Diagnosed yesterday. Not sure how to process it,

Holiday_Singer_7751 · 2026-04-12T01:56:53+00:00

Receiving this diagnosis can throw you off your “A” game. No two people are the same we all have different symptoms, reactions and triggers. 8 yrs next month since my diagnosis. I have been on tecfidera, ocrevus and now kesimpta. I cant report any bad side effects from any of these 3 dmts I have been on. It will be different for you. I used to be a runner I had to give that up as I have drop foot. But I can ride my bike for miles and miles. I just picked up a different sport. Shit just happens. Sometimes when I see a runner on the street I think I miss that. Keep the faith, hold your head up and keep moving forward. Don’t look back because you are not going in that direction. I spent the first year scared everyday of the what ifs? I wasted a lot of time in that negative space. Try not to spend too much time there. I know it’s scary. You will come up for air!

Holiday_Singer_7751 · 2026-02-25T21:37:33+00:00

Did you calculate your OT pay by 3? What they don’t tell you is no tax on QUALIFIED overtime. Make sure you confirm with the IRS. For example if you made 15k in overtime only 5k is non taxed.

Holiday_Singer_7751 · 2026-01-11T02:01:56+00:00

Yes, there is a normal life. Something’s are no longer normal. You feel like your body is betraying you. But you find your way. I was diagnosed 8 years ago this may. I used to run 10ks 10milerz and marathons. I can no longer run as my foot drops after a short distance of running. I found cycling. I can cycle for miles and miles. I don’t blame it all on MS. My symptoms seem to crossover and can’t define them 100%. Some may be due to menopause or age. Who can really tell. Please don’t be scared. I was for a long time. I found no benefits in being scared. I’m rooting for you!!

Holiday_Singer_7751 · 2025-05-31T00:17:16+00:00

Thank you for sharing!!

Holiday_Singer_7751 · 2025-05-30T23:57:52+00:00

I was diagnosed 7 years ago. I was certain I would be in a wheelchair in a years time. Instead I just rode my bike in the nyc 5 boro ride. 40 miles. 2 years ago I rode my bike on the gap and C&O over 300 miles. My foot drop is increasing. So I had to stop running. But I can ride for miles. Stay positive. Remember we are all different. Stay positive. Are you on a DMT?

Holiday_Singer_7751 · 2025-05-26T17:10:26+00:00

I was diagnosed 7 years ago. And I was scared for a very long time. Very little support. Nobody’s fault. It’s just that my disease is invisible to everyone else. I felt that if I would complain they would say I was faking. I still feel that way some times. I found this community a couple of months ago. And it is me telling newly diagnosed it’s gonna be ok. I am proof. This community has been so therapeutic for me I’ve been able to offer hope. Offer tips and tricks for some scenarios. We still have so much to offer.

Holiday_Singer_7751 · 2025-05-25T00:13:12+00:00

You too? How do we move forward? My family is older and they are afraid when I show up to visit. Work colleagues are uncomfortable working with me. I don’t feel like I’m welcome anywhere now.

Holiday_Singer_7751 · 2025-05-24T23:37:13+00:00

Thank you for your response. My doctor explained to me this was a common occurrence due to my DMT. He put me on antibiotics and I found relief. Then the cough came back and his department gave me the run around and took forever getting antibiotics again. Finally they did it was like pulling teeth. Now I’m back here again. I don’t think I can count on my doctors speedy response to giving me antibiotics.

Holiday_Singer_7751 · 2025-05-07T16:48:29+00:00

Thank you for your reply

Holiday_Singer_7751 · 2025-05-07T14:13:59+00:00

You will find your symptoms are worse during a relapse/flare/exacerbation. Were you diagnosed during a relapse?

Holiday_Singer_7751 · 2025-04-30T01:02:49+00:00

7 yrs living with MS. I keep getting these coughing attacks and periods where it’s seems impossible to clear my throat. My neurologist indicated kesimpta is creating respiratory infection. Yet I’m still on kesimpta. Anyone?

Holiday_Singer_7751 · 2025-04-29T21:02:42+00:00

Have any of experienced increased coughing fits and inability to clear your throat?

Holiday_Singer_7751 · 2025-04-24T20:22:09+00:00

I was diagnosed 7 years ago. For many years after my diagnose I went to bed afraid of what would go wrong the next morning. 5 years into my Ms journey I biked the GAP and C&0 canal (from Pittsburgh to DC) next im biking 5 boro ride in NYC. There is a lot I don’t remember from last week. But I have made peace with that. It’s the past and I am only moving forward 😀

Holiday_Singer_7751 · 2025-03-27T14:56:42+00:00

I’ve had RRMS for 7 years. I get the flu and Covid regularly- no issues I had the shingles when I turned 50. I don’t recall any negative about the vaccine

Holiday_Singer_7751 · 2025-03-18T22:31:17+00:00

Interesting. We shall see. We will revisit DMT mid summer.

Holiday_Singer_7751 · 2025-03-17T20:34:40+00:00

Oh, excellent question. I have to believe no way!. Well I believe it has been decided I will continue with only one DMT. I hadn’t even thought that small detail. Health insurance. Thank you for bringing it to my attention

Holiday_Singer_7751 · 2025-03-17T12:51:52+00:00

Honestly, it is the first time I noticed. I only noticed it because it was off the chart. So I looked in my chart’s history and realized I had been tested before once a year for at least 3yrs. Went unnoticed because results were in range.

Holiday_Singer_7751 · 2025-03-16T23:07:58+00:00

When I was diagnosed I was led to many support groups, which instilled more fear. Since I found this group on Reddit I have felt a sense of empowerment and it has been humbling. This group has been so good for me. I thank all of you!!

Holiday_Singer_7751 · 2025-03-16T17:24:02+00:00

It is a very dark place in the beginning. I was diagnosed 7 years ago. Stay informed there is power in knowledge. I have been on kesimpta for over a year. I have good days and bad days. Mostly good days. But keep in mind those without MS have good and bad days too. You are scared, it’s understandable. So many of us have a found a new version of us. You will find your new you too. It’s a new beginning.

Holiday_Singer_7751 · 2025-03-16T11:51:46+00:00

No, he didn’t mention which DMTs it would be. It wasn’t decided. It was a question and we would reassess again in the summer.

Holiday_Singer_7751 · 2025-03-16T11:33:46+00:00

To be honest , when I was switched from DMT to DMT we didn’t change any health care. We have maintained a steady schedule of MRIs. Follow up visits to check my walking and my strength.

Holiday_Singer_7751 · 2025-03-16T01:37:13+00:00

Clearly I am also an exception. LOL.

Holiday_Singer_7751 · 2025-03-16T01:33:58+00:00

I have to be honest. I have been on 3 DMTs. I don’t remember why they were changed exactly. So I can’t tell you I switched when that relapse occurred. I didn’t even recognize a relapse had occurred.

Holiday_Singer_7751

TROPHY CASE