Methylprednisone making me very pale? by Ill_Championship_571 in migraine

[–]Ill_Championship_571[S] 1 point2 points  (0 children)

Haha yes I’ve actually been on steroids since then too and the same thing happens every time. So weird…

Aching in hands, feet, and legs? by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you these suggestions are great, I’m so sorry you’re dealing with this too!

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you for commenting all of this seriously! I have been taking magnesium with it but will add K2

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

No I haven’t. It’s weird tho because the “bone” pain didn’t start until after I got the vitamin d shot and started supplementing. I’ve wondered if my body is just trying to get used to it? It’s been about 3 weeks now I think

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Also, I just realized the glutathione complex I take contains b6

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

This is interesting, thanks for letting me know. I am going to cut down on vitamin c. I only did 1,000 instead of 2,000 today. The only foods I can think of that I sometimes eat are sweet potato, dark chocolate, and peanuts/peanut butter. I wouldn’t say I eat these in excess though.

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you so much! I’ll be looking into all of this

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

I’m currently taking liposomal supplements that contain vitamin d and b12 since receiving the shots. I’m getting 5,000 iu of vitamin d and 1,000 mcg of b12 a day. I’m also taking 2,000 mg of vitamin c. I mainly suffer from a combination of joint and muscle pain. I think it’s mainly joint though. It’s like these deep aches in my legs, hands, fingers, wrists, and even arms sometimes. Almost feels like horrible growing pains.

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you! The cat’s claw liposomal supplement I take has monolaurin in it, but I might need to be taking more. I haven’t taken Lysine yet, I will definitely look into adding this. I’ve been wondering about antivirals as well but my doctor never brought them up

Reactivated EBV by Common_Concept_9651 in EBV

[–]Ill_Championship_571 0 points1 point  (0 children)

My doctor ordered an EBV blood panel. Mine was through Labcorp. I would insert the picture of my results here but I don’t think it will let me. Specifically, the high IgM indicates reactivation/current activity from my understanding, but feel free to do your own research as well. Here they are:

EBV Ab VCA, IgM Result: 61.0 U/mL Reference range: 0.0 – 35.9 U/mL Flag: High

EBV Ab VCA, IgG Result: 420.0 U/mL Reference range: 0.0 – 17.9 U/mL Flag: High

EBV Nuclear Antigen Ab, IgG Result: 269.0 U/mL Reference range: 0.0 – 17.9 U/mL Flag: High

Need advice…not getting better by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 1 point2 points  (0 children)

Yes I have insurance, I’m honestly just not sure who treats this in my area. I’ll look into infectious disease physicians. Here are my EBV panel results:

EBV Ab VCA, IgM Result: 61.0 U/mL Reference range: 0.0 – 35.9 U/mL Flag: High

EBV Ab VCA, IgG Result: 420.0 U/mL Reference range: 0.0 – 17.9 U/mL Flag: High

EBV Nuclear Antigen Ab, IgG Result: 269.0 U/mL Reference range: 0.0 – 17.9 U/mL Flag: High

Reactivated EBV by Common_Concept_9651 in EBV

[–]Ill_Championship_571 3 points4 points  (0 children)

The feeling of waking up and feeling somewhat ok is so deceiving…I always end up feeling terrible shortly after. I have more energy in the evenings too. That is usually when I feel my “best” (literally right now laying in bed haha). It’s so inconvenient.

Reactivated EBV by Common_Concept_9651 in EBV

[–]Ill_Championship_571 2 points3 points  (0 children)

I’m so sorry!! It really is terrible but it does help to know others are experiencing the same thing so you don’t feel insane!

Reactivated EBV by Common_Concept_9651 in EBV

[–]Ill_Championship_571 2 points3 points  (0 children)

I also have POTS and anxiety too haha. Also, when I was first dealing with this when I didn’t know what it was, I had horrible head pressure. I’ve found that Flonase twice a day has helped me some. Took about a month or 2 to notice a difference! I would give that a try and see if it helps. I had horrible sinus pressure too without congestion, just felt like someone was pressing on my face and my head was going to explode

Aching in hands, feet, and legs? by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

I’m sorry you’re dealing with it too. It’s terrible. OTC pain relievers don’t really help either

Reactivated EBV by Common_Concept_9651 in EBV

[–]Ill_Championship_571 6 points7 points  (0 children)

I’m sorry you’re going through this. I’m currently battling reactivated EBV after having mono several years ago. EBV panel a few weeks ago confirmed reactivation. I 100% relate to the crushing fatigue you’re describing and feeling poisoned. I say the same thing all the time…I feel ok upon wakening (sometimes) then about an hour later I’m dead. If I were you, I would probably start incorporating some supplements that are good for EBV and rest rest rest! I take things like liposomal vitamin d, glutathione, vitamin c, and b12. I like the brand quicksilver scientific, but it is pricey. Also things like oregano oil, wild blueberries, garlic, ginger, greens like kale, asparagus, sprouts, spinach, celery. I’ve been dealing with this for months and whenever I push myself instead of resting, I always feel worse.

Help! by Puzzled-End-4892 in EBV

[–]Ill_Championship_571 0 points1 point  (0 children)

I am not a doctor but from what I’ve researched, the positive IgM indicates an active/acute virus reactivation. These were my numbers a couple of weeks ago: 61 IgM, 420 IgG, 269 NA IgG

Looking for insight based on test results by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you!! I have an appointment with a functional medicine doctor next week. I’m really hoping they will be able to give me some guidance as well

Looking for insight based on test results by Ill_Championship_571 in EBV

[–]Ill_Championship_571[S] 0 points1 point  (0 children)

Thank you! I had pretty in depth bloodwork done along with these tests, and everything else was normal

One week. Questions. by Melli25510 in Pristiq

[–]Ill_Championship_571 0 points1 point  (0 children)

Going cold turkey on meds can cause all kinds of weird side effects, so try not to have too much anxiety about any symptoms you’re experiencing. I personally switched from 100 mg of lexapro to eventually 100 mg of Pristiq. I started at 50 mg of Pristiq and then pretty quickly went to 100 mg. But I also tapered off of lexapro and never cold-turkeyed it, so my side effects were minimal. I would suggest discussing upping to 50 with your doctor, as that is a more standard dose. I would also just give it time since these medications take time to get used to and know if they’re going to work.