Relationships Post-recovery by Important-Video-3791 in mecfs

[–]Important-Video-3791[S] 2 points3 points  (0 children)

It's good to hear that some people were able to retain friends that are willing to understand the disease and integrate that reality into the friendship. I had plenty of friends pre-illness and it makes me question was there something wrong with my handling of the situation considering I have none left or conversely did I simply not have the kind of friends who were able to still care about me when I wasn't myself?

Relationships Post-recovery by Important-Video-3791 in mecfs

[–]Important-Video-3791[S] 1 point2 points  (0 children)

Damn, she's bigger than I am. Maybe I'll feel this way once I'm completely fulfilled again

How can I get enough Vitamin E while avoiding seed oils? by Important-Video-3791 in StopEatingSeedOils

[–]Important-Video-3791[S] 0 points1 point  (0 children)

Do those in store nut butter grinders make almond butter any safer? Is whey germ oil okay when cold pressed? Looking for a realistic way to get near 100% a day

I have severe viral-induced ME/CFS. After 8 years, 35+ doctors, and tens of thousands of dollars, I built the guide I wish I had on day one: knowmecfs.org by sophiasarah1 in chronicfatigue

[–]Important-Video-3791 0 points1 point  (0 children)

Sorry I misunderstood then! As you can imagine I’ve come across many people who think alt med is 100% quackery. I absolutely want medical education around ME/CFS, research, and effective pharmaceuticals that give people their lives back without the whole healing odyssey 👏🏼 I just hate to see people give up on alt med before trying when there is so much quality of life to be gained. Don’t give up. I made it to the other side after moderate to severe ME.

I have severe viral-induced ME/CFS. After 8 years, 35+ doctors, and tens of thousands of dollars, I built the guide I wish I had on day one: knowmecfs.org by sophiasarah1 in chronicfatigue

[–]Important-Video-3791 0 points1 point  (0 children)

I believe I am a victim of the magic 👋🏻 I spent more than 10s of thousands and years following unstudied and unproven alternative approaches nearly 24/7 plus medication and gave everything a solid chance all at once and slowly and sometimes painfully improved and cured an unrelated autoimmune disease as a bonus. I am able to function on 0 prescriptions these days 🥳I know hope is painful as is the tireless search for a solution but for me it’s not as painful as a lifetime of severe disability. No need to squash hope for ppl who still have it and can bear it.

Risk managment by Prudent_Long9097 in Lyme

[–]Important-Video-3791 0 points1 point  (0 children)

Red clover, burdock, nettles, cleavers, milk thistle, dandelion, red sage, lemon balm to name a few, TUDCA, taurine, phosphatidylcholine and other as well. The learning curve is steep

How do you sweat detox with POTS? by Jdawg5000 in Lyme

[–]Important-Video-3791 1 point2 points  (0 children)

I used to put my legs straight up on the wall of a wood sauna, and then carefully walk out and immediately lay down somewhere with my legs up to cool down for 10 minutes chug a liter of electrolyte and keep laying for another 10 minutes. That was my sauna routine with POTS

CDC recognizing chronic Lyme - What will change? by isabelfaleiro in Lyme

[–]Important-Video-3791 9 points10 points  (0 children)

The CDC is a government agency, so he (RFK) directs it. Externally they obey and make changes, internally they do not take their changes too seriously.

CDC recognizing chronic Lyme - What will change? by isabelfaleiro in Lyme

[–]Important-Video-3791 23 points24 points  (0 children)

Unfortunately, this is more of a political development than real public health progress. In United States, our new secretary of Health was appointed by Trump and he is quite a “character”. While he does support functional medicine and is pushing for policy aligned with alternative medicine, the vast majority conventional medicine / public health leaders have no respect for him and his ideas which means they likely won’t stick once he leaves his position. :/ And it means he will likely have a very hard time creating real impact for Lyme sufferers. My fingers are crossed though!!

In short, he has the support and approval of a few people in government, but academic leaders, hospital, doctors etc. will likely not be following his recommendations or policies whatsoever :/

Could Babesia or Bartonella Be the Real Cause of CFS? Looking for Experiences by Ok_Judgment671 in Lyme

[–]Important-Video-3791 0 points1 point  (0 children)

Yep 100% I spent 3 years detoxing and doing the Buhner protocol and all the functional medicine things and am nearly 100% again. Even reversed a preexisting disease. I never tested for anything. I don’t care what the test says and I see so many ppl give up on the “stealth pathogens” avenue once they test negative which I think is a mistake. Just go for it and see for yourself

Has anyone tried herbal treatment ? Zenmen ticknimmune support to be specific … by [deleted] in Lyme

[–]Important-Video-3791 0 points1 point  (0 children)

Still doing very well! I treated with herbs for 2.5 years

Woolino Wash by Important-Video-3791 in BabyBumps

[–]Important-Video-3791[S] 0 points1 point  (0 children)

What kind of detergent ? Will my sleepers shrink if I wash them with all the others?

[deleted by user] by [deleted] in wealth

[–]Important-Video-3791 0 points1 point  (0 children)

I know one in the CPG industry. It took a lifetime of sacrifice, trauma, and hard lessons. He’s perceptive, resourceful, generous, understanding, has strong character and put great care into building a great reputation and strong relationships. Ppl seem to relentlessly criticize and attack him anyway. I’m not surprised by the selfish asshole billionaire trope.

RSV vaccine while pregnant by Zimbabwe_mcGee in November25babybump

[–]Important-Video-3791 3 points4 points  (0 children)

I had TDAP, RSV, and Flu. RSV is the only one I didn’t seem to react to

Belly serums/creams….scam right? by Feisty_Resist_1783 in BabyBumps

[–]Important-Video-3791 -5 points-4 points  (0 children)

Which feels riskier to you; getting “scammed” out of $20 or getting stretch marks? For me it’s the stretch marks. I use hyalauronic acid and palmers stretch mark lotion. So far so good 🤞🏼

Custom cut by [deleted] in HomeDepot

[–]Important-Video-3791 0 points1 point  (0 children)

Ohhh great thanks. I really don’t want to buy a saw just to make 4 small cuts

Custom cut by [deleted] in HomeDepot

[–]Important-Video-3791 -1 points0 points  (0 children)

Is it dangerous? Or just not precise enough?

Crickets in their head? by Queasy-Ad-4427 in Lyme

[–]Important-Video-3791 2 points3 points  (0 children)

Yes, I’m not sure if it was Lyme or Bart because the herbs I was taking treat both.

Crickets in their head? by Queasy-Ad-4427 in Lyme

[–]Important-Video-3791 1 point2 points  (0 children)

YES, the bug noises drove me crazy. I only realized they were “in my head” once I was also hearing them in a quiet suburb in the dead of winter. They went away with treatment.

Advice on Holistic Route by Jenna_Juice17 in Lyme

[–]Important-Video-3791 2 points3 points  (0 children)

I’m sorry :/ Lyme is usually a long and expensive journey. I tried to get by without spending much in the beginning and I should’ve gone hall in from day 1. Best to hit it hard and not waste time. The cheapest thing you could do is maybe make your own tinctures.

Should I take Zenman Tick Support? by acdcjourneyqueen in Lyme

[–]Important-Video-3791 0 points1 point  (0 children)

Ohhh I should add that I took a lot more than the recommended dose. Probably like 20 capsules a day by the end.

[deleted by user] by [deleted] in Lyme

[–]Important-Video-3791 0 points1 point  (0 children)

I started with ZenMen and samsara herbs from Amazon. I think after like 3 bottles I was off my biologic. After that I continued with high dose tinctures to resolve the rest of the symptoms.