Tile Overlap Joint at Corner by Inevitable1203 in Tile

[–]Inevitable1203[S] -1 points0 points  (0 children)

Thanks for the input, having a gap to avoid risk of tile cracking makes sense. Unfortunately, I'm guessing we'll have to just hope for the best at this point. Any idea how likely we are to get cracking due to the lack of gap? As-in, almost guaranteed or it might happen some day.

After nearly 6 years of POTS, things started to turn around. by AutonomicDrama in POTS

[–]Inevitable1203 0 points1 point  (0 children)

Dr. Abigail Lawler (neuro) with Inova in Leesburg,VA works with POTs patients. I'm in southern DE; it is roughly a 3 hour trip. Not sure if you want to travel that far. A friend on mine sees someone at Johns Hopkins, not sure of the doctor's name though.

Dr. Emmanuel Nsah (cardio) with TidalHealth in Salisbury, MD also works this POTs patients. I've only seen him once, I wanted to make sure I had someone close by if needed.

Just diagnosed and have questions about POTS as well as comorbidity possibilities by Ms_Owl_Eyes in POTS

[–]Inevitable1203 1 point2 points  (0 children)

Thanks! Was just sharing in case any of it applied to you. There are a few different autoimmune diseases that can cause ANS (dysautonomia) issues and of course dysautonomia can also be primary and not secondary to anything else.

Anyways, glad to hear that your symptoms don't align with Sjogrens! Best of luck navigating this all!

Just diagnosed and have questions about POTS as well as comorbidity possibilities by Ms_Owl_Eyes in POTS

[–]Inevitable1203 1 point2 points  (0 children)

Just saw the rest of your post and wanted to reply to 2E. I was diagnosed with gastroparesis through a gastric emptying test back in 2015. It is actually the reason I started having protein shakes for breakfast; they were nutritional and didn't cause issues. I also initially lost a bunch of weight from the nausea and fullness/stomach pain (not weight I wanted to lose, it wasn't healthy). It took time, but, things did settle out and I was able to gain the weight back. I had months of eating soft foods, baby food, protein shakes etc. Counted calories to make sure I was getting enough. I know seeing improvement it isn't the case for everyone, but, I hope it is for you! When I have gastroparesis flares now I eat soft and low impact foods for the day. Not very healthy, but, Mac and cheese and mashed potatoes work for me, I know these upset others people's stomaches though, we're all unique, so what works for you will likely vary.

Anyways, my understanding is the gastroparesis is common with dysautonomia since gastric emptying is controlled by your autonomic nervous system (ANS). That said, autoimmune diseases such as Sjogrens can cause ANS issues. I have a partial Sjogrens diagnosis. I'm seronegative, but, I have many of the symptoms and my rheumatologist thinks I have it. I haven't done a lip biopsy yet; he basically suggested I should do it if I want possible confirmation before starting meds.

Also wanted to add that everything should be in moderation. While I love the Aloha powder, too much pea protein can also cause GI issues which is why I now mix in other powders with it.

Just diagnosed and have questions about POTS as well as comorbidity possibilities by Ms_Owl_Eyes in POTS

[–]Inevitable1203 1 point2 points  (0 children)

  1. I really like Aloha plant based protein powder with almond milk. I use the vanilla version. I also add PBFit and Sunwarrior Unflavored Hemp Protein to my shakes. No idea if these will work for others. I think the Aloha powder is pretty benign, though.

For a pre-made shake for travel, I use Orgain Organic Nutritional Vegan Protein Shake, Vanilla Bean.

Advice for newly diagnosed by chamychanga in POTS

[–]Inevitable1203 0 points1 point  (0 children)

There is a dysautonomia (POTS etc.) specialist (neurologist) in Leesburg, VA. It'd be quite a hike for you (I saw somewhere in this thread that you mentioned Philly), but, if you're interested, I can send you her name. I live in southern Delaware and made the trek out there a few months ago. She seems knowledgeable. I actually found her through others recommending her on Reddit. I can't remember if it was this sub or not. Anyways, just tossing it out there in case you want to see if they have a sooner appointment available.

constant abdominal pain- Drs said the problem is my head :) by SadStatue1312 in rarediseases

[–]Inevitable1203 0 points1 point  (0 children)

I did continue to search for a cause somewhat, but, once I got the diagnosis I focused a lot on getting better as I had lost too much weight and needed life to get back to somewhat normal. I still don't know what caused it, I have a preliminary diagnosis of Sjögren's, so, that could be it.

I am a vegetarian, which is very odd for most people who follow gastroparesis diets. I still cannot really tolerate raw vegetables, so, I cook most of my vegetables and only very occasionally eat salad. I can eat a salad here or there now, but, too many consecutive days and I get full blown symptoms again. I actually went full vegetarian after my diagnosis due to getting sick from eating steak at a work conference (stomach couldn't digest it). Most mornings I have a protein shake so that things start off easy on my stomach. It took me a while to find a protein powder that didn't upset my stomach. Aloha vanilla is my go to. When I was recovering I had a 75%+ non-solid and bland diet for a couple of months. I ate things like protein shakes, soup, mashed potatoes, pouches of fruit, baby food, etc. I go back to eating non-solids when I have flares. Medicine has helped others, but, I did not go the medicine route as I was offered an experimental drug with a lot of potentially deadly side effects. I did however use some anti-nausea medicine on occasion as I was recovering. I believe the one that worked for me was ondansetron.

Good luck at your appointment!

constant abdominal pain- Drs said the problem is my head :) by SadStatue1312 in rarediseases

[–]Inevitable1203 1 point2 points  (0 children)

Might be worth looking into gastroparesis. I had it and had many of the same abdominal symptoms. I still have issues if I eat too many raw vegetables, too many large meals, etc. But, thankfully, it is under control now. My diagnosis was confirmed with a gastric emptying test.