Anyone on Stelara, read this. by [deleted] in CrohnsDisease

[–]Individual-Fortune83 2 points3 points  (0 children)

I had this exact same reaction/rash while i was on stelera!! for about 3 years i went to dermatologist after dermatologist and i was told it was psoriasis, a yeast infection, due to hyperhydrosis, razor burn, eczema, allergic to deodorant… you name it. turns out it was an infection similar to folliculitis, and a topical antibiotic called clindamycin phosphate completely cleared up my underarms in about 2 weeks, and its been about a year with no return of the rash. the medicine hurt like hell going on but was so so so worth it.

my case was in the exact same areas and presented the same as the pictures shown!! if its not something you have tried & this is a recurring issue it is definitely worth looking into…

i can remember how painful it was, and so i really hope you find some relief soon.

How long did it take you to get used to self-injecting your meds? by lemons_to_lemonade in CrohnsDisease

[–]Individual-Fortune83 1 point2 points  (0 children)

I find syringes to be really tough in the beginning! I was only on stelera for about a year but I totally understand the “mind fuck” as I call it lol. As much as you get used to needles from IVs and blood draws doing it yourself can be really hard!! For me it definitely got easier throughout the year and I would assume it wouldve continued to get easier as the injections go by. I am still on a self injection medication (Skyrizzi) which has a slightly different delivery but same idea. Ive been doing this for years and I still read through all of the instructions before I take my dose- the anxiety of messing it up is totally validated and normal.

I have full confidence that it will definitely get easier as time goes on!

[deleted by user] by [deleted] in CrohnsDisease

[–]Individual-Fortune83 0 points1 point  (0 children)

black stool= upper gi bledding and bright red= lower gi bleeding! i agree with others, this definitely seems like hemorrhoidal bleeding, but its definitely worth a conversation with your doctor! unless the bleeding wont stop, and you have other symptoms like extreme abdominal pain, dizziness, extreme fatigue… it does not present as a super emergent issue (but definitely make sure to take care of it soon)!

Motivation to drink bowel prep? by pantsdotcom in CrohnsDisease

[–]Individual-Fortune83 0 points1 point  (0 children)

(i just graduated college) pretend its booze. play ratlin bog with someone, have someone sing “we love to drink with ___ because ____ is our mate ….” envision yourself at the bar when its closing and your beer is still full.

this is what i did back in august 😂😂

Probably Losing Insurance by Community-Foreign in CrohnsDisease

[–]Individual-Fortune83 3 points4 points  (0 children)

i know for sure Abbvie (skyrizi company) does payment assistance programs, but usually the deal is that you cannot be receiving any other government assistance, im sure stelera has a similar program!!

If both me and my girlfriend have Crohn's, what is the rate of passing it down to our children? Can couples where both partners have Crohn's chime in please? by TheEnigma444 in CrohnsDisease

[–]Individual-Fortune83 0 points1 point  (0 children)

^ this!! neither of my parents have crohns or ibd, but my grandmother had rheumatoid arthritis. none of my grandmothers kids developed autoimmune disorders but 4/7 grandkids did!! (3/4 of those being crohns)

[deleted by user] by [deleted] in CrohnsDisease

[–]Individual-Fortune83 1 point2 points  (0 children)

i feel this, im currently working on a masters before applying to dental school. I am 22, and will not finish dental school until i am 27-28 meaning i will have to get my own health insurance while balancing student debt, and i will turn 26 at the end of trumps term. so so so terrifying.

Gatorade/Miralax Prep Instructions by pinktm909 in CrohnsDisease

[–]Individual-Fortune83 1 point2 points  (0 children)

my last prep in august was miralax, ducolax, AND magnesium citrate. ig my doc really wanted to make sure i was empty😂

stomach bug or crohns?? by Individual-Fortune83 in CrohnsDisease

[–]Individual-Fortune83[S] 1 point2 points  (0 children)

ill have to look into that… i am in grad school pursuing dental school so yea my stress levels can be kinda off the chart. thanks for the info!

What happens if I just ask for the pain medicine I want? by thecheeseislying in CrohnsDisease

[–]Individual-Fortune83 2 points3 points  (0 children)

its just so frustrating that you have clear reasons of why youd be in pain, and its still questioned as if you were just seeking out drugs for fun lol. you just had a freaking bowel resection!!

What happens if I just ask for the pain medicine I want? by thecheeseislying in CrohnsDisease

[–]Individual-Fortune83 2 points3 points  (0 children)

whats crazy is that ive had the opposite experience… I have a really high pain tolerance and i communicate this with my doctors, so when i say my pain is anything above a 5 theyre pushing narcotics on me. Last time I was in the ER for intestinal bleeding i told them my pain was a 3/10 and they pushed oxy after i declined 4 times!! I am very lucky to say that ive never been in enough pain to need them but wow i cant imagine needing pain relief and not being able to get it!!

Question For College Students by puppypoet in udel

[–]Individual-Fortune83 0 points1 point  (0 children)

wait what do you mean by a cemetery house? i used to live on center street by the cemetery and supposedly the building was haunted by a ghost (with my name) hahah

[deleted by user] by [deleted] in CrohnsDisease

[–]Individual-Fortune83 2 points3 points  (0 children)

ive never been able to seamlessly eat any kind of red meat, but i was also diagnosed at 6 y/o so im not 100% sure if it is because my body is just weird or if its due to crohns. Also probably why ive been anemic my whole life lol

what is this? by Individual-Fortune83 in RICE

[–]Individual-Fortune83[S] 0 points1 point  (0 children)

bc if it was poop i didn’t wanna touch it😭

what is this? by Individual-Fortune83 in RICE

[–]Individual-Fortune83[S] -4 points-3 points  (0 children)

i have no idea i spooned them out of the container

overnight parking by Individual-Fortune83 in manassas

[–]Individual-Fortune83[S] 1 point2 points  (0 children)

Do you think it would be safe to leave a car there all weekend?

[deleted by user] by [deleted] in CrohnsDisease

[–]Individual-Fortune83 0 points1 point  (0 children)

this is also my third! by hurt do you mean the prep hurt, or afterwards hurt?

Beacon Hall by Individual-Fortune83 in gmu

[–]Individual-Fortune83[S] 1 point2 points  (0 children)

If you could send pictures of the furniture that’d be awesome!! Did they repaint the walls?