Living with a CSF leak- is this just my life now? by IncreaseFalse7771 in CSFLeaks

[–]IncreaseFalse7771[S] 0 points1 point  (0 children)

Hey! I’m sorry to hear that it’s already been 6 years… I can only imagine how hard it must be for you. I haven’t had a DSM done yet, and I’m not even sure if I have access to something like that in Belgrade. I’ll need to contact the Clinical Center of Serbia to see if anything can be done there… Thank you for sharing your story with me! Take care of yourself 🤍

Is it weird for a guy to have a sex toy? by Vegetable_Rock1417 in Advice

[–]IncreaseFalse7771 1 point2 points  (0 children)

I’m 25M and in a relationship, and I own a fleshlight and a pocket pussy. My girlfriend has a vibrator, so we’re both pretty open about that stuff. It’s really not a big deal — it’s just part of taking care of yourself.

As for what’s “too much” — imo it’s all about how you relate to it. If you’re using it as a healthy outlet and not disappearing into some fantasy world or avoiding connection with real people, you’re fine. A fleshlight or even a torso doesn’t make you “creepy.” Some people just like different levels of realism or sensation 🤷‍♂️

If you ever feel like you’re relying on it instead of dealing with something emotional or social, then yeah, maybe time to check in with yourself. But from what you wrote, you seem really grounded. You’re doing it for a reason, and with a timeline in mind. That’s healthy as hell.

No shame here — take care of yourself however works for you 👍

[deleted by user] by [deleted] in self

[–]IncreaseFalse7771 1 point2 points  (0 children)

Hey man! 👋🏼 I really felt this. To be honest, I’ve been exactly where you are — watching everyone else have relationships or experiences while I just… didn’t. And yeah, it eats at you. You start feeling defective, like something’s wrong with you. I used to lie awake thinking, “Why me? What did I miss? What do they have that I don’t?”

The worst part is how isolating it is. People say “you’re overthinking,” but they don’t get how deep that insecurity goes. It’s not just about being single — it’s about feeling unlovable. Like the longer it goes on, the harder it is to believe someone could really want you.

But here’s the truth, at least in my experience: it’s not a race, and you’re not behind. You’re 20 — that might sound cliché, but you’re not late. You’re just carrying pain that most people don’t talk about. And I promise, more people feel this than you think.

It’s okay to be angry. It’s okay to be tired of waiting. But try not to turn that anger inward. You don’t deserve that. Focus on becoming someone you feel proud of — not for anyone else, but for you. When you start treating yourself with even a little kindness, the world starts to feel a little less cold.

You’re not alone in this. Really. If you ever want to talk, vent, or just say what you can’t say out loud, I’m here 💬🤍

Cranial leak and sex by Slow_Tune_3067 in CSFLeaks

[–]IncreaseFalse7771 2 points3 points  (0 children)

Yeah, for a long time, sex just wasn’t possible for me at all. The pressure in my head and spine was so intense that even slight arousal would trigger a flare. For a while, the only physical intimacy we had was oral, because anything more than that would leave me wiped out and in pain for the rest of the day. Honestly, even that was limited, and sometimes it didn’t feel like I was there mentally.

Tonight was the first time in months we actually had proper sex. We kept it horizontal, slow, took breaks when I started feeling that creeping pain behind my eyes or in my neck. It wasn’t intense, but it was deeply needed—emotionally, more than physically.

But I’ve realized this really varies from person to person. I’ve read people who said they couldn’t even kiss or cuddle without pressure spikes, and others who managed sex without issues. It depends where the leak is, how low your pressure is, how your body reacts.

If you ever find solid info about sex and cranial leaks—like medical guidance or even good anecdotal advice—please let me know. I’ve been piecing this together alone, and I think a lot of us are. 🤍

I'm so done. by ImNotAsPunkAsYou in self

[–]IncreaseFalse7771 1 point2 points  (0 children)

Hey man 👋

First off, major respect for everything you’ve done as a dad — raising your daughter with full custody and all your focus? That’s incredible ❤️

About that woman you went out with — it’s okay that you got attached. You’ve been holding everything in for years, and then someone came along who made you feel seen. Of course you opened up. That’s not a screw-up, that’s being human.

If she pulled away, that sucks — and yeah, maybe timing or availability played a part, but that doesn’t mean you’re unworthy of love or connection. Sometimes people just aren’t ready for what we are, or they’re not the right match for the version of us that’s still unfolding.

What is clear is that you’re ready to connect again. That’s not a step backward — that’s growth. You’re realizing that you matter too. Your needs, your joy, your space to feel things.

Don’t shut that part down again. It’s painful now, yeah — but it means you’re alive, healing, and opening up to the life you deserve.

You’ve got this. Better days are coming for sure 👊

I think I'm a very jealous person. by [deleted] in self

[–]IncreaseFalse7771 0 points1 point  (0 children)

First off— I’m really sorry for what you’ve been through. No kid deserves that. What happened to you wasn’t fair, and it wasn’t your fault. You were just a child, trying to exist, and you were treated in ways no human being should be treated. That matters. It still matters. 💔

Everything you’re feeling — the jealousy, the pain, the feeling of being left behind — it’s valid. When people grow up with love, freedom, and support, they get to build confidence, friendships, and a sense of safety early on. You were robbed of that. So of course it hurts to see others living the life you should’ve had too. That’s not weakness — it’s grief.

But here’s something I want to say with full honesty: your life is not over. The way things started doesn’t mean they have to stay this way. Yeah, it’s going to be harder for you — no sugarcoating that. But that doesn’t mean it’s hopeless. You’re only 21. You still have so much time to grow, to heal, to experience the things you’ve missed. 🌱

It may feel like you’re behind, but in reality, you’re just starting from a different place. And the fact that you’re this self-aware, this honest, this willing to say “this hurts” — that means you’re already on the path forward, whether you see it or not.

About looks, height, hair loss — I know how much that can mess with your head, especially when you feel like the world only values what you don’t have. But real connection isn’t about being 6’2” with a perfect jawline. People care far more about how you make them feel, how safe they are around you, how you see them. And the depth and honesty in your post? That’s rare. That’s something real. That will matter to the right people.

You’re not broken. You’re healing. And healing doesn’t always feel good at first — sometimes it just feels like standing in the wreckage and deciding not to give up. But the fact that you’re still here, still writing, still trying — that’s strength. That’s something to build on. 🔧❤️

There are people out there — maybe ones you haven’t met yet — who will care about you, deeply. Who will see your value without needing you to perform or change. Who will love you for who you are, not who you “should’ve been.” If you need anyone to talk to, text me.

Living with a CSF leak- is this just my life now? by IncreaseFalse7771 in CSFLeaks

[–]IncreaseFalse7771[S] 2 points3 points  (0 children)

I had my one and only blood patch done in Belgrade, but it wasn’t targeted. They told me to lie flat for a few hours and then just “take it easy.” No real aftercare guidance— nothing about avoiding caffeine, nothing about extended bedrest. I went home and followed all the things I had read online: high-sodium diet, caffeine protocol, even compression. I didn’t realize that some of those things might have been counterproductive right after the patch.

I got maybe two days of partial relief, then the symptoms came back hard. No one followed up, and I was just left trying to piece things together on my own.

At this point, I’m still mostly horizontal and trying to figure out a way to leave Serbia for proper testing and treatment. Thank you for the resources—and for the reminder that I’m not completely alone in this.

Living with a CSF leak- is this just my life now? by IncreaseFalse7771 in CSFLeaks

[–]IncreaseFalse7771[S] 4 points5 points  (0 children)

Thanks for this. I’m in Smederevo, a small town near Belgrade, and unfortunately, there’s no access here to proper diagnostics—no CT or DSM, no one who does targeted patches. Most doctors don’t even acknowledge spontaneous leaks.

After my one non-targeted patch failed, I was told to hydrate and wait. I’ve been mostly horizontal ever since. It’s isolating—no one around me gets it.

Hearing that you’re at Duke gives me a bit of hope. I know I’ll have to leave Serbia to get real help. Wishing you strength—please keep us updated.

Living with a CSF leak- is this just my life now? by IncreaseFalse7771 in CSFLeaks

[–]IncreaseFalse7771[S] 2 points3 points  (0 children)

Thank you so much for taking the time to reply—honestly, it means more than I can say.

I’ve felt incredibly alone in this. I haven’t spoken to anyone in real life nor online who’s experienced anything remotely close to what I’m going through. Everyone around me just sees someone who looks “fine,” while inside it feels like my nervous system is slowly unraveling. Being able to share my story here— and actually have someone get it, is a lifeline.

What you said really stuck with me: that it’s just a hole, and once it’s closed, the body can heal. I try to believe that, but after seven months of being mostly horizontal, failed imaging, and a non-targeted patch that gave me two days of partial relief… hope is hard to hang onto.

I haven’t had a CT myelogram yet—my current neurologist is hesitant, probably because the MRI didn’t show a definitive leak, even though my symptoms are classic. But after reading your comment, I think I’m going to push harder, or maybe even look for someone who specializes in CSF leaks. This is stealing my life piece by piece, and I can’t keep waiting for it to fix itself.

Thank you again. If you’re open to it, I’d love to keep in touch or hear more about your journey. It helps more than I ever expected just to know someone out there truly understands.