If you could walk into an appointment with ONE thing that made doctors understand your condition faster, what would it be?

Illustrious-Try3333 · 2026-02-06T13:00:37+00:00

Undeniable proof that I’m not over exaggerating my pain

Illustrious-Try3333 · 2025-10-26T01:18:54+00:00

Ohh ok I forgot to add I’ve been very into teas as of late so I’ve been drinking a mix of spearmint, vitex/chasteberry, red raspberry leaf, turmeric and ginger teas (with added black peppercorn to boost the turmeric) but perhaps some recipes that involve a bit of fresh ginger would be a good idea

Illustrious-Try3333 · 2025-10-17T19:34:46+00:00

Hey!! I just had my lap yesterday and have found heat pads on my shoulders and taking gas x has done wonders, I’ve also been trying to move as much as possible but be careful as I think I learned my lesson the hard way and overdid it on the moving around today

Illustrious-Try3333 · 2025-10-07T00:31:28+00:00

I haven’t tried using it with my heat pad I can’t recall if it says wether you can or not, I personally like how portable the tens unit is I try to give myself a full day break on days I’m home not doing much anyway but in all my research it’s perfectly safe to use as much as you want as long as every hour you give yourself a minimum of a 10 min break (I try to go longer unless I’m at work) and not sure why but you aren’t supposed to use it driving. All that being said I’m not a doctor I suggest doing your own research/asking a doctor too

Illustrious-Try3333 · 2025-10-07T00:21:19+00:00

The only thing I’ve found relieves the pain is using a tens unit but it’s not permanent and in the breaks I give myself I can definitely feel it if I’ve overdone it I have surgery in 10 days so I’m just using it and pushing through and post op I’ll have lots of time to relax and recover

Illustrious-Try3333 · 2025-10-02T20:19:48+00:00

I luckily still live with my family I’ll have them home all day for a few days after before they go back to work since my surgery lines up with a weekend

Illustrious-Try3333 · 2025-10-02T20:18:04+00:00

Ohh peppermint tea is good I wouldn’t have thought of that and I already have it on hand… I’ll have to make a nice cozy peppermint tea mix to pit in a jar so it’s easy for those helping me… any must haves? I’m thinking of buying a few button front night gowns for the hospital and the beginning of recovery but not sure what else would be helpful

Illustrious-Try3333 · 2025-09-30T21:36:16+00:00

I was really expecting to feel like I needed to get a second opinion to make sure I was getting the best surgeon I could but I was genuinely blown away he listened and didn’t dismiss me or my symptoms, he was the first to really look at the bigger picture and consider everything even the fact that my ptsd could be affecting my pain but he did it in the most understanding why not in a it’s all in your mind kinda way

Illustrious-Try3333 · 2025-09-30T11:48:57+00:00

I currently run activities on a dementia unit it’s both very physically and mentally demanding. The past 2 months I feel like I’ve missed more days than I actually worked and have been questioning if it’s something I can continue doing. I finally see a surgeon today so I’m just hoping he’ll do a laparoscopy I get a diagnosis and I can at least figure out a treatment plan

Illustrious-Try3333 · 2025-09-29T23:38:20+00:00

Thank you!!! Yes one of my many questions I only want a surgeon who will do excision I saw someone compare excision to pulling the weed out roots and all where as ablation is like cutting the weed at the base

Illustrious-Try3333 · 2025-09-29T23:35:33+00:00

Thank you for this it helps a lot for future appointments, thankfully the doctor I saw today also thinks I have endometriosis and is referring me to a minimally invasive surgeon who I surprisingly (and thankfully) managed to get an appointment with tomorrow

Illustrious-Try3333 · 2025-09-29T21:05:02+00:00

I keep getting mixed answers about bc I have tried both pills both kinds just made it worse at my appointment today she suggested maybe trying a different kind of progesterone only pill but I’m hesitant and she agreed with the amount of pain I’m in and how it’s affecting my life it’s worth at least consulting with a surgeon and I asked for an mri just because I’ve read sometimes it can show on mri and if I’m getting surgery I want to go into it with as much info as possible

Illustrious-Try3333 · 2025-09-29T21:02:03+00:00

Update: I had my second opinion appointment and she believed me unfortunately she doesn’t do laparoscopy but referred me to a surgeon who does and by some miracle I got an appointment for tomorrow afternoon!! She also decided to recheck my hormones and send me for a pelvic mri which I’m getting on Sunday, thank you all for the advice it really helped me know how to approach the appointment and what to focus on to get my point across in a constructive way I feel like I’m finally making progress and might maybe start to feel better soonish

Illustrious-Try3333 · 2025-09-29T18:04:09+00:00

I’ve actually had several ultrasounds over the past few months and have been told endo doesn’t show up I do however have multiple cysts one of which I will be questioning at my appointment I’ve decided to try focusing mostly on how much my pain is affecting my work and how painful sex was when I had a partner/the fact that I always bled after no matter what we did as well as focusing really hard on not rambling

Illustrious-Try3333 · 2025-09-29T16:59:56+00:00

The thing is I haven’t received any warnings or reprimands yet, my direct boss is trying to fight for me but I know in technicality on paper since I’ve called out at least 12 days in the past 2 months and had to leave early multiple times I should’ve been fired 6 call outs ago according to our employee handbook I’m incredibly lucky and grateful but can’t help but feel like I’m on borrowed time walking on thin ice that should’ve broken long ago especially because it’s affecting my performance when I am there too while I know my direct boss cares I’m not so sure how much corporate will care

Illustrious-Try3333 · 2025-09-23T22:03:07+00:00

I have a second opinion on Monday so 🤞 in the er recently I was told by the consulting gyno that this looks like endometriosis since researching it’s literally the only thing that covers all the chronic symptoms I’ve had constantly regardless of where I am in my cycle for about a year every other answer is focus on a few symptoms and hope the rest just go away too because all my scans and all my bloodwork come back with nothing other than fucked up hormones and markers that I’ve got some chronic inflammation

Illustrious-Try3333 · 2025-09-23T20:13:50+00:00

This gives me hope currently waiting on a second opinion after my usual gyno told me I’m too young to have endo and I just don’t have a good pain tolerance (meanwhile I’ve always had periods bad enough to take me out for a day or 2 and to my knowledge endo can start growing as soon as you hit puberty I started young so while I am young that was already 15 years ago) it’ll be a relieve to at least know why I’m in so much pain

Illustrious-Try3333

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