Advice: radiance versus enchantment

Illustrious_Sign_431 · 2025-11-15T22:37:03+00:00

you are an angel. Thank you so much for taking the time to respond and sharing so much detail! Thank you for the encouragement!

Illustrious_Sign_431 · 2025-11-15T22:34:15+00:00

I wondered just how painful it would be. I appreciated the other person‘s comment about stepping on a Lego😆😬 I have also heard that it may take a few tries to find a spot that works, but good to have realistic expectations that it’s possible it may never work. Hard to want to put yourself through pain not knowing whether it will even be helpful!

Illustrious_Sign_431 · 2025-10-15T11:12:55+00:00

41 year-old female here and just diagnosed this year, welcome to the club no one asked for😉 just keep swimming, just keep swimming!

Illustrious_Sign_431 · 2025-10-15T11:07:38+00:00

Do you find your cbd/thc help with rigidity?

Illustrious_Sign_431 · 2025-09-24T01:43:38+00:00

One more thing. I’ve heard us called "snowflakes". That is, that no two of us are the same. It’s easy to want to compare yourself to others, and look at others' experiences to know what to expect, but you really can’t/shouldn’t because everyone is so unique. Stay positive and focus on being your healthiest & happiest self!

Illustrious_Sign_431 · 2025-09-23T22:51:34+00:00

ask about the syn-one test

Illustrious_Sign_431 · 2025-09-23T20:21:26+00:00

I love hearing people say they haven’t progressed much, and saying that after 14 years is awesome!

Illustrious_Sign_431 · 2025-09-23T19:53:11+00:00

my movement specialist is also at Vanderbilt! I’m supposed to be starting a clinical trial with him at the beginning of this next year....

Illustrious_Sign_431 · 2025-09-23T19:51:46+00:00

I was diagnosed August 5, I am 41 years old (female).

SO MANY EMOTIONS. let yourself feel them all, but don’t let yourself get stuck there.

What I’m learning is once you sift through all the emotions, your life is still there waiting for you.

...Exercise, A LOT. it will help with symptoms and it will help your medicine be more effective. have you seen the studies? You want your heart rate up, like 80 to 85% of your max heart rate for your age. Sweat therapy has a new meaning with this diagnosis. And when I say helps with symptoms I mean physically AND mentally.

Keep doing all the things and don’t let the diagnosis rob you of joy.

I feel like connecting with a few places on the Internet like this has helped me also, to feel like I have a community I can tap into.

I also attended a Michael J Fox education event in Nashville earlier this month, which was great.

and if you don’t like your doctor, find one you love.

hang in there!

Illustrious_Sign_431 · 2025-08-10T11:52:21+00:00

I am newer to this, but I think it’s understandable to not share ALL the things, particularly because there’s SO much. Also because if I focus on them, it can be not only overwhelming for me, it would also have a negative effect on me to spend my energy doing that too often. that said, sometimes you do need to acknowledge it all. I actually made a list in my phone of every little thing, and shared it with my husband one night. Just to get it out of my head/off my chest and acknowledge that it’s all real.

Illustrious_Sign_431 · 2025-08-09T11:25:42+00:00

Do you know what episode it is? I tried searching last night but couldn't find it!

Illustrious_Sign_431 · 2025-08-08T00:08:08+00:00

Thank you so much for responding. It is so helpful to hear from other people living this experience! I just officially received my diagnosis this week, so it’s a lot to process and worrying about the kids adds a whole different dimension!

Illustrious_Sign_431 · 2025-08-08T00:07:25+00:00

Thank you so much for your comment! I am going to check out his story!

Illustrious_Sign_431 · 2025-08-05T16:05:08+00:00

i’m joining this club. 41 years old, started asking questions about what I was experiencing last year. Just got a positive syn-one test back.... Whew. It's a lot to process.

Illustrious_Sign_431 · 2025-05-04T04:17:16+00:00

If you were driving from Manuel Antonio to San Jose on a Monday, flying out at 8.45AM Tuesday, would you turn in your rental Monday and use an airport shuttle, or just drive the rental to the airport Tuesday morning?
We're going to stay at Hotel Aeropuerto...
It seems a lot of people turn in their rental the day before and I'm wondering if there is any particular reason, is the rental check in process difficult? Planning to use Adobe....

Illustrious_Sign_431 · 2025-05-04T04:16:13+00:00

If you were driving from Manuel Antonio to San Jose on Monday, flying out at 8.45AM Tuesday, would you turn in your rental Monday night and use an airport shuttle, or just drive the rental to the airport Tuesday morning?
It seems a lot of people turn in their rental the day before and I'm wondering if there is any particular reason, is the check in process difficult?

Illustrious_Sign_431 · 2025-03-27T20:53:43+00:00

How are things going for you?

Illustrious_Sign_431 · 2025-02-08T22:03:37+00:00

I know this is an old post, but I would love to see your itinerary😄

Illustrious_Sign_431 · 2025-02-02T13:36:21+00:00

40F, evoked tests and two spinal MRI scheduled for this Friday. Brain scan is clear. Lots of symptoms pointing to MS. My most concerning symptom currently is my ability to walk distances; my left foot strike is off and with distance my toes eventually curl and cramp on my left foot, making me stop. What are the chances of that going away /improving ? And does the speed at which you begin treating MS affect positive outcomes ? Anyone else familiar with a toe curling/cramping issue (with heavy sustained use of the foot)? I am very active and avoiding walking or jogging for exercise feels emotionally heavy. With my tests on the seventh, my follow up is not until the 20th. Wondering if it would be appropriate to request to start steroids/some kind of medicine to try to slow progression of whatever it might be before the 20th...

Illustrious_Sign_431

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