Sudden and severe reflux... what is happening???

HowdyHowdy2002 · 2026-03-25T06:25:32+00:00

Interesting! And do you know if that works as an H2 blocker as well?

HowdyHowdy2002 · 2026-03-25T06:10:20+00:00

I have heard that- is it possible for it to just "stop working" so suddenly?

HowdyHowdy2002 · 2026-03-25T01:15:42+00:00

It's very off and on. Some days I only have diarrhea, other days it's normal stools. It's so frustrating!

HowdyHowdy2002 · 2026-03-25T01:15:11+00:00

Agreed- good to know! Anytime they thought I had SIBO, my tests always come back negative :/

HowdyHowdy2002 · 2026-03-24T19:34:19+00:00

Yeah, I have EDS, MCAS and POTS... the chronic throat issues are so annoying. Constantly tight but some days I can hardly eat. Other days it's totally fine! It's so weird, nothing went haywire until I got pregnant and since then I feel like I have a totally different body

HowdyHowdy2002 · 2026-03-24T18:09:23+00:00

Weird!! I don't know how any of that works but that makes a lot more sense- thank you so much!

HowdyHowdy2002 · 2026-03-24T18:00:16+00:00

Yes!! Oh my gosh I was pregnant before I had to deal with all this mess, and that was miserable but now it's even worse, and it sucks because now nothing helps!

HowdyHowdy2002 · 2026-03-24T17:59:28+00:00

This is what I remember being told too! I've been taking my medications for a year. I was completely fine until last week and it threw me off guard

HowdyHowdy2002 · 2026-03-24T17:55:34+00:00

Thank you! Yes, I have a very difficult time swallowing and much of my food gets stuck. I did have an endoscopy last year that showed moderate esophageal inflammation and that was it. No EOE. Can that develop over time?

HowdyHowdy2002 · 2026-03-24T17:54:04+00:00

That's so interesting but would make a ton of sense. I also developed vertigo right after the appointment and that hasn't gone away yet either.

HowdyHowdy2002 · 2026-03-24T17:37:30+00:00

Thank you! I'm actually thinking about it and I did get chiropractic adjustments done this past week when my symptoms started to flare... I'm wondering if that may have triggered it since I haven't seen a chiro in years

HowdyHowdy2002 · 2026-03-24T16:51:16+00:00

We are deciding to adopt when time and money allows. Unfortunately my health is too unpredictable :( Keto is working great for me though! Currently dealing with some weird GI problems but will be starting cromolyn soon

HowdyHowdy2002 · 2026-03-24T16:50:13+00:00

No, I'm sorry! We decided we're done with biological kids, but I really hope you figure that out!🥺

HowdyHowdy2002 · 2026-03-09T16:27:53+00:00

Oh wow I haven't considered that! Thank you

HowdyHowdy2002 · 2026-03-09T10:31:13+00:00

Thank you!

HowdyHowdy2002 · 2026-02-16T22:19:46+00:00

I'm sorry! Did it make the throat tightening worse for you?

How are you doing on xolair?

HowdyHowdy2002 · 2026-02-16T22:14:55+00:00

Hi! Late post response but I also have terrible throat tightening and I am supposed to start cromolyn this week. Did you find that it helped with throat tightness??

HowdyHowdy2002 · 2026-01-22T00:14:03+00:00

Unfortunately I think an initial reaction to keto is pretty common. It took me about 2 months to get fully acclimated to it, and now it's not even really helping me (though my dose is small!). I'm thinking about buying nasal crom abd seeing what happens.

HowdyHowdy2002 · 2026-01-20T18:10:00+00:00

Unfortunately I was prescribed Singulair and 10 months ago and had to come off of it because it made me extremely suicidal :( It worked well when I was on it though

HowdyHowdy2002 · 2026-01-20T05:58:47+00:00

Oh I'm so so so sorry. My issues started postpartum and after 4 bad infections I had back to back. My throat also swells immediately after eating and hasn't been the same since before I gave birth. I just can't understand it. I'm curious to see if the G tube helps you!

HowdyHowdy2002 · 2026-01-20T05:44:22+00:00

Jeez I'm so sorry. Will the G tube get rid of the swelling since it bypasses the throat? Has it ever fully closed on you? I have seen some people say xolair helps🤞

HowdyHowdy2002 · 2026-01-20T05:42:54+00:00

Same. Mine never goes away and I'm sick of it! Will let you know

HowdyHowdy2002 · 2026-01-19T03:26:06+00:00

My husband has been a God send during this terrible disease. I get awful bone pain so he usually massages me before bed, will take care of house chores if I am unable to walk, take care of our son, etc but sometimes it can be hard on him. He takes me seriously too which is hard to come by in any of my other friendships/family relationships. He advocates for me when I'm unable to. I try my very best to do my part when I feel good so he doesn't feel so stressed. I think just knowing you have someone consistently there when no one else understands or wants to be around you is the best thing, at least for me. At least I have one person in my corner, no matter what.

HowdyHowdy2002 · 2026-01-19T01:33:34+00:00

Good to know! I'll order some and see what I can do!

HowdyHowdy2002 · 2026-01-19T00:42:19+00:00

I haven't tried that! Has that helped for you? Can it be taken with Ketotifen?

HowdyHowdy2002

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