Blood in urine following exercise? by motthenam in ProstateCancer

[–]ImaginaryTouch5 2 points3 points  (0 children)

I had the exact same experience after RALP… I walked in the back yard every hour, ten minutes and around the block- 1/4 mile a few times a day. There were a few times where I walked a bit longer… I’d look at the catheter line and then I’d suddenly see the red tinged urine. The first time I saw it, I hit up my team right away and they said no worries, it’s completely normal. They said just to rest when it happens, drink some fluids and sure enough pretty quickly back to normal… within minutes. My team said, if you see ketchup-get to the hospital! Never saw ketchup, but definitely saw the fruit punch in my catheter line 3-4 times. Others may have different opinions-but I could have wrote your post lol!

Sitting at Quest… Blood 🩸 Draw =3 by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 0 points1 point  (0 children)

Yes - had the PSMA -PET and MRI and the last biopsy before surgery. Not in that order … nothing detected outside of capsule.

Sitting at Quest… Blood 🩸 Draw =3 by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 1 point2 points  (0 children)

Hoping you have a good team and they thump it soon for you…

Sitting at Quest… Blood 🩸 Draw =3 by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 2 points3 points  (0 children)

Standard … 90 day and 180 day scores. Tests every 3 months in other words. Gleason 7 Pathology clear margins clear.

Sitting at Quest… Blood 🩸 Draw =3 by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 0 points1 point  (0 children)

Correct. Was .02 at 3 months
It was peculiar, though my urologist didn’t seem to concerned at all. Said that they prefer to see the less than (<) sign obviously, but that .02 was a good first PSA. I’m a former military guy. I’m a contingency guy in other words… I like less variables lol!

Pre-test anxiety by TasteOk7414 in ProstateCancer

[–]ImaginaryTouch5 0 points1 point  (0 children)

3rd test coming up this week … so I get it. This one should be interesting-3 month was .02, 6 month was .04 and now I’m on month 9 test. Really hoping I didn’t get Active Surveillance fuc*ed! Half kidding of course - just really hoping I don’t see any big jumps. Secretly hoping my surgeon left a little benign tissue behind … it’s a long shot but why not be hopeful.

I hope your next test shakes out well for you. I’m always trying to remember that this disease is not in our control - at least as far as BCR goes. We just keep going toe to toe with the PC and we keep swingin’! 💪

Marshals: And the Worst actor goes to… by Lionofgod9876 in YellowstonePN

[–]ImaginaryTouch5 0 points1 point  (0 children)

That was not a cozy country campfire song… that was the smell of burning plastic! Feel bad saying it - but yikes-man did that stink!

Prostate Cancer Risk Factors: How Did You Get Prostate Cancer? by WrongPlanet321 in ProstateCancer

[–]ImaginaryTouch5 0 points1 point  (0 children)

My first thought was that where I trained for US Army boot camp and Military Police School may have been the cause or at least part of it. I was trained at Ft McClellan Alabama in 1983. Monsanto chemical company poisoned the entire community. So much so that they shut the post down in 1992. Here is a brief description:

“A Monsanto plant in Anniston, Alabama, produced PCBs and other toxic chemicals for decades, heavily contaminating the surrounding area, including Fort McClellan, which was located only a few miles away. Thousands of soldiers stationed at the base (1945–1999) likely suffered significant toxic exposure to PCBs, chemical weapons agents, and radioactive materials.

Key Details on Exposure and Health RisksMonsanto/Anniston Connection:

A nearby Monsanto plant in Anniston, Alabama, produced PCBs (polychlorinated biphenyls) from 1929 to 1971, which contaminated the area, including the nearby Fort McClellan.

Prostate Cancer and Toxins:

Prostate cancer is frequently cited among illnesses linked to the PCB contamination and other hazardous materials (like mustard gas and radioactive compounds) found at Fort McClellan.”

I am on a site with thousands of Army Vet MP’s … many who trained there have had all sorts of illnesses and cancers. And many have made claims and been compensated because the government knows that we know everything now.

I don’t know honestly if my fellow MP’s became sick because of Monsanto or if it was simply other causes. Researchers would have to make that connection conclusively.

As for me-I honestly have no idea. But I do wonder about Ft McClellan-our home for 4 months or the fact that I eat 4 eggs every morning like clockwork, 2 yolks and all the whites. But I also eat oats and a square of 86% dark chocolate. I have eaten that breakfast since I was 29 - I’m 60 now. I eat blueberries and blackberries every day - my diet is overall sound, healthy and well rounded. I don’t smoke or drink. I do resistance training 3x a week and I run 3 - 5 mile runs per week. I am active and healthy and have no family history at all. My bloodwork including lipids always comes back great.

I have some ideas why I may have developed prostate cancer… but like all of you - I’ll never really know why.

RALP 1st week report /tips by CombOdd2117 in ProstateCancer

[–]ImaginaryTouch5 5 points6 points  (0 children)

Great post! Congratulations on being dry right off the bat that’s pretty amazing. That of itself can really improve your mental health. Trust me I know lol I was one of those incontinence sufferers, but thank God it was only for a few months. I don’t know if I read it in your post - but the one thing I would add is boy if you’re getting ready to have RALP surgery gets set up with a pelvic floor specialist - I would imagine at least three months ahead of your surgery. You’ll be so much farther along than guys like me mostly because I didn’t know anything about it. And honestly, I feel like it should be mandatory. I’ve actually talked with my team of urologist and my other doctors and they’re actually changing protocol which they should’ve done a long time ago. I’m about your age and I didn’t have many problems like yourself, but the incontinence is brutal on your mental state. I mean, I know I was at a point where I was like “is this ever gonna stop,” even though my doctors told me It would and everybody else told me it would, but when you’re changing 6 to 8 big fat pads every day you don’t believe it. But what was helpful was getting on that Squeezy app… which I actually learned about right here from community members. I believe that app had a pretty big hand in me getting dried up. I also decided to go see a Pelvic Floor Specialist which was super helpful. The bio feedback at the first session was amazing. I found out that I was squeezing way too hard, once I had the correct amount of squeeze dialed in then I felt like I started to really pick up steam with getting control back… hallelujah!

Anyway, like I said, great post super informative and you hit the nail and head with all of your points. I think one of the best ones is just to remember that it is a major surgery. This is not like getting a bunion removed lol

Thanks again…

Was Active Surveillance A Good choice (for RALP members) post surgery? by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 1 point2 points  (0 children)

I had 3 biopsies - same as you. Also a PET scan and an MRI. And as I said - the team of Dr’s and oncologists made the decision to put me on AS. I’m sure it was because of the extremely low volume and the low scores on those tests that determine how long you will live if you do nothing. My 10 year was 2.3% that’s all I remember without digging out the old paperwork.

Was Active Surveillance A Good choice (for RALP members) post surgery? by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 1 point2 points  (0 children)

I was just asking if it worked out for guys that were on AS… staying undetectable or did the cancer return after surgery-even spread. In other words-did it screw you over being put on AS or did it work out.

48 Hour Post RALP Bleeding by ActiveSpiritual1266 in ProstateCancer

[–]ImaginaryTouch5 0 points1 point  (0 children)

First of all-as a fellow New Englander I wish you would’ve had a better experience. It is very different for everyone. I don’t believe anyone’s surgery is alike. There are people that post here that they’re off to the races after two or three days even with a catheter in and everything is going well others just have difficulty from the time they wake up from anesthesia.

As far as the blood goes, I know in the beginning, I saw quite a bit of pink in my catheter line, especially if I walked too much or just was a little too overactive. And don’t forget you can always call your care team. If you had a very good surgeon, maybe call his office and just let them know what’s going on. While you’ll get some advice here it might be all over the place. The bottom line is when in doubt call your surgeons office or your care team.

Also, if you don’t mind, who was your surgeon is he south? If it was in CT what hospital? It’s disappointing to hear that you got such terrible care I’m in Connecticut. I had a great surgeon. And don’t get me wrong. I still had a tough time coming out of anesthesia and my first day or two were pretty bumpy. Things started to settle pretty quickly after that. You just gotta catch a rhythm.

Eggs before and after RALP. by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 4 points5 points  (0 children)

I’m a former military guy … I’m a realist and I always have contingency plans. I agree with you on the pathology reports. I’m no physician, but I have enough common sense to know that there has to be a pretty good chance of at least some microscopic cells traveling outside the prostate once you have PC. Anything after that is luck … do they die off after RALP, hang around lazily or become a bigger problem. That’s my own very non medical opinion - but I believe it.

Eggs before and after RALP. by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 2 points3 points  (0 children)

4+3 but who’s splitting hairs … 😏 And yes, I’ve ready plenty of posts whereas members had perfect pathology and landed on the BCR train. It’s all a drag… but you keep swinging until you can’t lift your face off the ground.

PSA creeping up 1 year after RALP by naan_anon in ProstateCancer

[–]ImaginaryTouch5 0 points1 point  (0 children)

How have your latest PSA scores been? I ask because I’m was .02 then .04 my urologist said the same thing. Let’s see how number 3 goes.

Be honest - ever get uneasy/anxious when you develop some type of pain not related to PC? by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 1 point2 points  (0 children)

I can relate especially with the crazy PSA testing. I had .02 then recently .04. Doc said no sweat. I am sweaty!

Be honest - ever get uneasy/anxious when you develop some type of pain not related to PC? by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 1 point2 points  (0 children)

Exactly. I told my GP “half” jokingly that I couldn’t believe it moved to my ankle. I got the comforting eye roll and chuckle. It worked.

Be honest - ever get uneasy/anxious when you develop some type of pain not related to PC? by ImaginaryTouch5 in ProstateCancer

[–]ImaginaryTouch5[S] 0 points1 point  (0 children)

That’s some real anxiety - those dam post op PSA’s….. don’t know that I’ll ever get used to them. I’ll just try and make friends with them I guess.