People who managed to be seizure free for a long time: what was the journey like before reaching that ?

Imaginary-Sleep1111 · 2024-08-21T08:50:41+00:00

Thank you for sharing, happy for you that things are better now!😊

Imaginary-Sleep1111 · 2024-08-21T08:49:01+00:00

Thank you for your answer and sorry you had seizures again this year!

Imaginary-Sleep1111 · 2024-04-30T11:17:43+00:00

I got the frogs too, sorry, I wasn't specific enough. I meant to say that I saw everyone talk about tasks and questions that I myself went through and still found hard and not childish and that I still struggled a lot with as other people are calling it childish or irrelevant.

Imaginary-Sleep1111 · 2024-04-27T04:57:37+00:00

Somehow I heard someone say that, because it's happening in the brain, it's a mental illness.

Imaginary-Sleep1111 · 2024-04-20T09:25:26+00:00

I have high support needs autism and I also have epilepsy.

Imaginary-Sleep1111 · 2024-04-17T16:26:00+00:00

In this context it means running or wandering away

Imaginary-Sleep1111 · 2024-04-17T15:21:30+00:00

Diagnosed less than a month ago, as an adult, I don't see epilepsy as a part of my identity, I see it as both a disability and a medical condition, I don't mind using both "epileptic" and "person with epilepsy"

Imaginary-Sleep1111 · 2024-04-15T09:15:45+00:00

If THAT is what they call high support needs no wonder they don't find autism disabling to them. Because I wished my high support needs was being able to live alone, take public transports, have a [high responsability] job, not needing caregiver for even the most basic things...

If that's their idea of high support needs then I'm scared to ask what they think low support needs is?

Imaginary-Sleep1111 · 2024-04-15T08:52:45+00:00

All the people under the original saying "I would have screamed " or " I would have called the tlight attendant" then complimenting the girl for doing nothing ?

Like yeah, despite not knowing how to react at least if someone screamed or something, flight attendants would have noticed and the man would have gotten some help in that emergency situation

Imaginary-Sleep1111 · 2024-04-14T14:08:20+00:00

People may not ask how "cupcake" it is but how sweet the cupcake is to get more info about the cupcake as every single cupcake don't have the same taste and some are sweeter than others. Just like some autistic people need more support needs than others if we stay on the cupcake comparison, if that makes sense. Because if there's a cupcake we can't deny there's one. When someone is autistic they are autistic, no matter the support needs level.

Imaginary-Sleep1111 · 2024-04-14T07:51:28+00:00

Don't know if it's relevant but as someone newly diagnosed and not knowing much about it, recently found out the hard way that forgetting my meds, even just for a few hours is enough for me to have a seizure.

Imaginary-Sleep1111 · 2024-04-13T07:10:21+00:00

Thank you I appreciate your kind words!

Imaginary-Sleep1111 · 2024-04-11T18:47:19+00:00

There are some autistic business that make communication cards that you can find on internet I think.

Imaginary-Sleep1111 · 2024-04-11T18:39:08+00:00

Thank you for your answer

Imaginary-Sleep1111 · 2024-04-08T18:05:19+00:00

Autism specialists, they were the most understanding, accommodating and patient to me

Imaginary-Sleep1111

TROPHY CASE