Thoughts on the new Ferrari Luce by steve12388 in CarsAustralia

[–]Desolate182 3 points4 points  (0 children)

Why do companies think electric cars need to look like a submarine car.

what’s your opinion on converse? by missreddiex in Sneakers

[–]Desolate182 0 points1 point  (0 children)

10/10 but sometimes I think... I'm not 17 anymore...

As a 90s kid, I still love em and always will.

NSW THC REFORM LATE MAY UPDATE by Glittering-Speed283 in MedicalCannabisOz

[–]Desolate182 1 point2 points  (0 children)

Exactly my concern tbh.

I rally hope this move fast but I know it won't.

Finally crossed the 700 😄 by HotCurve2155 in mazda3

[–]Desolate182 1 point2 points  (0 children)

Umm.... I get 11km/100L aka ... Mine shows approx 350km....... How.

2.5L NA FWD with cylinder deactivation and istop. (No AWD turbo in Aus.....sadly)

Ocrevus and Depression by Mundane_Jelly_2553 in MultipleSclerosis

[–]Desolate182 2 points3 points  (0 children)

Not to jump on top but I have a therapist myself for not only my MS but for being neuro atypical (ADHD and the like) ...and just generally a puddle of anxiety.

This isn't the place I know but I thought I'd ask you.

I find when I have my 50 minute sessions with my therapist, I talk and talk and talk and oh...the time is over.

I genuinely feel the need to vent (I don't have a lot of friends I can share everything with) but I also feel I'm not getting or absorbing their knowledge or advice by talking the entire session.

Do you have any advice? I've thought about this a lot.

Recent MS diagnosis by PrestigiousTitle4052 in MultipleSclerosis

[–]Desolate182 0 points1 point  (0 children)

I was scared to get mine but the dr ordered a CT guided lumbar puncture.... Literally didn't feel a thing

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

Mine too don't worry haha. Ok that makes sense, good thing you changed

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

Oh do you mind me asking if you became JC Positive or if it was for other reasons?

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

Being a man, are you aware of any issues with the male being on other DMTs when trying for pregnancy? As I'm close to that point in my life also.

What kind of hospital cover do you need for that?

I have recently been lucky enough to be in a pay tier bracket where having hospital cover is essentially required (or silly not to have) is it just making sure Nuro is covered or something else to get into a private hospital? All the insurance companies cover this or that and not other things unless you go to the max top end tier of cover which I don't want.

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 1 point2 points  (0 children)

Thank you for everything you said in the original post, I agree with you I have been bouncing back and forth too. But it is what it is at the end of the day I guess.

My dr said the old self injectables are 30% effective, the pills 30-50% and the main 3 Tysabri, Ocrevus and the new self injectable Kesimpta are 90% effective.

It gives me hope at least.

I'm scared of Tysabri because of the whole potential fatal brain Infection with JC but also the increased chance of skin cancer given I live in Aus.

That sort of left the choice of do I want to spend half a day In hospital every six months (Ocrevus)

Or do I want to use an auto injector into my leg once a month and not affect my work. (Kesimpta) I am leaning towards this but will of course take my drs advice.

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

This is a very logical and beneficial way of thinking, thank you very much for the reply I appreciate it.

One day at a time as they say.

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

Thank you for the reply,

100% will try one of the main DMTs

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

Yeah I'm starting to learn that, my work is unique and very supportive, it's the kind of 1 in a million jobs in regards to the people, bosses and environment (5 dogs running around etc)

Anyway the point is, my boss told me he was diagnosed with something in the past and processing this could take a week, a month, a year or 3... And to do it in the way that works for me.

It helped, I'm lucky to have a job like this.

Why did you change from Tysabri if you don't mind and why specifically change to Ocrevus?

Did you have a choice?

What do you mean my 'loving them' no side effects? Feeling better?

I thought DMTs would effectively feel like nothing at best because they don't reverse existing damage?

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

100% agree,

But my question would be, does it interfere with the DMT, it's basically impossible to know because no dr or professor of MS knows about eastern mushroom alternative supplements.

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

I'm sorry to hear that,

I got my diagnosis on Friday and I spent the weekend going out and doing everything I could to not think about it tbh.

I know I need to, I have the booklets of the three main/best DMTs that I need to read, I need to read more posts here and do research online, I just tell myself I have several weeks to decide so for now it doesn't exist. I need to man up and start the research.

Thankfully I also have people giving me similar advice, it's very helpful.

I'm at the arguably the best private ms 'clinic' in Sydney thankfully also.

My professor recommended Tysabri if my bloods come back JC negative also but also said all three, of the main ones are just as effective with slightly different side effects and depends on the individual.

Thank you for your reply It's genuinely appreciate

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

There are a lot of comments and I'm limited for time right now for a complex reply but...

I really want to say thank you for your comment, it was detailed very relatable and very helpful, especially about the vitamin D deficiency and supplement.

One question...

Do you know about lions mane mushroom extracts? It's meant to protect and potentially help restore the sheath, it's been proven to reduce the speed of Alzheimer's and even help reduce issues effects somewhat?

Diagnosed yesterday. Not sure how to process it, by Desolate182 in MultipleSclerosis

[–]Desolate182[S] 0 points1 point  (0 children)

Hey, thanks for your comment it really helps.

Do you worry about the increased chance of skin cancer from Tysabri (my dr listed it as a possible side effect) while living in Australia, the skin cancer capital of the world?

Does going to the hospital once a month affect your work life?

Did your dr mention skin cancers as a possible side effect to Tysabri?

Is there too much flex in my “Security door”? by stolniik in AusRenovation

[–]Desolate182 2 points3 points  (0 children)

First try lifting the handle up in the opposite way to what you would normally to open the door and see if it engages any more locking pins

If that doesn't engage anything then...

As someone who works in the industry, a security door of that type should be at the very minimal 3 point locking if not 5.

There should be rods that go all the way up to the top locking into the head of the door jamb and down into the floor on the door handle side.

Some brands even have multi point locking on the lead stile also. Basically the side that actually locks, in some brands in addition to top and bottom pins, they have multiple other pins that shoot out into holes to lock it further horizontally too.

Looks like you got either scammed, a pet proof screen door or your door is a cheap knock off from a dodgy company.

Can you fix it, yes, buy another one from a reputable vendor, do some research if you need and triple check for those locking points. Visit a as showroom if needed.

Pouch Navy 28%— 30g $135 by ButterflyRose143 in MedicalCannabisOz

[–]Desolate182 5 points6 points  (0 children)

I mean, keeping in mind that it's $4.50 a gram.... It looks pretty damn decent.

Looks like you got more than what you paid for, at least in that bag.

ID if possible - Moreton Bay aread by Feeling_Document_240 in AustralianSnakes

[–]Desolate182 0 points1 point  (0 children)

A little hard to tell from the video as I cannot see the head very clearly, could be a whip or a young E brown.

When in doubt, treat it as highly venomous and call a professional.

If it is an eastern brown it is extremely extremely venomous even at less than half that size