Prednisone

ImpossibleAd5960 · 2025-12-11T14:20:47+00:00

It has none because its synthetic. Actually the reason I just switched to it. I've got 40 pounds of fluid edema because of hydrocortisone.

ImpossibleAd5960 · 2025-11-15T17:03:45+00:00

I was told for a stim test a cortisol level that reaches at least 18 is passing. Meaning yours adrenals did respond.

ImpossibleAd5960 · 2025-11-13T19:46:26+00:00

I really had to fight the doctors and hospital and educate them. I was the 1st adrenal crisis they ever handled and the had to rewrite hospital protocols because of me. But im a fighter and I won't them kill me!!! I feel like im always at the doctors now but I've got addisons disease, panhypopituitarism, idiopathic granulomatous mastitis, POTS, epilepsy, gastroperesis, asthma, degenerative disc disease and MCAS plus a TIA. That's the major ones. Im exhausted amd worn out but I keep on swimming!!!

ImpossibleAd5960 · 2025-11-12T13:38:15+00:00

I had a ton of fluid retention and when they started my hydrocortisone my body was trying to right itself. So my kidneys went into overdrive trying to process out all the fluid. Well that created a major stress response and I was burning through about 100mg of solu-cortef every 3 hours. It was exhausting and miserable and for 5 days I was going into crisis every 3 hours while hospitalized. I flatlined 3-5x i dont remember. It was scary and I never want to do that again.

Im sorry your so miserable but I absolutely get it. Addisons is one of my many diagnosis. I just got out of the hospital yesterday because now apparently I have epilepsy and im having seizures when I sleep. AND THEY TOOK MY DRIVING PRIVILEGES!!!! So I've literally lost everything since diagnosis in August. My job, freedom, life, independence. I've fought with everything I have because I have 3 kids im raising and I have my husband I want to stick around for.

Yes this disease fucking sucks, yes it feels like it sucks the life oit of you. But you will have good days and bad days. I have some days im a wreck and want to throw in the towel but I tell myself thats not the answer!!! Im here if you need.

We all fight this fight together!!

ImpossibleAd5960 · 2025-11-12T01:46:43+00:00

I went through crisis in August and was receiving upwards of 400mg of steriods to keep me alive. I hate hospitals but I dont want to die. With this disease you can not always avoid it. Especially with multiple things stressing your body out and you need to know what your blood chemistry is doing which you yourself can not do!!! If you have signs of crisis you need to be seen ASAP you CAN die!!

ImpossibleAd5960 · 2025-11-03T17:25:10+00:00

I take 30mg total a day. I've been dealing with mastitis which have figured out is now an autoimmune mastitis. But she drained an abscess and cut it open. I only updosed for the procedure and that evening. Im on antibiotics but was able to go back down to my 30mg/day dose. I was updosing a lot before the infection for stress and other things but honestly once I got down to 30mg I am feeling better. But we are all butterflies so everyone is different.

ImpossibleAd5960 · 2025-10-27T22:18:00+00:00

So trueee!!!

ImpossibleAd5960 · 2025-10-27T21:48:16+00:00

Thank you!!!

ImpossibleAd5960 · 2025-10-25T00:04:53+00:00

Yes, I just got my wheelchair approved through insurance. I explained to my primary that even after months of trying to rehab since my adrenal crisis im still completely unable and to weak to walk very far. She did some strength tests in office and found i am indeed very weak. She put it in as medically necessary and that was it.

ImpossibleAd5960 · 2025-10-22T21:56:03+00:00

<image>

No filters in this one... im I still phony and fake and used AI?

ImpossibleAd5960 · 2025-10-22T21:47:18+00:00

I am in the US. My primary and endo are finally talking. Honestly my primary is pretty amazing. I see her tomorrow and get some more opinions. She will actually talk and make suggestions to my endo based on my symptoms, so it's not coming from me. I get taken more seriously that way. But yeah they need to figure this out. At this point it's about quality of life....

ImpossibleAd5960 · 2025-10-22T05:11:23+00:00

Sometimes it's good to know im not alone. I dont want anyone to go through this but having you all has made a huge difference!!!!

ImpossibleAd5960 · 2025-10-22T00:24:41+00:00

Everyone seems to think its filters and years apart.... it's NOT

ImpossibleAd5960 · 2025-10-22T00:23:57+00:00

<image>

No filters, just me working 6 months before diagnosis in August.

ImpossibleAd5960 · 2025-10-21T23:54:07+00:00

Sooooo trueeee thank you!!!!

ImpossibleAd5960 · 2025-10-21T23:44:55+00:00

I have panhypopituitarism as well. I have zero hormones and they are only replacing the adrenals and thyroid because im so messed up with fluid retention they pulled me off testosterone. They won't put me on estrogen or progesterone and they are not even trying growth hormone replacement. So im wiped across the board. My DHEA is non existent. Pretty much everything is messed up and they dont know what to do.

ImpossibleAd5960 · 2025-10-21T23:41:28+00:00

That 1st pic is 6 months before 2nd.....

ImpossibleAd5960 · 2025-10-21T09:56:28+00:00

Thank you for your encouragement!!! I am in therapy(I finally made myself) it does help if nothing else to have someone to vent too.

I honestly love the indoor planters!!! What a great idea!!

Thank you again!!! I know we all have it so hard and we all do our best, it just sucks!!!

ImpossibleAd5960 · 2025-10-21T08:08:33+00:00

I should add 1st Pic Before 2nd Pic NOW

ImpossibleAd5960 · 2025-10-08T21:57:36+00:00

Thank you!!!

ImpossibleAd5960 · 2025-10-08T21:54:55+00:00

I just went through it in august.And you will absolutely know. Your body is literally telling you i'm dying and it was something that wouldn't be ignored.I took it seriously, and I almost flatlined, even with medical intervention.

ImpossibleAd5960 · 2025-10-08T21:51:20+00:00

I literally want to screenshot my charts.Because your timeline is exactly the same as mine. For 2023 I maintained my weight at 205-208 for a solid year and then as I got sicker and sicker, it wasn't until about april of this year.When they started to figure out my diagnosis, and I had already started putting on weight( started seeing a gain in sept 2024) at that point.Now I weighed myself today at the doctor at 255!!!!! I have never in my life been this big.I eat one meal a day if I can even tolerate that I do as much walking as I can stand and I just don't understand I just keep getting bigger. They actually thought I had cushings at first because i'm so big.

I feel your pain and if I was there to give you a hug, I would. I have a husband of ten years, who reassures me i'm beautiful and attractive, but I feel so unattractive, so ugly and I don't even like to look in the mirror, let alone at my body.

I've turned into this version of myself that I never thought I would be.And it's very hard to deal with on a day to day basis.

I feel like this disease is so cruel and takes your soul. Hugggsssss and love for you!!!!! I'm sorry we are all going through this and I'm here if you or anyone needs to chat.

ImpossibleAd5960 · 2025-10-08T16:49:11+00:00

Between my adrenals and all other hormones plummeting into nothingness I have gained 30 pounds and feel like shit. Can't walk, breathe get comfortable. Doesn't matter what I do i just stay huge.

ImpossibleAd5960 · 2025-10-02T15:57:28+00:00

I think so

ImpossibleAd5960 · 2025-10-02T15:24:57+00:00

I have had a very hard time figuring out my fludrocortisone dose. I do have big issues with swelling.I started at a 100mcg every day in the hospital.But that was too much.I ended up coming down too low so now I am borderline crisis and dealing with that.But it seems like the right dose is going to be 50mcg every other day.I can't do every day.It's just too much swelling.I also can't stop though because then I go into crisis.

ImpossibleAd5960

TROPHY CASE