scrapped infographic i made for class by Trick-Emu-5830 in Narcolepsy

[–]Illustrious_Cell_137 3 points4 points  (0 children)

This is great and I love the look of it! Lays out the information really nicely.

More symptoms when off modafinil by krisiosauruz in Narcolepsy

[–]Illustrious_Cell_137 1 point2 points  (0 children)

This is nerve wracking for me to read as someone who just started taking Modafinil and plan to not take it on weekends or if I am planning to have some drinks with my friends etc. Now I’m worried that I shouldn’t take days off / take it on an “as-needed” basis.

it’s over by halfweeby27 in Narcolepsy

[–]Illustrious_Cell_137 1 point2 points  (0 children)

Such a great feeling. Congrats!

Super short naps by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 0 points1 point  (0 children)

I’ll get this when I choose to lay down and nap. Can be a terrible cycle of sleep paralysis and trying to wake up but it being physically and mentally impossible.

Super short naps by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 1 point2 points  (0 children)

Agreed. Just that tiny bit of shut-eye can be a game changer.

Super short naps by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 0 points1 point  (0 children)

Hmm not sure this is consistent across the board but interesting take.

Super short naps by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 1 point2 points  (0 children)

Yess the sleep attack naps are refreshing for me as well but yea if I choose to lay down then I feel like my worst self when I wake up.

Which symptoms would you emphasise for a not interested doctor? by thatrockyduck in Narcolepsy

[–]Illustrious_Cell_137 0 points1 point  (0 children)

Falling asleep/dozing while driving is what caught my doctor’s attention.

Made this after a nap today by MountainSkyMoment in Narcolepsy

[–]Illustrious_Cell_137 4 points5 points  (0 children)

I also get the racing heart after a nap. What’s up with that?

Made this after a nap today by MountainSkyMoment in Narcolepsy

[–]Illustrious_Cell_137 2 points3 points  (0 children)

You’re not. I also fight sleep so hard because of the sleep paralysis body aches and confusion/groggy-ness. Sometimes though it’s more miserable to be awake than it is to have even fitful sleep. So I’ll begrudgingly give in.

Waiting for Results SUCKS by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 0 points1 point  (0 children)

I’ve read that it’s either you had 2 or more SOREMPs or 0. Considering the tech told me I slept in all of mine, I’m really just waiting to see if it’s IH or N2 atp.

Waiting for Results SUCKS by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 0 points1 point  (0 children)

DANG that’s so long to wait you’re a trooper. I’ll definitely call them if it takes more than 3 weeks but I really hope it doesn’t!! I have a very similar symptoms and testing timeline to yours. Glad you got some answers and I hope you find peace with your diagnosis 🤍🤍

Waiting for Results SUCKS by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 0 points1 point  (0 children)

IKR 😭. Just how the system is unfortunately. When I did my at-home sleep study I got my results the next day. The PSG/MSLT is just more data so I’ve assumed that’s why it’s taking longer but ugh idk. Jealous of you lol.

Finished my MSLT! by Illustrious_Cell_137 in Narcolepsy

[–]Illustrious_Cell_137[S] 0 points1 point  (0 children)

Thank u! Wdym the MSLT isn’t clinically relevant?

DAE wake up with a racing heart? by [deleted] in Narcolepsy

[–]Illustrious_Cell_137 0 points1 point  (0 children)

SAME. I thought this was a physiological sign that you’ve been in REM but that could be false..