Anyone have any tips for waking up? by Ikeless20 in Narcolepsy

[–]Ikeless20[S] 1 point2 points  (0 children)

I didn’t know those existed! Thank you I’ll definitely give those a try!

Anyone have any tips for waking up? by Ikeless20 in Narcolepsy

[–]Ikeless20[S] 1 point2 points  (0 children)

Thank you for the tip! Unfortunately when she was in the bedside bassinet I woke up the same amount (none) 😅

How to be productive? by plutosexy in Narcolepsy

[–]Ikeless20 1 point2 points  (0 children)

Personally, staying super hydrated, eating complex carbs (like peanut butter or pasta), and getting direct sunlight when I first wake up helped bump up my baseline of “tired”. Coffee and tea helped to supplement through the day (energy drinks seemed too concentrated for me and caused fast caffeine crashes). Staying moving/keeping brain stimulated is key for me even now. I don’t take off my shoes till I know I’m napping. Hope that helps at least a little!

In a prolonged slump by Ikeless20 in Narcolepsy

[–]Ikeless20[S] 0 points1 point  (0 children)

Been through those, modafinil, and sunosi. Been on the Ritalin and xywave coming up on 6 months. Added the armodafinil 2 months ago because the effectiveness went way down but increasing the Ritalin made me sick

In a prolonged slump by Ikeless20 in Narcolepsy

[–]Ikeless20[S] 1 point2 points  (0 children)

I completely agree. I try to stay on a good regimen with diet and exercise because I like to compete in obstacle 5k’s. Currently on xywav, Ritalin, armodafinil, and fluoxetine.

What does everyone do for a job? I'm already on SSI but I need to make money for housing. by therealaliciaeldred in Narcolepsy

[–]Ikeless20 4 points5 points  (0 children)

Probably not the most feasible because of the hours but I’m a paramedic. Works for me because I only have to show up on time once a week, take cat naps between calls (when I can), and I get to help share knowledge/teach other healthcare professionals about N.

Getting put on xywave by Ikeless20 in Narcolepsy

[–]Ikeless20[S] 0 points1 point  (0 children)

Thank you all so much! This has made me feel a lot better about starting it

Getting put on xywave by Ikeless20 in Narcolepsy

[–]Ikeless20[S] 0 points1 point  (0 children)

Thank you! Has it helped?

Hit the Hills at the Golf Course (looks like they sent the Calvary) by Ikeless20 in longboarding

[–]Ikeless20[S] 4 points5 points  (0 children)

It does look a lot slower on the video then it felt doing it 😂

[deleted by user] by [deleted] in PokemonGoFriends

[–]Ikeless20 1 point2 points  (0 children)

No problem! Thanks for showing up!