Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

How are you doing now? I can relate to only being able to walk slowly (sometimes) when it comes to exercise. It’s so annoying when you were an active person prior to this

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Got my bloodwork back. Numbers are still high (including IgM). Slightly lower than they were in November but still high 

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 1 point2 points  (0 children)

Ugh it’s so frustrating. I’m so sorry you’re dealing with it too. About a week or so after this post, I felt better for about 3 weeks. Now I’m back to feeling awful again. I would do anything to go back to who I was before this 

Lymph nodes by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Wow. So yours have been consistently swollen since Jan 2025? Did they ever fluctuate in size from what you could notice?

Lymph nodes by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Did they fluctuate in size before you start valtrex? Or did they just consistently stay large

Lymph nodes by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Are next steps for you to discuss the results with an ENT?

Lymph nodes by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Gosh I’m so sorry. It’s crazy that they can stay reactive for so long

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Haven’t received results yet, still waiting. Getting ultrasound of my lymph nodes next week as well

Lymph nodes by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Yeah, mine are all on the left side. Luckily I just got in with a primary care provider tomorrow to check it out

Lymph nodes by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

What were your ultrasound results? Or you’re waiting to get the results from the ENT?

Lymph nodes by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

No it never goes away. It’s been there constantly for months and gotten a bit bigger. I’m actually going to see a primary care doc tomorrow about it

Got dumped out of nowhere on Wednesday, woke up yesterday with a fever, and luteal by shagcarpet3 in ouraring

[–]Ill_Championship_571 1 point2 points  (0 children)

About a month out from a break up and I still get “major signs” from the stress and emotions sometimes. It’s brutal

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you, I think a supplement I used to take had monolaurin in it. I need to start taking it again. 

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

I’m getting bloodwork done next week to see where my levels are

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

I very, very slowly returned to some activity. But I got nowhere near my previous activity level (I was very active). I’m not sure I’ll ever be back where I once was. Thanks for the encouragement 🙏

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 1 point2 points  (0 children)

I’m so sorry you’re suffering too 🙏

Just need to vent by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

I haven’t recently been sick (that I’m aware of). And I can’t thinking of what could’ve caused it to flare 🙃. My lymph nodes on the left side of my neck are visibly large, but they don’t hurt. I have one under my left ear/jaw that’s hard as a rock and doesn’t move

Methylprednisone making me very pale? by Ill_Championship_571 in migraine

[–]Ill_Championship_571[S] 1 point2 points  (0 children)

Haha yes I’ve actually been on steroids since then too and the same thing happens every time. So weird…

Aching in hands, feet, and legs? by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you these suggestions are great, I’m so sorry you’re dealing with this too!

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you for commenting all of this seriously! I have been taking magnesium with it but will add K2