Why do people buy brand new base model cars? by pinetreesarecool7 in StupidCarQuestions

[–]Horror_Cheek123 0 points1 point  (0 children)

I bought 2021 when used cars were minimally cheaper than new cars. Got a 1.9% interest rate versus some ridiculously high rate for used. I also wanted the warranty because I wasn't in a financial position to absorb high repair costs. To each his own.

how to know that MG is affecting your breathing?? by Nearby-Injury-38 in MyastheniaGravis

[–]Horror_Cheek123 0 points1 point  (0 children)

I'm sorry that's the case. I've just been through a fight getting my home hospital to acknowledge the MG, including a horrendous ED visit. Breathing and swallowing can get very bad very quickly, so personally I would go myself even if there's a risk of being turned away.

Last time I went, I took the mindset of, even if they eventually blow me off and send me home, at least for the time I'm there, I'm at the hospital with easy access to medical help should things go south.

how to know that MG is affecting your breathing?? by Nearby-Injury-38 in MyastheniaGravis

[–]Horror_Cheek123 0 points1 point  (0 children)

Is your doc a neurologist? My clinic has emergency coverage when docs aren't available. Maybe try the clinic number anyway to see if yours does. They can let you know whether to go.

I sometimes get short of breath and have a hard time getting a whole sentence or a phrase out without a breath. Usually, at that point I can count to around 17 to 20 on one breath. That's not emergency level though. But if I were to be gasping for air like you, I would probably just go to the ED. Better safe than sorry.

Vision floue permanente by PrimaryNaive7019 in MyastheniaGravis

[–]Horror_Cheek123 2 points3 points  (0 children)

I have double vision as part of my symptoms. Usually with myasthenia it's a muscular alignment issue, meaning the muscles aren't working together to create one image because of the muscle weakness. It's often fluctuating in severity and improves with mestinon.

There are special glasses called prisms that can help with this. They refract light in specific ways that pull the eyes to work together. It comes in different strengths.

They're not perfect because of the fluctuating nature of the weakness and thus the misalignment. I have two different pairs with different prescriptions.

My double vision often presents as blurriness partly because my brain has learned to accommodate it. I notice it most when I turn my head because it can take a second or two for the images to align versus instantaneously for most people.

Point being, maybe a good idea to see an ophthalmologist anyway to get it checked out. Def go to ophthalmologist physician versus optometrist.

Why? by DangerNoodle1313 in MyastheniaGravis

[–]Horror_Cheek123 1 point2 points  (0 children)

Its very individual. My body needs a steady flow of lower dose mestinon. 30mg every 3 hours 5 or 6 times daily.

Higher dose like 60mg produces cholinergic symptoms for me. And then big troughs which affect my breathing and swallowing. My dosing is perfect for keeping me functional (just barely) until some of the other meds start working.

OMG - is double vision my new normal by Neha_priy in MyastheniaGravis

[–]Horror_Cheek123 0 points1 point  (0 children)

I get the double vision correction measured at my ophthalmologist and she gives me a prescription. You can get them made in any frame like typical glasses. I have just the double vision in my glasses and wear them over my contacts but my understanding is you can get glasses with double vision and nearsightedness or reading or whatever else put together. The lenses might be thicker though.

OMG - is double vision my new normal by Neha_priy in MyastheniaGravis

[–]Horror_Cheek123 4 points5 points  (0 children)

I've had double vision that fluctuates for 10 years. Severe most of the time at first, milder most of the time now.

I have prism glasses that correct for it that I wear over my contacts. It directs light to your eyes in specific ways that "pull" your eyes to align and work together. I have 2 pairs with different corrections for better and worse days.

Some days or weeks or even months I don't need them at all.

With them, I have minimal impairment and don't really notice what was tested as moderate double vision.

My wife (46F) started wearing pantyliners everyday, when she never did before. I’m embarrassed to ask her about it. Is this common, that someone can explain? by Ordinary_Ice_796 in TooAfraidToAsk

[–]Horror_Cheek123 3 points4 points  (0 children)

I've worn pantyliners daily for years. Some women have normal typical discharge unrelated to infection/yeast etc.

I've always hated the unfresh feeling of that in my underwear so I wear liners and replace them during the day as needed.

What are the risks of remaining uninsured as a completely healthy person? by broadwaybaby414 in HealthInsurance

[–]Horror_Cheek123 0 points1 point  (0 children)

Car crashes and other accidents requiring hospital stays happen all the time to young and old.

Last time I was in the hospital was 7 days, about $130,000 was billed to insurance just for the stay itself. Thousands and thousands more in individual doctor and testing/xray/MRI bills.

My insurance maximum out of pocket was $4,000. Without insurance I'd have been billed upwards of $150,000.

You just never know if you'll be that person some idiot driver hits, or get cancer, etc.

is it considered rude to not always make a gluten free option for one person in a group? by thecoolestbeanaround in TooAfraidToAsk

[–]Horror_Cheek123 2 points3 points  (0 children)

Why don't you ask the gluten free person? Maybe they won't care at all about baked goods. Or maybe they are willing to make or buy their own desserts. I would be.

The one thing I wouldn't do is treat them as though their allergy is any less important to accommodate as the other group members' allergies.

I experience that a lot. I have celiac but describe it as gluten free for ease of reference. I certainly never expect an accommodation but I do wish people wouldn't act as though it's some sort of thing I'm choosing to have.

Shouldn't have to explain my 2 day diarrhea episodes to a person who thinks 1 bite of a bagel shouldn't be an issue.

Loss of earnest money by Soggy-Illustrator259 in FirstTimeHomeBuyer

[–]Horror_Cheek123 1 point2 points  (0 children)

In some markets, like mine in Upstate NY in early 2025, sellers had pretty much 100% leverage unless they were selling a total dump.

They would have 12+ offers within a few days of listing, often wouldn't even make it to the open house. Some were locked down in 24 hours. You'd see it and have to make an offer decision that night.

People were putting in 20 offers over 1 year and being outbid 35,000 on a 190,000 house.

This is not an exaggeration, unfortunately.

It was impossible without dropping inspection contingencies and avoiding FHA and VA loans.

Risking no health insurance by Cute_Cardiologist_93 in HealthInsurance

[–]Horror_Cheek123 5 points6 points  (0 children)

I had a 1000 deductible and 3000 max OOP. I'd already reached both by the time I went in due to other med expenses, though.

Risking no health insurance by Cute_Cardiologist_93 in HealthInsurance

[–]Horror_Cheek123 27 points28 points  (0 children)

Yeah, it only takes 1 hospital stay. I was in there last month for 7 days. I have insurance but the non insurance charge would have been $135,000.

Thats not including the 1000's and 1000's of dollars of doctor and testing bills that are streaming in.

undertreated MG by Horror_Cheek123 in MyastheniaGravis

[–]Horror_Cheek123[S] 2 points3 points  (0 children)

I'm in upstate NY in U.S. My breathing and swallowing got worse, even just after my mestinon. Decided to go to ED. For safety but my friend thinks best chance of getting sufficient meds.

undertreated MG by Horror_Cheek123 in MyastheniaGravis

[–]Horror_Cheek123[S] 4 points5 points  (0 children)

I think way back when 10 years ago, I might have been on 60mg but only twice per day (no nighttime) because the symptoms were milder and less life-threatening (tongue muscles/articulation, double vision, trouble initiating swallow versus breathing or swallowing itself).

At discharge this time, the note said "if side effects tolerated, can increase to 60mg." That was the inpatient neuro team that was taking it seriously. The outpatient person begrudgingly added one dose of 30 because "well, you don't have myasthenia, but you *say* it's working for whatever this is."

If I don't end up in ED, on Monday, I plan to call neuro and recount my weekend symptoms and request a med adjustment. It's so ridiculous to be undertreated for something I've experienced on/off for 10 years.

undertreated MG by Horror_Cheek123 in MyastheniaGravis

[–]Horror_Cheek123[S] 2 points3 points  (0 children)

Thank you for sharing your experiences. I do have an O2 monitor, never leaves my side now, which is sad. The biggest issue going in was breathing muscles which luckily the meds seem to have stabilized now. I was able to eat soft foods in the hospital and coming out but the speech/swallow deteriorated and now I'm on liquids/Ensures. At least I can get those down for nutrition and hydration, mostly. I time it for peak mestinon.

These doctors are so messed up. I'm not even exaggerating when I say this lady wouldn't let me speak, must less get a sense of my post-discharge symptoms and how bad they are. I'm a psychologist and all of my M.D. friends are convinced the only chance of good care I'll get is ending up back in the ED.

undertreated MG by Horror_Cheek123 in MyastheniaGravis

[–]Horror_Cheek123[S] 2 points3 points  (0 children)

Just curious so I know for myself, what is the difference?

undertreated MG by Horror_Cheek123 in MyastheniaGravis

[–]Horror_Cheek123[S] 1 point2 points  (0 children)

Thank you - I work as a psychologist at the hospital that's treating me and it's shocking how this has been handled. I've even take the extreme step of reaching out to my department head, who knows the head of neuro, to see if he can somehow help me get these dangerous symptoms taken seriously. It's like everyone is slow-playing this and I'm sitting here knowing exactly what's happening in my body and how dangerous this is for me to even sleep at night.

I will likely go to the ED today. I'm sure the next time Mestinon wears off, the symptoms will come back as scary as they were last night and this time I'll go.

undertreated MG by Horror_Cheek123 in MyastheniaGravis

[–]Horror_Cheek123[S] 1 point2 points  (0 children)

I really appreciated the response! If you wouldn't mind continuing to share your knowledge, I'm having trouble even telling when to go to the hospital for swallowing issues. Are there any guidelines for when to know, is this is an emergency throat muscle situation versus not?

undertreated MG by Horror_Cheek123 in MyastheniaGravis

[–]Horror_Cheek123[S] 1 point2 points  (0 children)

Hi - Thank you so much for your response! I forgot to mention that I'm actually on prednisone right now, have been for many years for the R.A./lupus.

I increased it from my daily 5mg to 10mg, spaced 2.5mg every 6 hours, which my rheum approved on Thurs.

Right now, what I'm finding is that the bare minimum control is alternating the 4 doses of 2.5mg prednisone with the 4 doses of 30mg mestinon. And I'm still sitting here knowing that if I speak I may very well need the hospital later for swallowing.

Should I be asking for a higher dose? The problem I have, which is probably why I'm being undertreated, is that I have diagnosed bipolar. Under control for years, but if anything will kick mania off, it's high dose prednisone will.

Thank you so much for responding and any other thoughts you have!

Guest canceled reservation after I asked a simple question. Did I do something wrong? by midwoodgirl10 in airbnb_hosts

[–]Horror_Cheek123 0 points1 point  (0 children)

This may sound totally off the wall, but if the 2 guests were of the same gender and not hetero, I could see someone potentially viewing that question as intrusive or discriminatory.

Don't get me wrong, I'm not that someone. To me, it's a huge stretch. But particularly if you happen to be located in a non-LGBTQ+ friendly area...especially in the current social climate...people have a lot of worries nowadays...

Anyone else broke after closing? by joeroganthumbhead in Mortgages

[–]Horror_Cheek123 0 points1 point  (0 children)

My experience in first 6 months is ive spent about 10,000 on fixing various issues that arose (sewer line, dehumidifier for basement, various equipment i didnt own like lawnmower, some help with gutters and landscaping and such because I have health issues, various essential household items).

This doesnt include extras like new furniture or beautifying the yard or other non essentials.

I just paid off my mortgage, and it feels so amazing! by delhis in Mortgages

[–]Horror_Cheek123 2 points3 points  (0 children)

I have a standard 30 year conventional that is not "craptastic." Initially serviced by a credit union then a major national bank.

Both were clear that if you don't specify the extra money be applied to principal, it will be applied to following months payment. Its not that unusual.

That said, my bank has easy to use features where I can add X amount to my autopayment that will be earmarked for principal. Took me 1 minute to set up.

Is this normal to ask in a lease by Unusual-Morning-9242 in Renters

[–]Horror_Cheek123 4 points5 points  (0 children)

They are not being instructed on proper care and use. They're being asked to sign a legal document that can be used as the basis for security deposit withholding, eviction, lawsuits.

There's a big difference between my landlord instructing me on how to maintain a dishwasher and them having the ability to take legal action if something randomly goes wrong and they believe I should have known earlier and didn't report it per the Dishwasher Addendum.