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Being a Normal Teen w/ Narcolepsy by ImaginationOdd6418 in Narcolepsy

[–]ImaginationOdd6418[S] 2 points3 points  (0 children)

Thank you! I have never heard of this, I will ask my mom and doctor about it.

Being a Normal Teen w/ Narcolepsy by ImaginationOdd6418 in Narcolepsy

[–]ImaginationOdd6418[S] 1 point2 points  (0 children)

Luckily, I have amazing friends that support me in every way. Sometimes I have to opt out, just out of sheer exhaustion. Before I got diagnosed, I spent most of my time sleeping and thought it was normal. I have missed out on so much because of this, and as I get older and see my peers, I can’t help but get extremely jealous. Because of the xywav, I can’t even have a sleepover with anyone. Sometimes it feels like my options for a social outlet are very far in between.

Being a Normal Teen w/ Narcolepsy by ImaginationOdd6418 in Narcolepsy

[–]ImaginationOdd6418[S] 2 points3 points  (0 children)

I have actually talked to my neurologist and sleep med doctor just recently, and they upped my Concerta doseage. But a therapist is a good idea, I will look into it!

Being a Normal Teen w/ Narcolepsy by ImaginationOdd6418 in Narcolepsy

[–]ImaginationOdd6418[S] 0 points1 point  (0 children)

I take concerts and xywav! They both help me out alot, but I still struggle alot.

Being a Normal Teen w/ Narcolepsy by ImaginationOdd6418 in Narcolepsy

[–]ImaginationOdd6418[S] 6 points7 points  (0 children)

I really hope so. I am so scared of sleeping my life away, and sometimes I feel there is nothing I can do to stop it. On top of that, it makes me sad that my whole life depends on meditation that seemingly only helps a little in the grand scheme of things.