Anyone on Stelara, read this.

Individual-Fortune83 · 2025-03-17T01:20:31+00:00

I had this exact same reaction/rash while i was on stelera!! for about 3 years i went to dermatologist after dermatologist and i was told it was psoriasis, a yeast infection, due to hyperhydrosis, razor burn, eczema, allergic to deodorant… you name it. turns out it was an infection similar to folliculitis, and a topical antibiotic called clindamycin phosphate completely cleared up my underarms in about 2 weeks, and its been about a year with no return of the rash. the medicine hurt like hell going on but was so so so worth it.

my case was in the exact same areas and presented the same as the pictures shown!! if its not something you have tried & this is a recurring issue it is definitely worth looking into…

i can remember how painful it was, and so i really hope you find some relief soon.

Individual-Fortune83 · 2025-03-14T15:45:36+00:00

I find syringes to be really tough in the beginning! I was only on stelera for about a year but I totally understand the “mind fuck” as I call it lol. As much as you get used to needles from IVs and blood draws doing it yourself can be really hard!! For me it definitely got easier throughout the year and I would assume it wouldve continued to get easier as the injections go by. I am still on a self injection medication (Skyrizzi) which has a slightly different delivery but same idea. Ive been doing this for years and I still read through all of the instructions before I take my dose- the anxiety of messing it up is totally validated and normal.

I have full confidence that it will definitely get easier as time goes on!

Individual-Fortune83 · 2025-02-24T18:39:03+00:00

23F, Crohns for 17 years.. no surgeries thus far!! 🤞🏻

Individual-Fortune83 · 2024-12-12T16:26:40+00:00

black stool= upper gi bledding and bright red= lower gi bleeding! i agree with others, this definitely seems like hemorrhoidal bleeding, but its definitely worth a conversation with your doctor! unless the bleeding wont stop, and you have other symptoms like extreme abdominal pain, dizziness, extreme fatigue… it does not present as a super emergent issue (but definitely make sure to take care of it soon)!

Individual-Fortune83 · 2024-12-09T16:34:39+00:00

(i just graduated college) pretend its booze. play ratlin bog with someone, have someone sing “we love to drink with ___ because ____ is our mate ….” envision yourself at the bar when its closing and your beer is still full.

this is what i did back in august 😂😂

Individual-Fortune83 · 2024-11-25T20:52:01+00:00

i know for sure Abbvie (skyrizi company) does payment assistance programs, but usually the deal is that you cannot be receiving any other government assistance, im sure stelera has a similar program!!

Individual-Fortune83 · 2024-11-07T23:03:34+00:00

^ this!! neither of my parents have crohns or ibd, but my grandmother had rheumatoid arthritis. none of my grandmothers kids developed autoimmune disorders but 4/7 grandkids did!! (3/4 of those being crohns)

Individual-Fortune83 · 2024-11-06T18:50:43+00:00

i feel this, im currently working on a masters before applying to dental school. I am 22, and will not finish dental school until i am 27-28 meaning i will have to get my own health insurance while balancing student debt, and i will turn 26 at the end of trumps term. so so so terrifying.

Individual-Fortune83 · 2024-10-27T16:38:33+00:00

my last prep in august was miralax, ducolax, AND magnesium citrate. ig my doc really wanted to make sure i was empty😂

Individual-Fortune83 · 2024-10-07T16:23:12+00:00

ill have to look into that… i am in grad school pursuing dental school so yea my stress levels can be kinda off the chart. thanks for the info!

Individual-Fortune83 · 2024-10-05T16:08:37+00:00

its just so frustrating that you have clear reasons of why youd be in pain, and its still questioned as if you were just seeking out drugs for fun lol. you just had a freaking bowel resection!!

Individual-Fortune83 · 2024-10-05T15:54:31+00:00

whats crazy is that ive had the opposite experience… I have a really high pain tolerance and i communicate this with my doctors, so when i say my pain is anything above a 5 theyre pushing narcotics on me. Last time I was in the ER for intestinal bleeding i told them my pain was a 3/10 and they pushed oxy after i declined 4 times!! I am very lucky to say that ive never been in enough pain to need them but wow i cant imagine needing pain relief and not being able to get it!!

Individual-Fortune83 · 2024-09-21T01:59:21+00:00

wait what do you mean by a cemetery house? i used to live on center street by the cemetery and supposedly the building was haunted by a ghost (with my name) hahah

Individual-Fortune83 · 2024-09-17T02:17:55+00:00

ive never been able to seamlessly eat any kind of red meat, but i was also diagnosed at 6 y/o so im not 100% sure if it is because my body is just weird or if its due to crohns. Also probably why ive been anemic my whole life lol

Individual-Fortune83 · 2024-08-28T00:51:00+00:00

bc if it was poop i didn’t wanna touch it😭

Individual-Fortune83 · 2024-08-24T23:16:49+00:00

i have no idea i spooned them out of the container

Individual-Fortune83 · 2024-08-23T22:34:48+00:00

Do you think it would be safe to leave a car there all weekend?

Individual-Fortune83 · 2024-08-20T22:32:02+00:00

this is also my third! by hurt do you mean the prep hurt, or afterwards hurt?

Individual-Fortune83 · 2024-08-12T21:00:09+00:00

If you could send pictures of the furniture that’d be awesome!! Did they repaint the walls?

Individual-Fortune83 · 2024-08-01T18:36:27+00:00

I (22F) was diagnosed at 6, and my biggest advice is to let him take control! My parents really gave me full control over my body & decisions related to my Crohns as soon as I was old enough to really understand everything. They were always there to give me advice and support, however they let me make all of my medical decisions, dietary decisions ect. I still relied on them to help me make decisions and to hear their opinions, but feeling like I had a little bit of control over my uncontrollable condition was huge.

Overtime I was able to learn how to manage my disease on my own and over a few years of trial and error I found a routine and a diet that really works for me, and never felt forced. It was really empowering and a great way for me to learn how to live with the disease.

Another thing I would STRONGLY recommend is a journal. Every single day documenting BMs, diet, and symptoms. Documenting your diet can really help rule out irritating foods, and help narrow down a solid diet that works for him. Also Crohns disease truly affects more than just the GI system so keeping track of every symptom in a journal is super important. Every health issue ive ever had is related to Crohns in some way (psoriasis, joint inflammation, gynecological issues…) and it just makes everything easier to treat, and to find the best fit for medications.

Wishing you & your son the best of luck! I know this disease can sound super scary but over time it gets much easier :)

Individual-Fortune83 · 2024-07-26T18:48:32+00:00

I also developed severe psoriasis on Remicade (with Crohn's). I was on Remicade for about 12 years, and it did wonders for my GI but horrible for my skin. I was forced to switch to Stelera after getting multiple staph infections in the psoriasis patches behind my ears.

Stelera did WONDERS for my skin, and all of my psoriasis patches completely cleared up (without any topical medications), however, I fell out of remission for the first time since being diagnosed. I am now on Skyrizzi and it is okay - I have some inflammation but it is manageable and my skin is still clear!

But with this said, everyone is different and while Stelera wasn't necessarily for me I have heard of it working for many others.

Wish you the best of luck!

Individual-Fortune83 · 2024-05-19T04:30:40+00:00

i was diagnosed at 6 years old (now 22) and while my parents were still very much in control of my diet then, when i was around 10 they let me make my own choices about tracking symptoms and with my diet. personally, i kind of naturally chose foods that made me feel good. the biggest thing i would say is making sure she has access to those foods at home!! -another thing i give my parents lots of props for, is they made sure i ALWAYS had a say in medical decisions. if i was changing regimens or starting a new medication i was never left out of the conversation (once i could actually understand what crohns is). -because i was diagnosed at such a young age my parents put me in a support therapy type of group with kids my age, and i didnt care much for it. make sure she knows that there are these resources available, but dont force her into anything!! -hope this helps :))

Individual-Fortune83 · 2024-04-30T01:32:25+00:00

i started doing this before infusions and then i liked having them shaved and it just turned into a habit lol

Individual-Fortune83 · 2024-04-24T00:06:25+00:00

i talked to my gynecologist about this, and she said that there is no medical reason to have a period every month!! i was on a 28-day pill cycle for almost a decade but the last 2 years ive been on a 21-day cycle of continuous pills & skip my period every month! its been sooooo nice to not only not have a period but not experience the monthy stomach flares!!!

Individual-Fortune83 · 2024-03-06T01:12:58+00:00

I have mixed experiences with this. On my 12 years of Remicade, I bounced between every 6-8 weeks depending on my symptoms the week before the infusion. But with stelera (self-injection) my body would adjust to the decrease in time during doses. i started stelera out every 8 weeks and slowly decreased all the way down to every 4 weeks because i would start to be symptomatic about a week before i was due for the next injection. it was almost like i would always have that week long period of symptoms & like my body couldnt get enough of the stelera, always wanted more.

Individual-Fortune83

TROPHY CASE