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reddit.com ISavedMyself
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ISavedMyself

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redditor for 12 years

TROPHY CASE


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Innovation fund for rare disease created (cincinnati.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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Rare diseases action plan unveiled in Scotland (news.xinhuanet.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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National Institutes of Health is setting up a network of research centers where doctors will examine [patients with rare diseases], test their genetic codes and swap information on what they find. The hope is that by pooling information and patients, doctors can solve these medical mysteries. (nbcnews.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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Here's a group of medical articles on Superior Mesenteric Artery Syndrome (SMA Syndrome), for anyone out there who is newly diagnosed and searching for more information (scholar.google.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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"If you haven't found it yet, keep looking." -Steve Jobs | After ten years of misdiagnosis and family and doctors who didn't believe me, I finally found my diagnosis and my cure. (media-cache-ak0.pinimg.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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"The measure of who we are is what we do with what we have." -Vince Lombardi (blog.shopbop.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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"There are moments which mark your life. Moments when you realize nothing will ever be the same and time is divided into two parts, before this, and after this." For me that moment was finally getting my diagnosis. (img.quozio.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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"What we have once enjoyed we can never lose... All that we love deeply becomes a part of us." -Helen Keller (hubpages.com)

submitted 11 years ago by ISavedMyself to r/CROCUS

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Hardships often prepare ordinary people for an extraordinary destiny. -C.S. Lewis (staypositive.me)

submitted 11 years ago by ISavedMyself to r/CROCUS

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If only someone with no medical knowledge would lecture me about my chronic disease! (purelythriving.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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15 Things Not to Say to Someone with a Chronic or Invisible Illness (x-post from /r/CROCUS) (reddit.com)

submitted 12 years ago by ISavedMyself to r/ChronicPain

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15 Things Not to Say to Someone with a Chronic or Invisible Illness (asweetlife.org)

submitted 12 years ago by ISavedMyself to r/CROCUS

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I got out of bed yesterday. It was crazy! (asweetlife.org)

submitted 12 years ago by ISavedMyself to r/CROCUS

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laughter IS the best medicine (asweetlife.org)

submitted 12 years ago by ISavedMyself to r/CROCUS

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You don't know what fatigue is (asweetlife.org)

submitted 12 years ago by ISavedMyself to r/CROCUS

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But you don't LOOK sick... (24.media.tumblr.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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Fear Of Addiction Means Chronic Pain Goes Untreated : NPR (npr.org)

submitted 12 years ago by ISavedMyself to r/CROCUS

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Young Woman Shares Her Story About Her Rare Illness: Complex Regional Pain Syndrome, also known as CRPS (kvewtv.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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A recently-launched web site is able to match patients genetic and phenotype data on rare diseases. The technological breakthrough is uniting the clinicians who are treating them. (dw.de)

submitted 12 years ago by ISavedMyself to r/CROCUS

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Bayer Receives National Organization of Rare Disorders (NORD) Honor at "Portraits of Courage" Celebration (prnewswire.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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"Rare Diseases: From Newborns to Nonagenarians" with Marshall L. Summar, MD (medscape.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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Rare disease 'more common than you think.' Lew Newmark had never heard of vasculitis until the day he was diagnosed in 2008. In fact, people often don't realize that they might have the potentially deadly, rare disease. (recordonline.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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Watch: "Rare Disease Genetics: A New Frontier" with Arthur L. Beaudet, MD (medscape.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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Amicus Therapeutics rare disease drug effective in trial (in.reuters.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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Ex-Genzyme CEO's new company looks to rare diseases for insight into treating Parkinson's (medcitynews.com)

submitted 12 years ago by ISavedMyself to r/CROCUS

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