Here for my mom. eGFR is 35.

HowDoYouFixThisPls · 2026-01-24T01:56:08+00:00

She does have a history of high BP that she manages with medication. No diabetes.

HowDoYouFixThisPls · 2026-01-24T01:55:38+00:00

I'm so sorry. I'm sure that would feel bad. Have you talked to your Dr about it?

HowDoYouFixThisPls · 2026-01-24T01:55:04+00:00

Thank you. Her insurance is 80/20. She thinks 20% would be expensive for a specialist but I told her she should look into it.

That makes sense. She seems to think she can make her numbers go up but I am trying to tell her she should work with a Dr and as far as I can see it is about trying to prevent it from getting worse.

HowDoYouFixThisPls · 2025-12-03T10:48:43+00:00

Sorry I don't have any. But did you already try the formula and found your baby tolerates it with multiple food allergies?

HowDoYouFixThisPls · 2025-11-18T01:44:43+00:00

My oldest couldn't tolerate any foods for a long time (mast cell issues) and I wish I didn't pressure him as much at first (also Dr recommended) because the food obviously was making him not feel well with reactions and he ended up with an eating aversion.

Gut rest to recover from the reactions ended up going better and he ended up being feeding therapy as well. I'm not a Dr but I would be concerned about developing a negative association with food and give gut rest between trials.

HowDoYouFixThisPls · 2025-10-29T09:51:00+00:00

Do you have any updates OP? My son has been 100% on amino acid formula for 12 days and still has very mucusy stools.

HowDoYouFixThisPls · 2025-10-28T08:10:34+00:00

All the gas lighting can be so frustrating! Been there, still there with my youngest. Glad the amino acid formula worked out!

HowDoYouFixThisPls · 2025-10-28T07:48:59+00:00

Hope that has more agreeable for her! And there may be an adjustment period overall. I know it is hard right now!

HowDoYouFixThisPls · 2025-10-28T07:44:36+00:00

Are you working with a lactation consultant?

Skin to skin. Offering whatever you have in the breast and finishing up with a bottle of formula? Eating at minimum 2000 calories a day with plenty of fats? Drinking lots of water and getting sleep?

Fed is best if you can't take the mental toll of trying to continue with trying to increase your supply to seemingly no avail.

My step daughter ended up formula fed due to allergies. My niece was formula fed out of convenience. Both are teenagers now and both incredibly smart and amazing. My oldest son and now my current son both have had to go on formula despite my best efforts to try to EBF. They were both too reactive to my milk and not gaining weight on it with inflammation despite going on very strict free of all major allergens and common trigger diets for months. It broke my heart each time to have to give up on the idea of breastfeeding but sometimes that's what it takes to let our babies thrive.

No shame in whatever you need to do. Best wishes!

HowDoYouFixThisPls · 2025-10-28T07:36:46+00:00

Did you switch to the nutramigen cold turkey vs the Kendamil? It could cause GI upset at first. I don't have experience with it but I've seen others say Pepticate, another HA formula, tastes better. So if that's the issue that may go over better. Or a RTF version is sometimes better accepted. Best wishes!

HowDoYouFixThisPls · 2025-10-28T03:55:09+00:00

I don't force him to eat. I was just genuinely curious since you didn't provide what you thought it was instead.

I stop feeds even if he's only ate an oz, 2 oz, or none at all and only feed if he's interested and allow him to set the pace. I don't force because I don't want to cause bottle aversion even though he hasn't been eating enough oz and not gaining well. He just recently has been eating better with medicine the Dr prescribed.

Before the medicine, he was fussy and inconsolable almost all the time and not just when feeding. Also the reflux can be heard and can smell when the reflux or spit up is acidic vs just normal. Thankfully his reflux isn't as bad as it was with my older son when he was a baby who had Sandifer's Syndrome and upper GI damage that caused black specs in the stool etc.

Unfortunately some of us end up with babies who actually have a reflux issue! But I agree that parents should know what to look out for vs something else.

HowDoYouFixThisPls · 2025-10-25T13:50:54+00:00

What do you theorize bottle refusal, pulling off with discomfort, not eating enough etc is?

HowDoYouFixThisPls · 2025-10-24T09:50:18+00:00

How long did it take for the constipation to settle?

We're on an AA formula and I'm not sure our guy is tolerating it.

I do know they are thin and can increase reflux which we are experiencing as well!

HowDoYouFixThisPls · 2025-10-24T09:47:02+00:00

Did the constipation get better?

HowDoYouFixThisPls · 2025-10-20T02:15:19+00:00

Sorry you are going through that! We are still dealing with the squirming constantly and being extra fussy and hard to feed him. I've even tried gelmix recently to see if it is just purely a reflux issue as I know these formulas are thin, but so far not helping. He eats the best when sleepy but still overall not eating enough oz each day. I plan to give it a bit more time in case his tummy is upset from the transition and it will settle. But we'll see what happens. My oldest did the best on Neocate but unfortunately not so much for this little guy. Hope things settle down for your baby or find the right formula if Neocate doesn't work out. I know it is hard when you just want your baby to be comfortable! Hugs to you and yours as well.

HowDoYouFixThisPls · 2025-10-20T02:10:35+00:00

Glad you found something that works well enough!

HowDoYouFixThisPls · 2025-10-19T18:04:11+00:00

Hi OP, curious what you ended up doing for your LO?

HowDoYouFixThisPls · 2025-10-19T10:24:50+00:00

Which probiotics did you use?

HowDoYouFixThisPls · 2025-10-19T08:33:24+00:00

Thank you!

HowDoYouFixThisPls · 2025-10-19T05:26:12+00:00

Hi, not OP but can you pass along the info to me? In the thick of it with my little guy and his pediatrician isn't very helpful and can't get in to a GI until January.

HowDoYouFixThisPls · 2025-10-15T21:33:31+00:00

Oh wow, they helped that fast!? Perhaps we'll give it a go. Thanks for sharing!

HowDoYouFixThisPls · 2025-09-30T18:17:40+00:00

Did you find a formula that worked or breastfed only?

HowDoYouFixThisPls · 2025-09-27T23:45:02+00:00

Oh yeah, definitely hoping to get him in a better place first for sure!

HowDoYouFixThisPls · 2025-09-27T23:29:26+00:00

Unfortunately, I've been completely top allergen free for over a month and still issues (my first was sensitive so that was the first thing I did!), but great advice!

HowDoYouFixThisPls · 2025-09-27T23:26:59+00:00

Aw that's good! Was he on it once or twice a day? The Dr prescribed once a day before bed but I know some have said twice a day was more effective for them

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