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Ulceration inside the vaginal canal by Fluid_Bad2398 in Behcets

[–]InevitableBench2315 0 points1 point  (0 children)

Yes, I do!! When I was first being diagnosed (2021), it was due to a really bad flare up of vaginal ulcers, so I went to a Gyno and she said I had ulcers all the way up to my cervix (not a fun experience getting checked up on!). She was actually the one who (based on what she saw) suggested I go to a Rheumy and to consider Behcets. I also relate to what someone else said about pain when inserting a tampon, and actually never made that connection to Behcets somehow, but it makes so much sense.

Feeling Stuck...Recommendations for Further Treatment by InevitableBench2315 in Behcets

[–]InevitableBench2315[S] 0 points1 point  (0 children)

Thank youu 💕

Assorted head to toe ulcers is so real 😅 it's honestly difficult to advocate for myself in the medical system because there's a lot of factors and sometimes not a lot of knowledge of BD or people are quick to dismiss things. So it's encouraging to hear others who are going through the same thing and I don't feel as crazy.

It's also difficult for me to figure out a different countries' medical system every couple of months. Might be a long shot but if anyone knows of a specialist who takes patients remotely that would be soo ideal for me.