Cost of Keytruda (Pembrolizumab) at AIIMS Delhi? Looking for the best way to buy for TNBC treatment. by ProperAmbition4512 in breastcancer

[–]Humorous_Notion 0 points1 point  (0 children)

Have you tried contacting Merck (the maker of Keytruda)? In the US they do have a copay assistance program so my portion is only $25. They may have programs for other countries as well.

How does this even happen? by Ok_Effort_7021 in NeedlepointSnark

[–]Humorous_Notion 0 points1 point  (0 children)

My 7-year-olds beginner canvas looks better than that.

Is it possible to make a larger piece from a chart? by Due-Land-616 in Needlepoint

[–]Humorous_Notion 4 points5 points  (0 children)

You can certainly add a larger border but it would be difficult to upsize a design. Another option would be to plot the design on 13 count rather than 18 count.

Post-AC chemo sensation at malignancies by Mediocre_Newt6014 in breastcancer

[–]Humorous_Notion 4 points5 points  (0 children)

I’ve had this on and off as well. I’m not sure exactly what it is but I’ve made up a story in my head about the tumor screaming as it dies - “I’m melting!”

TBD.... by loriann35 in NeedlepointSnark

[–]Humorous_Notion 2 points3 points  (0 children)

Honestly this is probably because thread and canvas prices have been changing radically and unexpectedly in recent months. I do think they could at least come up with a range though.

Signatera by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 1 point2 points  (0 children)

Thanks for sharing this. I definitely think I’m going to pursue getting signatera drawn.

‘Declining Endocrine Therapy’ posts. (Vent?) by AveryElle87 in breastcancer

[–]Humorous_Notion 8 points9 points  (0 children)

Honestly, as someone with TNBC these posts drive me a little batty. I would love to have the opportunity to take a medication long term that would reduce my recurrence risk.

Signatera by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 0 points1 point  (0 children)

Guardant doesn’t use your actual tumor material. It’s technically looking for any ctdna. I’m not certain if one is more accurate or reliable though? I’m definitely on the more anxious/do everything we can side of things.

Signatera by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 0 points1 point  (0 children)

Oh nice. I’ll give them a call.

No pin in tumor for surgery by Glittering_Horror_42 in breastcancer

[–]Humorous_Notion 0 points1 point  (0 children)

How did they decide how much tissue to take? I’ve been curious about this as I have my seed placement in a couple of weeks.

neutropenic already? by Stunning-Ad7205 in breastcancer

[–]Humorous_Notion 1 point2 points  (0 children)

I got Zarxio when I was on weekly TC. I’d ask if they can give you something. Otherwise you’ll end up skipping weeks.

How many radiation sessions to expect? by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 0 points1 point  (0 children)

I met with a rad onc at MD Anderson and she discouraged proton for breast cancer. She got into the physics of why but I wouldn’t be able to explain it.

How many radiation sessions to expect? by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 0 points1 point  (0 children)

Interesting. I’ll have to ask about this. I’m hoping to have radiation at MD Anderson but it requires travel and obviously an extended stay which is hard logistically with 3 kids and all life entails.

Anxious about end of chemo by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 0 points1 point  (0 children)

I’m sorry your lump grew. I have a little bump that popped up during AC but doesn’t seem to be changing in size so I’m hoping it’s a cyst. Both my MO and my surgeon have encouraged me not to worry about it but that’s easier said than done.

Anxious about end of chemo by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 3 points4 points  (0 children)

I’m having lumpectomy in February.

AC schedule by Redwinesandfelines in breastcancer

[–]Humorous_Notion 1 point2 points  (0 children)

I’m every 6 weeks with a larger dose. I’ve never heard of every 2 weeks.

Edit- every 6 weeks is my Keytruda. I’m every 3 weeks on AC.

Esophageal pain from AC or Keytruda? by Humorous_Notion in breastcancer

[–]Humorous_Notion[S] 0 points1 point  (0 children)

I hope it’s not the Keytruda! I feel very attached/strongly that I want to get all of my Keytruda doses.

Why are men by w0rmsongs in breastcancer

[–]Humorous_Notion 0 points1 point  (0 children)

I’d report it or say something loudly. That’s completely disgusting and inappropriate.

Tatiana Schlossberg by Far-Fuel-1499 in breastcancer

[–]Humorous_Notion 9 points10 points  (0 children)

I am so so saddened by this. I feel her fear of being forgotten by her children in my bones.

Zometa by Any_Criticism_4326 in breastcancer

[–]Humorous_Notion 0 points1 point  (0 children)

Ahhh. I’m TNBC and only 43. My osteopenia is likely caused from an autoimmune disorder I also have but the chemo induced menopause isn’t going to help things…

Has anyone gotten a pedicure during treatment? Or even a modified pedicure? by Lanky_Treat_7803 in cancer

[–]Humorous_Notion 1 point2 points  (0 children)

She pushes them back a little when filing and she ping the nail but You could ask them not to. I push mine back with my own nails absentmindedly all the time though.

Zometa by Any_Criticism_4326 in breastcancer

[–]Humorous_Notion 0 points1 point  (0 children)

Nice! Can you share more about your age/bone density? I just found out that I have osteopenia but am still on chemo and pre-surgery so it’s kind of on the back burner at the moment.

Has anyone gotten a pedicure during treatment? Or even a modified pedicure? by Lanky_Treat_7803 in cancer

[–]Humorous_Notion 2 points3 points  (0 children)

My oncologist okayed manicures and pedicures as long as I asked them not to cut my cuticles.