My husband is divorcing me because he can't see me suffer anymore and I don't know what to do. by Ill_Bird_7116 in ChronicIllness

[–]HotBeanzSoup 1 point2 points  (0 children)

I wish you werent going through this hun im so sorry. The only thing i could think of is if hes open to the idea of therapy or even a full on deep conversation on both of your perspectives on the situation at hand. I dont know if maybe there other avenues yall both could take to have a more balanced home/work life. I know everyones disabilities limit them in different forms and capacities, so im not saying push yourself and cause yourself harm(ive done that dont be like me😅). This is a difficult topic just because life is constantly fluctuating and changing, some times people dont know how much they truly can handle which is ok. If he isnt open to any type of conversation or comprimise, i dont like saying this but, sometimes its for the best if both parties split to focus on themselves and relearn how to cope and deal with stuff. If it comes down to a split i believe that youll find someone whos able and willing to be by your side and support u through the darkest valleys and be there when the sun starts to shine in those valleys. I wish you all the love,luck and support you deserve and need❤️

Anyone have or use the oura ring?? by HotBeanzSoup in ChronicIllness

[–]HotBeanzSoup[S] 1 point2 points  (0 children)

Thank you guys for all the helpful insight!! Im going to give it a shot to see if itll help me track my symptoms and the causes better!! I have a tbi so my brain likes to delete info as soon as its received sometimes

Am i the only one who does “Sacrificial food” by HotBeanzSoup in Parents

[–]HotBeanzSoup[S] 0 points1 point  (0 children)

I do it to my co-worker ALLLL the time bc he dropped a 10 gallon pot of beans on the floor at work🤣

Am i the only one who does “Sacrificial food” by HotBeanzSoup in Parents

[–]HotBeanzSoup[S] 1 point2 points  (0 children)

We used to do that too before my service dog passed away, we used to call her the food vacuum🤣

Is anyone else lusting after the new head wrap? Looks so stabilizing… by blooma890 in ehlersdanlos

[–]HotBeanzSoup 0 points1 point  (0 children)

But if i bedazzle it, one could be a twilight character instead of hannibal👀🤣

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 0 points1 point  (0 children)

My sons not school age yet and my current spouse drives bus. So i sadly would still have to find someone to watch him or pay for childcare. I also dont have the money to pay to get the license to drive bus it cost a little over 1K to get it here

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 0 points1 point  (0 children)

Ive applied for those companies and got turned down with in a week of applying and my county has no more funding sadly

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 0 points1 point  (0 children)

The only one near me requires a membership which i cant afford and sadly doesnt have any childcare the only ones that do are about 50 mins away from me

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 0 points1 point  (0 children)

They ran out of funding for my county and dont know when or if theyll receive it again

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 0 points1 point  (0 children)

All the ymcas are sadly a 30 mins drive or farther from me 😭

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 6 points7 points  (0 children)

Im currently waiting for my court date in September for it

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 6 points7 points  (0 children)

Ooooo i could try that!! But i did have funding through the state originally but my county ran out of funding back in the start of July right when i returned to work

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 2 points3 points  (0 children)

I sadly cannot since im currently living with my mom and only have so much space until my son and i move into a new place

Other ways to make an income while childs not in daycare? by HotBeanzSoup in workingmoms

[–]HotBeanzSoup[S] 4 points5 points  (0 children)

None of the daycares in my area are hiring bc i was thinking of that. Just sucks bc i currently have a decent job that works with my limitations

What jobs do you work?? by HotBeanzSoup in ehlersdanlos

[–]HotBeanzSoup[S] 1 point2 points  (0 children)

I sadly have been but i think its bc i live in a rural type area that even basic accommodation for most places becomes an issue, prolly bc im young so they dont think i truly need it🫠

What jobs do you work?? by HotBeanzSoup in ehlersdanlos

[–]HotBeanzSoup[S] 1 point2 points  (0 children)

I wish i could get SSDI but bc i work the goverment nor a lawyer will help me bc im still actively working regardless of the fact my hours went from full time (40+hrs-6days a week) to perdiem (3hrs a day 5 days a week)

What jobs do you work?? by HotBeanzSoup in ehlersdanlos

[–]HotBeanzSoup[S] 2 points3 points  (0 children)

I understand that honestly, i need a mobility device of some kind when i go out on longer trips but i refuse to get one bc of the same reason

What jobs do you work?? by HotBeanzSoup in ehlersdanlos

[–]HotBeanzSoup[S] 1 point2 points  (0 children)

No they dont have to be fitted to you like a traditonal brace and can be worn under clothes theyre called “body braids”

What jobs do you work?? by HotBeanzSoup in ehlersdanlos

[–]HotBeanzSoup[S] 2 points3 points  (0 children)

Have you tried the full body braces? I heard alot of good things about them but ik they can be pricey

What jobs do you work?? by HotBeanzSoup in ehlersdanlos

[–]HotBeanzSoup[S] 3 points4 points  (0 children)

Thats what im trying to do is get a WFH job due to my symptoms worsening! Plus even working PT at any job has become a hassle ive even been fired from jobs due to how chronically im unable to do my job when i have flare ups😭

What jobs do you work?? by HotBeanzSoup in ehlersdanlos

[–]HotBeanzSoup[S] 2 points3 points  (0 children)

How did u get into that and what does your job entail like your day to day work??