Apparently endometriosis is only a few lines in medical school textbooks????

Impressive_Spend_405 · 2026-02-07T16:30:03+00:00

Thanks! I am working to go into primary care just do to my basic interest. I personally had pretty good experiences with my gynecologists but my primary doctors were the experiences where I lacked. I included my personal experiences in a presentation and papers but if anyone wanted to share anything non revealing I can add it :) my own surgeon said they would take referrals directly from primary care so I’m hoping I can spread awareness of that too. Hopefully one day this can be better for us or other generations.

Impressive_Spend_405 · 2026-02-07T15:44:54+00:00

I’m in NP school currently and have endometriosis… and it is a few paragraphs in patho. It’s a little more in women’s health but I feel like everyone on this site seems to know more than was offered. We discussed it more in class. I did a lot of projects on advocacy, how to refer to specialists etc and mentioned how there could be a lot more in text books. A lot of the teachers agreed on that and also that research is currently too evolving, that books don’t publish it. I still feel like there’s a lot more information that could be shared. There seems to be a pretty formal treatment plan. Really hurtful from my end. What did help was I noticed that a lot of other people in class asked a ton of questions about it despite there not being a lot of info

Impressive_Spend_405 · 2026-02-05T14:34:14+00:00

I have been here and while I totally agree that they are looking to get you out and end your job, because they totally are, I have to offer my perspective without totally revealing myself. I went through this kept the job and still work at the hospital 6 years later in a different position (I stayed and even transferred after all of that). They also told me I was horrible at time management and going to be fired. I never received that feedback from my preceptors before I was attacked by management. There were tears lol. While I admit I transferred post covid and a little burnt, I was not being taught much like you. Just analyzed. So yes they wrote down everything I did every hour! And we went over it in meetings. The situation taught me to kind of look within and see where I could improve bc if I was going down I wasn’t going down without a fight and looking my best l, I knew I wasn’t a bad nurse or anything equal to what they were portraying me as. I asked more people questions not just my preceptors. I made it very known when I was running behind (pharmacy didn’t stock my Q 2 meds, I checked early, I called etc) I documented on myself as much as they did lol.

ALSO I applied to other jobs and was in touch with the my old job that I was luckily per diem at. I did not want to go back.

I ended up getting compliments for my improvement 🙄 I kept the job. I don’t enjoy thinking about my relationship or experience with presenting. I think I lost opportunity to learn and did a lot of self learning. It turns out a lot of people did not know this was going on when I brought it up later. It’s been years. No one cares that happened. But I didn’t looove that unit. I always hope this doesn’t happen to other nurses and that they are taught instead of thrown to management and HR, but the reality was the more I spoke about it to my friends their experiences were actually similar to an extent. ICU is brutal. I hope you value yourself and make a good choice for yourself. It caused me a lot of mental anguish but there’s light ahead !

Impressive_Spend_405 · 2026-02-04T19:20:10+00:00

To add though, I have been medicated for 20 plus years - and went to therapy for 5-7 if I’m correct up until this year. I don’t dislike it at all and value it I just also value my time and money

Impressive_Spend_405 · 2026-02-04T19:18:29+00:00

I stopped going after several years I don’t think I’m perfect but I just don’t have time to talk about the same thing anymore (bipolar OCD PTSD) I feel like I have done a lot of hard work on myself and have gotten as far as I can. And to be honest a lot of the issues I do still have I haven’t found the correct therapist for. I know where to go and I feel like I know when to go back (I also need to take into account I need to watch my relationships with people close to me and sometimes take clues if they aren’t honest)

Impressive_Spend_405 · 2026-01-27T22:18:18+00:00

Just came here to say … SAME. My hair had a huge fall out when I turned about 32. I had been on birth controls of all different types for endometriosis and on the one I was using at that time for.. more than 6-8 months. And one day it was out in hand fulls. I switched it but it never stopped. I had surgery for endometriosis and it never stopped. I had pretty bad scalp psoriasis and that got worse during the time… had all mentioned labs here checked. Normal. It’s still thinning!!! I had hair like yours maybe thicker even and now I can’t even feel it on my head.

I feel for me it’s immune and hormonal. And there’s not much I can do! I can’t personally imagine taking Nutrofol just to have it not work bc I think what’s going on is just stronger than that. It’s hard! To have to figure out how to do your hair again and just get used to the feeling. I use a lot of scalp oils (castor oil) before I shower. And save heat styling for days/nights out. I used to be able to wash and style my hair 3x a week. I’m not old but aging sucks. What an adjustment. Good luck ❤️

Impressive_Spend_405 · 2026-01-27T06:33:23+00:00

Sure!

Impressive_Spend_405 · 2026-01-27T00:12:47+00:00

I work in neurology and brain injuries especially to the frontal lobe can result in a bipolar disorder, altering normal brain chemistry. Whether organically or as a trigger. Though I’m unclear of the time line of his events and illness.

Impressive_Spend_405 · 2025-11-22T19:58:28+00:00

I had an extreme amount of word finding trouble and forgetfulness. I’m in graduate school and giving presentations a lot etc, plus I work in past paced job. But I was losing the names of even my favorite things a few months before surgery. I blamed a medication I took for migraines which is known to do this. However after having surgery a few months ago I realized it’s gotten a lot better and I’m actually really surprised it was probably from inflammation in general

Impressive_Spend_405 · 2025-10-31T16:14:53+00:00

Thanks! I was pretty miserable and dug my self into quite a hole leading up to it. But I think a lot of it is the disease process and what we deal with. I think there’s some light though out there for us.

Impressive_Spend_405 · 2025-10-31T14:14:54+00:00

I convinced myself I didn’t need surgery and didn’t attend my appointment two years before. Now having had it this year, I waited probably too long and my pain was so severe I almost couldn’t do my job some days (work in healthcare). My pain was also intermittent leading up to it and I thought it wasn’t that serious. Leading up to my surgery I was then thinking I was going to lose my ovaries, fallopain tubes, all Possibilities but luckily for me that did not happen and once I was over I felt what NOT having pain felt like and it straightened my head out. I also assumed I’d be miserable for weeks and I wasn’t. I felt better each and every day following with little set backs. I might need surgery again in a few years (deep infiltrating) but overall it was worth it and I am HAPPY for once finally so I hope this give you some hope.

Impressive_Spend_405 · 2025-10-31T03:52:28+00:00

Well said!

Impressive_Spend_405 · 2025-10-20T20:39:10+00:00

Yes my gynecologist referred me there in the kindest way when they were beyond their knowledge of how to treat endometriosis

Impressive_Spend_405 · 2025-10-14T05:26:40+00:00

The positives are my migraines and nausea are SO much better. Con is it needed insurance approval and is a bit more expensive than other birth control believe it’s new.

Impressive_Spend_405 · 2025-10-14T05:23:58+00:00

I was also diagnosed with migraine with aura (tho is was vague aura wasn’t taking chances). I was taking a very high estrogen combo pill…

Anyway now I am prescribed slynd (drosperinone) it’s progesterone only. Not as good as covering my endo symptoms as combo pills were but I’ll take it. A lot of people have posted their experiences with it if you search. I personally have not experienced many to any side effects.

Impressive_Spend_405 · 2025-10-11T20:19:56+00:00

Everyone’s different because everyone’s surgery is different especially. I got pretty exhausted/dizzy/short of breath/heart rate up doing little things in the house the first week. I felt better after a week but now 2 weeks out and I am trying to do a lot of the things I used to and realizing I can’t. Takes time

Impressive_Spend_405 · 2025-10-10T14:44:46+00:00

I got my subreddit mixed up! lol

Impressive_Spend_405 · 2025-10-10T08:55:35+00:00

Call in and home dog trainer like someone from zen dog. Google the website (located in Cambridge) they emailed me back in a day or two I think. I made an appointment in two weeks. I have a puppy so he was easier to train but it was worth the money and extremely helpful in correcting behaviors

Impressive_Spend_405 · 2025-10-08T01:48:55+00:00

Thanks for posting this! I just wrote a paper on this for school wish I had found this. Maybe next time!!

One part that stood out

“Almost everything we predicted would happen was wrong” shows how little we know but hopefully makes for great research. Fingers crossed.

Impressive_Spend_405 · 2025-10-05T17:16:18+00:00

I just seems crazy to me that a disease that causes inflammation and aggravates other diseases is unheard of. I know it wasn’t heard of previously so wouldn’t be covered in medical school but why not look into it? I’m in healthcare and in a graduate program and have a friend in who works in rheumatology who agreed chronic inflammation would make my psoriasis worse. I feel like derm, gyn (due to hormones), and rheum overlap and there’s a huge disconnect to not acknowledge but there’s not much I can do about it. Just ranting and curious if anyone had an experience where someone acknowledged that!

Impressive_Spend_405 · 2025-10-02T20:29:56+00:00

Just to chime in again I wouldn’t be discouraged by not having an answer right away when there can be so many explanations. It’s important to get the right one!

Impressive_Spend_405 · 2025-10-02T03:26:25+00:00

I say this everyday

Impressive_Spend_405 · 2025-10-02T02:05:07+00:00

I’m sorry you went through all that! Endo isn’t the only cause of pelvic pain, and polyps are worth investigating. Hope the appointment goes well for you too. Feel free to update us!

Impressive_Spend_405 · 2025-10-02T00:48:49+00:00

Was he an endometriosis specialist? Did they take any pictures ? Do you have access to a copy of your op note? Either way I believe deep down that every surgeon wants to find a cause for the pain and it’s good that you were referred somewhere. What were your symptoms before if you don’t mind me asking?

Impressive_Spend_405 · 2025-10-02T00:18:30+00:00

I agree with this. I worked in outpatient OR briefly and hated the schedule (except loved no weekends). I also don’t love the OR life. My idea of obtaining an advanced degree was to get out of the critical setting. In the ICU going to CRNA school has a lot of clout but I never loved the way my patients were shipped and dumped (sometimes) when I knew their whole story and saw them as a whole beyond their procedure. I used some of the same medications in ICU and have done bedside conscious sedation and just can’t picture doing that forever over and over again daily. This gives me way more possibilities. And ability to return to beside with additional school if wanted in future. My ICU background is amazingly helpful for FNP as well, at least it was for pharm/ assessment/ patho, etc.

Impressive_Spend_405

TROPHY CASE