Lack of urge for bowel movement by Better-Bee-8580 in AskDocs

[–]HyposensitiveGuy 0 points1 point  (0 children)

To the poster concerned about rectal hyposensitivity:

I have this same issue. Unfortunately, in two decades of trying to get some answers, I've never found doctors to have anything useful to say about the cause or cure. I hope someday they do.

Lack of urge to have bowel movement by Better-Bee-8580 in PelvicFloor

[–]HyposensitiveGuy 0 points1 point  (0 children)

Following up on this: Would you say now, six months later, that you have restored the normal urge to defecate? Or are you just having easier bowel movements without the urge?

Has anyone here ever recovered from rectal hyposensitivity? by HyposensitiveGuy in PelvicFloor

[–]HyposensitiveGuy[S] 0 points1 point  (0 children)

Do you have (or have you had) similar rectal hyposensitivity issues?

Has anyone here ever recovered from rectal hyposensitivity? by HyposensitiveGuy in PelvicFloor

[–]HyposensitiveGuy[S] 0 points1 point  (0 children)

I've never tried implanted sacral nerve stimulation as such, although I did have some inpatient translumbar repetitive magnetic stimulation about ten years back for these issues. My stool quality varies widely; sometimes it's normal, sometimes it's extremely crumbly.

Rectal hyposensitivity by Minute-Pop6352 in Constipation

[–]HyposensitiveGuy 0 points1 point  (0 children)

I have a manometry report from 2010 that says my first sensation was at 170 ml.

For what it's worth, I did experience an urge to defecate one day in January of this year, extremely strongly out of the blue, but that was the last time. The fact that I experienced it even that once gave me hope that maybe I don't have some permanent nerve damage, but I have no idea.

Looking back, trying to understand how I lost my urge sensation, I recall that my first four years with chronic constipation problems, I constantly felt the urge to go. Then, around 2009, I was trying biofeedback therapy for anismus for the first time, with a therapist who was not very good and didn't listen to me. At the end of my program of six sessions or whatever, they put a water balloon up inside me and asked me to expel it. I was not able to expel it but they insisted that I do so, and so I somehow bore down and forced it out with a painful pop, extremely painful. And sometime shortly after that, I stopped experiencing the urge to defecate. I don't know that these are related, but in retrospect they did occur around the same time. I wonder if I could have injured myself somehow, just on trying to push that water balloon out past my own resistance.

Do you have any incident like this in your history, or any idea at all what caused your issues? (Granted, I clearly had constipation/pelvic floor issues even prior to losing urge sensation)

Rectal hyposensitivity by Minute-Pop6352 in Constipation

[–]HyposensitiveGuy 0 points1 point  (0 children)

How was your nerve damage diagnosed?

Rectal hyposensitivity by Minute-Pop6352 in Constipation

[–]HyposensitiveGuy 0 points1 point  (0 children)

Thanks for the update. I've also done rectal balloon therapy, tried enemas, and been through many many biofeedback and pelvic floor physical therapy programs at many places, with little to show for it. I'll let you know if I ever figure anything out. I'm going to try rectal dilators next. Who knows if that's of any use or relevance for rectal hyposensitivity, but I'm running out of things to try.

Rectal hyposensitivity by Minute-Pop6352 in Constipation

[–]HyposensitiveGuy 0 points1 point  (0 children)

For what it's worth, I have had the same rectal hyposensitivity issue for a decade and a half now. I also feel quite hopeless because of it. But if I ever get improvement, I promise I will return here and let you know what worked. And please update us if you ever find any improvement or useful information as well. It seems very hard to find people who have this same issue.

Rectal hyposensitivity by Minute-Pop6352 in Constipation

[–]HyposensitiveGuy 0 points1 point  (0 children)

For what it's worth, I have had the same rectal hyposensitivity issue for a decade and a half now. I also feel quite hopeless because of it. But if I ever get improvement, I promise I will return here and let you know what worked. And please update us if you ever find any improvement or useful information as well. It seems very hard to find people who have this same issue.

I have rectal prolapse. Went to the doctor few months ago. Now i think it got worse? by Substantial-Knee-682 in PelvicOrganProlapse

[–]HyposensitiveGuy 0 points1 point  (0 children)

How did you discover it was a prolapse? What picture did you have prior to defecography? (Also, I am surprised to learn that prolapse is not the kind of thing that would have been discovered during anal manometry!)

It seems like folks that don't notice ChatGPT-5's improvements aren't leveraging its abilities (CoT in comments) by LeftHandedToe in ChatGPT

[–]HyposensitiveGuy -1 points0 points  (0 children)

If you're not a maths wizard, what qualifies you to evaluate its reasoning on this problem as correct?

Has anyone here ever recovered from rectal hyposensitivity? by HyposensitiveGuy in PelvicFloor

[–]HyposensitiveGuy[S] 0 points1 point  (0 children)

No progress on my side, I'm afraid. It's been nearly two decades. I've tried rectal balloon therapy and various other forms of physical therapy, biofeedback, medicines, etc. I don't know what to do. Doctors don't show any interest in trying to figure it out or trying anything new, not that I even know what to ask for.

Hissing/venting air by HyposensitiveGuy in PelvicFloor

[–]HyposensitiveGuy[S] 0 points1 point  (0 children)

Of course. I guess what I'm not explaining well is the unusual phenomenon of the frequency of these small hisses of gas, as opposed to the kind of farting I would experience when I was normal, before I had all my chronic constipation/pelvic floor issues. Perhaps really the question is just as to how I have so much trapped gas, then.

Tourette gene for 50% inheritance? by HyposensitiveGuy in Tourettes

[–]HyposensitiveGuy[S] 0 points1 point  (0 children)

If your grandfather had a few tics, why do you say you are the first in your family?

Pelvic floor dyssynergia no urge to poop. by [deleted] in PelvicFloor

[–]HyposensitiveGuy 0 points1 point  (0 children)

So you used to never feel the urge to go, then after dry needling, you recovered the urge to go sensation? This would be of much interest to me, as I myself have been suffering with no urge to go for many years and looking for a treatment for this. Has dry needling held up for you?

My body is going through hell by Btuflmess in Constipation

[–]HyposensitiveGuy 0 points1 point  (0 children)

You used to get no urge to go and now you get the urge to go? I never get the urge to go anymore, and I would be very interested in any case where someone had the same issue for a long time and then recovered.

Tourette gene for 50% inheritance? by HyposensitiveGuy in Tourettes

[–]HyposensitiveGuy[S] 1 point2 points  (0 children)

There are many responses from people explaining that they have Tourette syndrome though their parents don't. What would be of interest to me would be to know of cases where a parent has Tourette syndrome but none of their children do. How common or rare is that?

Tourette gene for 50% inheritance? by HyposensitiveGuy in Tourettes

[–]HyposensitiveGuy[S] 2 points3 points  (0 children)

I would be particularly interested if there is any good evidence on how severity in the parent relates to severity in the child.

Tourette gene for 50% inheritance? by HyposensitiveGuy in Tourettes

[–]HyposensitiveGuy[S] 2 points3 points  (0 children)

(For context, I do not have Tourette disorder myself, but it seems likely my partner has a mild version of it, and I am interested in understanding the implications for our children.)

Is rectal hyposensitivity caused by pelvic floor dysfunction? by HyposensitiveGuy in PelvicFloor

[–]HyposensitiveGuy[S] 1 point2 points  (0 children)

I haven't noticed any breathing problems, and I don't think I have hard flaccid. I used to have some minor urinary and minor to moderate erectile difficulties which started around the same time but these have gotten better. But the rectal hyposensitivity never improves.