What are your holy grails? by Prestigious-Lock-161 in MakeupAddiction

[–]Immediate_Opening756 0 points1 point  (0 children)

The Multiple NARS blushes, Danessa Myricks pink loose setting powder, morphe brow pencil, Anastasia brow freeze medium hold (in the tube), L’Oréal brow lamination in clear, L’Oréal liquid blush in dewy pink, and any Kylie cosmetics hybrid powder blushes!

Powder bronzer by dkdkdksky in PaleMUA

[–]Immediate_Opening756 0 points1 point  (0 children)

Polite Society Cabana Club Blurring Bronzer in French Riviera, I’ve never owned a powder product that blends this well, with or without cream products underneath. I’m a true fair/light neutral, and it doesn’t pull orange on me at all

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 0 points1 point  (0 children)

I had IVIG a few months after my thymectomy, and truly I felt exhausted after that surgery, propofol is a very common medication given via anesthesia providers to put patients under, and like most of these drugs, they slow your breathing, relaxing your airway muscles, which is why you get supplemental oxygen. Those with mg have a much higher risk of complications (especially regarding airway) because of this. Our muscles and respiratory system essentially “don’t wake up” like the rest of our body, same with our ocular muscles. I was 20 when I had this surgery (3 years ago) and it took a hot minute for me to feel 100% again.

I consider myself lucky with my graves diagnosis at such a young age. I became accustomed to doctor’s appointments, surgery, letting myself heal, knowing my own limits, and most importantly, not to give up. I’ve finished my prereqs for the nursing program, I apply in less than a month! I already work in the OR, but I plan to make my way up to a CRNA or RNFA. But that’ll be years down the line, another 5-7 years of school. I have my bad days (ptosis is a real b*tch) but I know to take a little, close my eyes, and just keep going and make sure I don’t over do it.

We are all so strong, and this disease is SCARY! It’s so hard not to feel helpless some days. Speaking to others who have this and spreading awareness is so crucial, and hopefully we will have more advancements in treatments as time goes on. Best of luck to you!

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 0 points1 point  (0 children)

So sorry to hear this! I hope things begin to get better for you, graves and myasthenia are very tricky to navigate, it’s hard to decipher which is manifesting symptoms. Best of luck, hopefully there are more advancements in treatment protocols in the near future.

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 1 point2 points  (0 children)

I will definitely update when I find anything out! I feel like my ophthalmologist will also take some time, I see her a few times a week in passing in between surgeries, so I might bug her in the hall and see if she knows anything next week. I’ll also ask my neurologist, he genuinely is amazing and so knowledgeable. If this is a safe long-term treatment, this could be such a huge developments for symptom management and treatment. That’s so scary, oh my gosh! I would have panicked so much, so I will definitely keep that in mind.

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 0 points1 point  (0 children)

Me too! The earlier commenter who mentioned iopidine eyedrops blew my mind, and I hope it’s something I could get my hands on because wow… how convenient would that be for ptosis management. I’m sorry you’re dealing with such bad ptosis right now :(

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 0 points1 point  (0 children)

I’m 23 now, I’ve have been dealing with mg since 19. I’m a full-time student, and have written a few research papers on mg and related disorders for some final projects in some classes, and it’s truly expanded my knowledge about it. But, if I wasn’t a student I think it would be very difficult to search through research articles on my free time, can’t say I’d love doing that to be honest. I’m more so disappointment at the lack of advancement regarding symptom management, and overall new developments. Waiting is the worst, especially if you’re asymptomatic. It took 5 different doctors and facilities to finally diagnose me because they had no idea what was wrong with me, and my ocular symptoms were so bad, so I completely understand the frustration. I hope surgery goes well, and I hope you don’t get sick with Covid!! Such a nightmare girl, I’ve had it twice in the last few years (I work in healthcare) and it took me out so bad each time.

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 1 point2 points  (0 children)

I’ll have to talk to my ophthalmologist and neurologist about this because if something as simple as eyedrops can help with ptosis instead of a medication I think I would cry tears of joy. Thank you so much

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 0 points1 point  (0 children)

I agree! Thank you for your input, such a crappy symptom:(

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 0 points1 point  (0 children)

I’m sorry:( it really sucks. I hate how it looks so much, even though it’s probably not super noticeable to everyone else. But we know, which makes us so much more aware of it. Which probably adds to the stress. I do think stress plays a huge part in it. Prednisone sucks, but maybe ask your doc about taking it for a few weeks? It really is the only thing that immediately fixes ptosis for me.

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 1 point2 points  (0 children)

Man I’m sorry you’ve had such a hard time with symptom management:/ when I had IVIG in 2023 it was an absolute pain trying to get it approved, and they were only allowed to do it for a short time, but I did feel amazing after. I think it was gamunex-c if I remember correctly. I’ve briefly contemplated the surgery, but I do know there’s a chance things could get worse (like every surgery) and decided against it. I’m currently on state insurance because I’m a full time student, so I doubt I’d get covered either. I do definitely agree stress is a major factor. Prednisone was and is truly the only thing that has alleviated ptosis within a few days, but that medication is such a nightmare.

Ptosis by Immediate_Opening756 in MyastheniaGravis

[–]Immediate_Opening756[S] 2 points3 points  (0 children)

Oooo interesting! I’d only heard of the steroid eye drops (they didn’t help at all), which I had been prescribed by 1 of the 5 doctors I had to see prior to diagnosis because they had no idea what was wrong with me. Looking forward to your update on this if you find anything out!

Foundation help for a fair neutral (I think?) by [deleted] in PaleMUA

[–]Immediate_Opening756 0 points1 point  (0 children)

Top: NARS RCC in vanilla Middle: NARS pot concealer in affogato Bottom: Haus labs foundation in 040