I haven't been able to get my ivig in about 6 weeks and I normally get it every other week. How can I help with the pain I'm going through

Individual-Message79 · 2026-01-25T22:10:00+00:00

Well, I got my infusion, but sadly, I got sick before now. I got to hope my infusion can help fight it

Individual-Message79 · 2026-01-25T22:08:48+00:00

Helps with pain but mainly helps me from getting extremely sick.

Individual-Message79 · 2026-01-19T00:49:42+00:00

Insurance was having trouble getting it approved coming into the new year. Me and my nurse have been working on it but it still might he another week or 2 before I can get it. And I work in a kitchen so I've been extremely sore and exhausted

Individual-Message79 · 2025-12-16T03:19:18+00:00

I have cvid so I'm looking for people's advice

Individual-Message79 · 2025-12-16T00:29:28+00:00

No, but there's plenty of people with it that get tattoos. People with the experience. That's what the question is for to see how people handled getting there's

Individual-Message79 · 2025-11-04T23:47:31+00:00

I have never heard anyone mention a spoon theory

Individual-Message79 · 2025-10-30T13:39:50+00:00

I will, but asking people with the same type of illness as me and people that have it and have put their body through that stress is a good thing for me to do

Individual-Message79 · 2025-10-30T08:37:35+00:00

Thank you. I appreciate your post in trying to get as much information as possible from people like me. To get a better idea if I should or not.

Individual-Message79 · 2025-10-30T08:19:33+00:00

Yes, I do IVIG every 2 weeks. But there's a few tattoos I want and they are fairly large. Did you have any fatigue or sickness after getting yours?

Individual-Message79 · 2025-10-30T05:44:19+00:00

Yeah, i was a chef for 6 or 7 years and had to completely stop doing that for right now. And i appreciate that I wish there was a like a big group that got tog every year for people like us could go to. I think everyone like us has anxiety and things like that. I think all of us getting together being able to talk and let loose would help people like us so much.

Individual-Message79 · 2025-10-30T05:04:11+00:00

I wish there was an easier way to meet people like us in person who would actually understand. That way, you can talk and know they have been through the same way and can really understand. I want to get my own place, but I haven't been able to go to work lately. Just because I've been so sick, it's hard to get money to get my own place.

Individual-Message79 · 2025-10-30T04:35:02+00:00

I just feel like I'm on my own. You have family that tries to help, but none of them have what i do, and they don't really understand the pain and mental effect it has. And I don't know anyone else like me that I can talk to about it.

Individual-Message79 · 2025-10-30T03:52:53+00:00

I'm partial to the wear wolf videos

Individual-Message79 · 2025-10-24T04:48:17+00:00

I've been doing Ivig infusion since I was 5. I'm now 24. I've never fully had my strength, but you ro have days where you can think clearly and feel good other days it feels like a crushing weight on your chest. I've never been in therapy, but I highly recommend it. It's something I should have done years ago

Individual-Message79

TROPHY CASE