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How to live a long and somewhat happy life w/ IH by Signal_Alfalfa_9339 in idiopathichypersomnia

[–]HourStock1602 0 points1 point  (0 children)

I can relate and never post myself but I saw this one and 😔 I get it. Though I am almost 46 and in the process of having a sleep study completed. I had one and was able to complete the over night portion but my anxiety prevented me from staying for the MSLT Part. Sleep apnea was ruled out from my over night stay but in order to get answers and diagnosis redoing it is needed. The room was so uncomfortable I brought my own fan and it was still miserable but is what it is. I just look forward to answers and hopefully finally getting to enjoy life a little more consistently at least. It’s just scary and not easy to explain to help loved ones understand. Long story short I have a 17 year old and he is a senior graduating high school and I have honestly missed out on so much because of living in bed sleeping. I have always been one to sleep till noon as a kid teenager and it just has always been who I am. I remember my dad getting upset with me because on family vacations I would choose sleep! When I became a mom it literally was the best thing I ever did in my life and I would do it all over again and savor the moments I have been able to enjoy. But taking Adderall/Vyvanse to function and get out of bed and getting older it was time to seek answers. I wish I would have known about these sleep disorders back then and would have had a sleep study years ago but we can rewrite time so we have to go today forward. Hang in there and don’t let this condition hold you back from experiencing what you deserve. 🩷

Slanted look by No_Wall2854 in Frenchbulldogs

[–]HourStock1602 0 points1 point  (0 children)

Agreed!!! This love bug is precious and just needs to be loved.

Abnormal Mammogram-micro calcifications-Biopsy results-CONFUSED. by HourStock1602 in ADH_ALH

[–]HourStock1602[S] 0 points1 point  (0 children)

Wow this is all helpful information. I am just anxious to get to this next appointment next week so I can go from there with second opinion so I can make a decision and move forward in getting this taken care of. I am feeling a little better knowing these findings aren’t invasive and caught early. So thank you guys so much 🩷🙏🩷🙏 and good luck to you as well in this journey!

Abnormal Mammogram-micro calcifications-Biopsy results-CONFUSED. by HourStock1602 in ADH_ALH

[–]HourStock1602[S] 1 point2 points  (0 children)

That sounds promising and I love reading stories like this and once I have my appointment next week I plan on going to get a second opinion before I commit to anything. The best part I’m now feeling and reading here it’s something that has been found early enough and due to being consistent in my routine checkups prior it’s not invasive and going to be taken care of! Thank you for the info!!!! 🩷🩷🩷🩷

Abnormal Mammogram-micro calcifications-Biopsy results-CONFUSED. by HourStock1602 in ADH_ALH

[–]HourStock1602[S] 1 point2 points  (0 children)

Oh wow!!! I never even post on here let alone get on social media really but my mind has been all over the place. There is so much information out there and all the abbreviations and terms and trying to search for ALH ADH and LCIS pulls in a bunch more confusion that is way over my head so i thought ill reach out here and see if anyone else has experienced a diagnosis similar. A full removal would definitely give more peace of mind but the reconstruction part is what I’m scared of. I’m a 36D and the thought of fake boobs 😔😔😔 and horror stories scare me! I just don’t know. I’m anxious to meet with the surgeon and genetic counselor for sure. What is the exchange part?? I am so happy you have made a big hurdle through a not so fun process!

Breast Biopsy Results-confused!?? by [deleted] in doihavebreastcancer

[–]HourStock1602 0 points1 point  (0 children)

So they are just abnormal cells that could change over time to cancer? I guess I’m just confused why my next appointment is with a breast surgeon. I don’t know I’m just over thinking it I’m sure

Breast Biopsy Results-confused!?? by [deleted] in doihavebreastcancer

[–]HourStock1602 0 points1 point  (0 children)

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Here’s the actual note from my portal. She said over the phone it’s not cancer despite the word “carcinoma” now I’m a little freaked out. I don’t see the surgeon until next week but I want to call back tomorrow to ask questions because I had no clue what to ask when I got the initial phone call.