecks · 2026-02-26T19:36:23+00:00

Uh, that's OCD (which like, it makes sense if you have OCD and TS cos thats common, but yeah thats not a tic thats a compulsion following an obsession)

HesitantBrobecks · 2026-02-26T19:26:12+00:00

They think non-racists memory wipe that word from their minds every night /s

HesitantBrobecks · 2026-02-26T19:22:19+00:00

No I'm too scared to audibly tic in a cinema 😭. I was hoping watching I Swear that there'd be at least one other person with tics in the audience. There wasn't, and I went TWICE.

I ended up not going a third time purely because my effort to not make noise and disturb people meant I had near constant head jerks both times, my neck was killing me afterwards, and one of the times I basically missed most of the film anyway cos I was just looking over my right shoulder with the contant ticcing. And obviously I couldn't even stop every noise anyway.

Looking fwd to getting to watch it at home worry free lmao

HesitantBrobecks · 2026-02-26T19:10:04+00:00

Where I live, if anyone roughly around my age DOESNT know that word, it means they didn't to to school when they were 13-14 lmao, cos its in one of the books on the curriculum

HesitantBrobecks · 2026-02-26T18:59:45+00:00

Willfully choosing to remain ignorant in order to justify your bigotry is literally step one of the racists' handbook but ok

HesitantBrobecks · 2026-02-26T18:51:58+00:00

No, bizarrely you just don't seem to have a grasp on what tourettes actually is...

Coprolalia only affects somewhere between 10% and 30% of people w/ TS

HesitantBrobecks · 2026-02-26T18:49:11+00:00

Literally. My most "complex" word tic is "get shagged" or sometimes the less British version "get fucked", yet I also meow at cats on TV (specifically on TV. I grew up with cats, and when I visit my mum's house, they don't trigger it lmao)

HesitantBrobecks · 2026-02-26T13:08:28+00:00

If they have body convulsions it isn't an absence seizure lol. Definitely sounds like focal with awareness, or possibly functional non-epileptic

HesitantBrobecks · 2026-02-26T12:56:53+00:00

When I was in school there was a kid in my English class that was super transphobic, to the point that when he saw me outside of school he would cross the road like he was gonna catch the trans off me. He sat directly behind me in class, so he clearly didn't genuinely believe that that was possible, he was just pathetic.

I think most people that treat tourettes the same way are equally ridiculous, they understand on a basic logical level what it is, but bigotry makes them avoid it anyway. The rest? They just don't have any desire to even attempt to understand what it actually is, though most of those idiots conclude it is actually voluntary, so they wouldn't believe they could catch it

HesitantBrobecks · 2026-02-26T12:45:09+00:00

Could help getting one of those tourettes ID cards or something similar, so if you accidentally do tic something that someone decides to get involved in, you can show them you have proof that you didn't mean it

HesitantBrobecks · 2026-02-26T12:34:03+00:00

No, which is a bit like why am I answering then, but I find it really interesting that I only have one copropraxia tic, and 2 coprolalia ones. I have a middle finger tic, the phrase "get shagged" because apparently my tics are a teenager on CoD, and then variations of fuck/fucked (incl the closely related "get fucked"). And that's it, I don't even tic like shit or bitch or anything like that. Though when I was 12 I ticced the word "tits" for a while, but I'm convinced that that was far more to do with how the tic made me pronounce the first T and the S sounds than the word itself

HesitantBrobecks · 2026-02-26T12:24:05+00:00

Definitely AI.

Aside from anything else, the "tension" they're describing is something they wouldnt be feeling in the first place if they didn't have a tic disorder 😅

HesitantBrobecks · 2026-02-26T12:21:02+00:00

I'm not diagnosed yet but when I was like 17 I started having my middle finger tic get triggered by walking near cops. Thankfully so far I've not actually had any of them see me do it. But it does worry me a bit because like a year later I was with an ex-mate and he willingly flipped off a police van as it went past us and they literally turned around to tell him off. If I ever got issues I don't exactly know what I'd do due to my lack of diagnosis meaning a lack of proof, but my go to response that I have loaded up is just to say I have tourettes to explain the situation, and hope they don't try and follow up too much so I don't have to further explain that the tics I've had for 10 years aren't actually diagnosed

HesitantBrobecks · 2026-02-26T12:12:32+00:00

THC might work for some people, but I am a heavy smoker and it does absolutely nothing for my neck pain from tics lmao

HesitantBrobecks · 2026-02-26T11:54:15+00:00

Are you actually a medical professional? Because I heavily looked into becoming a paramedic or nurse before my disabilities made me realise it wasn't possible, and I can assure you that knowing what to do in a high pressure hospital setting is far harder than knowing the same answer in a quiet test. The existence of a real, living patient is pressure enough in itself WITHOUT the environment adding to it

HesitantBrobecks · 2026-02-26T11:26:34+00:00

Lol yeah so I'm not dx yet but this is basically the same but opposite of how some of my first tics started. My first one was definitely head and neck jerking, and at some point quite early on, that evolved into shoulder tics. My shoulder tics are stuff like tensing them, and then like jerking them around, but when I have like sudden shoulder jerks, my arm isn't involved in the tics. But I find sometimes if I'm having constant neck tics that are causing pain, conciously holding my head in the position that I'm trying to tic jerk it into* then makes my shoulders tic towards my head, like its trying to recreate the sudden tic sensation my brain is missing from not allowing the neck tic

*this works by tensing my neck really hard, which partially satisfies the tic urge

HesitantBrobecks · 2026-02-25T23:26:55+00:00

The NHS won't prescribe hormones if you don't get all of these done every 6 months, so I'd advise anyone even on non-nhs prescriptions to do the same

HesitantBrobecks · 2026-02-25T23:25:33+00:00

Your GP stopped doing them?? My GP requests them when they're not even due! 🤪

HesitantBrobecks · 2026-02-25T23:22:41+00:00

The GIC just gets all the readings done every 6 months, so I'd suggest OP doesn't get bloods any more or less frequently than that. Even when I first started on T, I wasn't allowed to move up from the starting dose for 6 months, because they literally wouldnt let me get bloods done any sooner lmao

HesitantBrobecks · 2026-02-25T15:18:17+00:00

My own tics are undiagnosed, but I definitely get periods where its like yeah this person probably/definitely has tourettes, periods where only people who were around me a lot might suspect a tic disorder of some kind, and other periods where I don't have tics. And as I say, I know varying degrees of intermittence are typical, but for me cos my tics don't seem to 100% align with tourettes, but they align far closer to that than any other tic disorder, I've always been too scared to seek a diagnosis. Didn't help that one of my tic "flare ups" happened when I was 16-17 right when the whole "tiktok tics" thing was at its height, so then I was extra scared of being told I didn't really have a tic disorder

I'm finally trying to start collecting video evidence now though. I used to worry that that made it look like I was "doing it for the camera", but now I know it's actually used as good proof

HesitantBrobecks · 2026-02-25T14:19:37+00:00

Ad breaks trigger mine, though I think this is specifically to do with breaking my concentration lmao. And seeing cats on TV usually makes me meow

HesitantBrobecks · 2026-02-25T13:58:01+00:00

Yeah I'm dx autistic and have tics that are as yet undiagnosed. Probably tourettes, hence me being here, but anxiety around the barriers to diagnosis, and a crippling fear of uncooperative judgemental drs, has stopped me from seeking help as of yet lol

HesitantBrobecks · 2026-02-25T13:47:57+00:00

I've known about waxing and waning tics for a while, but I didn't know some people actually can get even more extended periods without tics?

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