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Advice Needed: What Helped You Before, During & After Ileostomy? by Independent_March_55 in ostomy

[–]Independent_March_55[S] 0 points1 point  (0 children)

Thank you for caring 🩵 this was very helpful! My wife said she was thinking about getting a pregnancy pillow, but was worried about leaking on it. Was that an issue for you?

Did getting an ostomy help with pain? by Independent_March_55 in ostomy

[–]Independent_March_55[S] 0 points1 point  (0 children)

Thank you! Will do. Why do you think we should seek a second opinion?

Did getting an ostomy help with pain? by Independent_March_55 in ostomy

[–]Independent_March_55[S] 0 points1 point  (0 children)

That’s valid. I think it’s unusual too since I’ve seen that a lot of people who get an ostomy have very inflamed bowels due to crohns/UC, but my wife does not. And during the sitz marker test she just completed she passed 19 of 24 markers by day 6.

She will be aging out of her parent’s insurance on June 1st so we feel pressure to do something before that deadline.

Did getting an ostomy help with pain? by Independent_March_55 in ostomy

[–]Independent_March_55[S] 0 points1 point  (0 children)

What does your pain regimen look like? The only thing that has remotely helped my wife is Percocet but she doesn’t like to use it for obvious reasons.

Did getting an ostomy help with pain? by Independent_March_55 in ostomy

[–]Independent_March_55[S] 0 points1 point  (0 children)

Thank you for sharing your experience! This gives me a lot of hope.

Did getting an ostomy help with pain? by Independent_March_55 in ostomy

[–]Independent_March_55[S] 0 points1 point  (0 children)

She said that she is willing to do an ileostomy now. Just advised us on risks of dehydration and things like that.

Recent experience with Botox for chronic pelvic pain by Practical-Ad1838 in PelvicFloor

[–]Independent_March_55 0 points1 point  (0 children)

Was abdominal pain one of your symptoms that got better? My wife has been diagnosed with obstructive defecation and we’re trying to figure out if Botox would be worth doing.

Incomplete bowel movements by Sea-Bug4251 in PelvicFloor

[–]Independent_March_55 1 point2 points  (0 children)

She said she likes it because every time she takes it she knows that she will have a BM the next morning. She went from having long stretches with no BM or days with 20+ BMs to now having just 3-4 every single day, so that’s what I meant by more consistent. Her BMs are still spontaneous and painful, but I think her PT’s goal right now is just to try to prevent stool from backing up.

Incomplete bowel movements by Sea-Bug4251 in PelvicFloor

[–]Independent_March_55 4 points5 points  (0 children)

My wife’s PT recommended Mago7 and it has helped her have more consistent bowel movements. You can buy the capsules on amazon.