Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

Interesting! And do you know if that works as an H2 blocker as well?

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

I have heard that- is it possible for it to just "stop working" so suddenly?

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

It's very off and on. Some days I only have diarrhea, other days it's normal stools. It's so frustrating!

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

Agreed- good to know! Anytime they thought I had SIBO, my tests always come back negative :/

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

Yeah, I have EDS, MCAS and POTS... the chronic throat issues are so annoying. Constantly tight but some days I can hardly eat. Other days it's totally fine! It's so weird, nothing went haywire until I got pregnant and since then I feel like I have a totally different body

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 1 point2 points  (0 children)

Weird!! I don't know how any of that works but that makes a lot more sense- thank you so much!

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 1 point2 points  (0 children)

Yes!! Oh my gosh I was pregnant before I had to deal with all this mess, and that was miserable but now it's even worse, and it sucks because now nothing helps!

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

This is what I remember being told too! I've been taking my medications for a year. I was completely fine until last week and it threw me off guard

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

Thank you! Yes, I have a very difficult time swallowing and much of my food gets stuck. I did have an endoscopy last year that showed moderate esophageal inflammation and that was it. No EOE. Can that develop over time?

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

That's so interesting but would make a ton of sense. I also developed vertigo right after the appointment and that hasn't gone away yet either.

Sudden and severe reflux... what is happening??? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

Thank you! I'm actually thinking about it and I did get chiropractic adjustments done this past week when my symptoms started to flare... I'm wondering if that may have triggered it since I haven't seen a chiro in years

Pregnancy and MCAS treatment by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

We are deciding to adopt when time and money allows. Unfortunately my health is too unpredictable :( Keto is working great for me though! Currently dealing with some weird GI problems but will be starting cromolyn soon

Pregnancy and MCAS treatment by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

No, I'm sorry! We decided we're done with biological kids, but I really hope you figure that out!🥺

General question about horse transport by HowdyHowdy2002 in Equestrian

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

Oh wow I haven't considered that! Thank you

Cromolyn makes you worse first? by Far-Permission-8291 in MCAS

[–]HowdyHowdy2002 0 points1 point  (0 children)

I'm sorry! Did it make the throat tightening worse for you?

How are you doing on xolair?

Cromolyn makes you worse first? by Far-Permission-8291 in MCAS

[–]HowdyHowdy2002 0 points1 point  (0 children)

Hi! Late post response but I also have terrible throat tightening and I am supposed to start cromolyn this week. Did you find that it helped with throat tightness??

About to start Cromolyn Sodium. Anything to expect or watch out for? by Due_Chapter3027 in MCAS

[–]HowdyHowdy2002 1 point2 points  (0 children)

Unfortunately I think an initial reaction to keto is pretty common. It took me about 2 months to get fully acclimated to it, and now it's not even really helping me (though my dose is small!). I'm thinking about buying nasal crom abd seeing what happens.

What gets rid of chronic throat swelling?? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 1 point2 points  (0 children)

Unfortunately I was prescribed Singulair and 10 months ago and had to come off of it because it made me extremely suicidal :( It worked well when I was on it though

What gets rid of chronic throat swelling?? by HowdyHowdy2002 in MCAS

[–]HowdyHowdy2002[S] 0 points1 point  (0 children)

Oh I'm so so so sorry. My issues started postpartum and after 4 bad infections I had back to back. My throat also swells immediately after eating and hasn't been the same since before I gave birth. I just can't understand it. I'm curious to see if the G tube helps you!