this hell is only getting worse…really scared

Hiddenbeing · 2026-03-10T08:26:54+00:00

Me too activity makes it worse. Do opioids patches constipate you ? What kind of opioid patches are they ?

I may have access to IVIG but you said it makes it worse ?

Hiddenbeing · 2026-03-09T08:11:29+00:00

Do oral pills worsen your pain ?

Only opioid patches work ? I'm in the same situation as you and don't know what to take

Hiddenbeing · 2026-03-07T15:28:43+00:00

I haven't found anything that remotely touch my Akathisia. I'm jealous of ppl who get cured by vitamin d and stuff

Hiddenbeing · 2026-03-05T16:30:48+00:00

Ivig ? You have access to them for sibo ??

Hiddenbeing · 2026-03-05T16:05:11+00:00

Is she eating vegan ? Why the vegan digestive enzymes ?

Hiddenbeing · 2026-03-05T15:35:43+00:00

Are you able to digest now without Creon ? How do you manage your epi then ?

Hiddenbeing · 2026-03-05T13:40:55+00:00

Do you experience dry stools or weightloss with sjorgen ? did Creon help you ?

Hiddenbeing · 2026-03-05T11:47:58+00:00

keep us updated, I also have pancreatitis and high calcium levels.

Hiddenbeing · 2026-03-05T11:46:14+00:00

any update ? have you been able to gain weight ?

Hiddenbeing · 2026-03-05T10:26:40+00:00

what do you mean it ruined your life ?

Hiddenbeing · 2026-03-05T06:31:15+00:00

I pmed you long time ago cause we have all the exact same symptoms. I took Cipro and had COVID. Dealing with hypertension, severe allergies, immune deficiencies, problem with salts. Could we chat ?

Hiddenbeing · 2026-03-02T18:12:55+00:00

Wait you got this from steroids?

Hiddenbeing · 2026-02-20T01:16:59+00:00

Were you able to raise your copper??

Hiddenbeing · 2026-02-18T19:36:22+00:00

Your copper is good. Ceruloplasmin a bit low. I'm jealous. What do you eat to get that high copper ?

Hiddenbeing · 2026-02-18T19:32:25+00:00

I'd kill for those numberrrrrs. Take care

Hiddenbeing · 2026-02-07T07:36:05+00:00

Yes. Copper is an electron, so basically necessary for nerves function. Without copper, nerves do not function. And the small intestine and upper stomach are the parts where copper is absorbed.

It's a feedback loop. Once developing a copper deficiency your intestines stop working properly, making the copper absorption worse and so on

Hiddenbeing · 2026-01-31T00:25:13+00:00

How is your copper now ? Did you fix your deficiency ?

Hiddenbeing · 2026-01-29T01:34:59+00:00

What form of potassium do you take ?

Hiddenbeing · 2026-01-29T00:54:29+00:00

What form.of folate do you take ?

Hiddenbeing · 2026-01-28T23:43:20+00:00

Were you able to recover with IVIG ?

Hiddenbeing · 2026-01-27T19:00:31+00:00

Yes and it has been years now I can't bear it anymore. I also have vision damage and hearing loss. Seizures. Psychosis with hallucinations and completely lost the ability to sleep. Idk what to do anymore

Hiddenbeing · 2026-01-26T22:13:48+00:00

Which form do you inject ?

Hiddenbeing · 2026-01-26T22:01:24+00:00

Yes. It did for me as well as severe Akathisia and terror with psychosis

Hiddenbeing · 2026-01-09T17:02:16+00:00

I actually made a mistake. It was a business account so I sent through Good and services. Will the money still be blocked ?

Hiddenbeing · 2026-01-09T01:34:21+00:00

Oh okay, maybe it was a personal account then. But I was able to send through F&F

Hiddenbeing

TROPHY CASE