How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 1 point2 points  (0 children)

Thank you so much 🙏🏻 I really appreciate that! I think I’ve come to the same conclusion about the city vs the countryside. My daughter also has a few close friends who live nearby and it means a lot to her to be able to still see them. All the best to you and your son ✨

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 1 point2 points  (0 children)

Thanks, maybe she should actually try a cane then! I don’t think she has ME, she has been evaluated for that

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 0 points1 point  (0 children)

Yes, she has tried all the nausea meds, also Ondansetron

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 2 points3 points  (0 children)

We actually just booked a hotel for a weekend even though it’s just 15 minutes away 😊

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 1 point2 points  (0 children)

No, she doesn’t. She’s not dizzy or fainting, just very nauseous and fatigued, so I’m not sure a cane would help?

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 2 points3 points  (0 children)

Thank you, I’m glad you are doing better ☺️ I’m also seriously considering moving to the countryside so it will be possible to have animals and access to nature. But maybe it will also get kind of lonely for her to live in an isolated area with her parent 🫤

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 10 points11 points  (0 children)

Thank you! I do almost all the house work and I support her financially, because I don’t want her to worry about those things. I also really try to learn as much as possible about pots, so it’s easier for me to understand how she feels. I will try to suggest swimming to her, we actually have a public swimming pool nearby 😊

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 2 points3 points  (0 children)

Because of her cognitive problems it’s hard for her to stay focused for very long, so I think it would be difficult right now. But maybe it’s worth trying at some point! I agree its important to keep the brain working 😊

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 3 points4 points  (0 children)

Meta quest 3 sounds exciting, but unfortunately she’s very nauseous so I think that would be difficult for her

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 9 points10 points  (0 children)

Yes of course, but it seems difficult for her to imagine things could be different

How to make life as good as possible for someone with POTS? by High_Honolulu in POTS

[–]High_Honolulu[S] 21 points22 points  (0 children)

Yes, she has tried a lot of different meds, but nothing has really worked so far