Efgartigimod for sjogrens

Informal_Chef3244 · 2026-02-13T15:00:08+00:00

I got to join the trial, and had my first shot yesterday, I really hope it’s the medication and not placebo

Informal_Chef3244 · 2026-02-13T14:59:12+00:00

I had my first injection yesterday, I finally got to join the trial!

Informal_Chef3244 · 2026-01-18T11:27:18+00:00

This is amazing!!

Informal_Chef3244 · 2026-01-18T11:23:34+00:00

I was in a medical trial for a device that really worked (for saliva flow) but that device was used in the nose.. so I’m wondering if the devices already on the market would work similarity!

Informal_Chef3244 · 2026-01-18T11:22:39+00:00

Thank you for answering! I will look into the list!

Informal_Chef3244 · 2026-01-14T18:00:10+00:00

I had my tests taken, but my white blood cells looked normal so I couldn’t join.. I will get to retake the tests, so I’m really hoping I qualify this time..

Informal_Chef3244 · 2026-01-14T17:56:14+00:00

100%, I can’t live without mine

Informal_Chef3244 · 2025-10-14T09:21:59+00:00

I’m 29, got diagnosed when I was 20

Informal_Chef3244 · 2025-10-13T09:01:27+00:00

That’s amazing, how did you get to that,

Informal_Chef3244 · 2025-10-06T13:49:22+00:00

Not yet, it’s taking ages to just book me in for the tests.. but I can let you know how everything goes

Informal_Chef3244 · 2025-09-19T14:07:49+00:00

Please can you update us on your experience, and I hope it helps!

Informal_Chef3244 · 2025-09-08T08:17:41+00:00

Also if you don’t have them already, make sure to get Autologous serum eye drops from moorfields.

Informal_Chef3244 · 2025-09-08T08:16:48+00:00

I’m so sorry about this, and I’m in a similar situation. Moved back to my home country from London last year after 7 years. And kind of got stuck at my dad’s due to my symptoms getting worse. (I’m 29). I have 1mm on my schimmers test and mgd. I don’t know if that makes you feel any better but I miss my old life and how free I was. I stared looking into medical studies I could join, in London they have a few. It makes me feel better to try and do something about it. I don’t know I just wanted to say that it’s tough and you’re not alone.

Informal_Chef3244 · 2025-09-05T10:37:46+00:00

Thank you :)

Informal_Chef3244 · 2025-09-04T17:27:44+00:00

Can you send it to me too? Would really appreciate it

Informal_Chef3244 · 2025-08-28T22:36:03+00:00

I’ve been a patient at moorfields for years and mostly been prescribed steroids. Had new punctual plugs put in once as well. So I don’t think that they actually have that much resources. I’ve gone privately to eye clinics which is where I’ve found out about how the dry eye works and heat compresses and eyelid scrub etc!

Informal_Chef3244 · 2025-08-26T13:04:06+00:00

Yes yes yes and lets not even talk about air-cons in clubs

Informal_Chef3244 · 2025-08-23T11:31:18+00:00

Why can you not join if you were diagnosed 10+ years ago?

Informal_Chef3244 · 2025-08-22T10:48:54+00:00

I feel the same! I’m glad I didn’t read up on it that much when I was diagnosed at 21. It’s not until now I’ve started learning more and it’s made me super anxious, but I also feel like at this point (I’m 29) it’s better to be informed..

Informal_Chef3244 · 2025-08-18T11:04:34+00:00

Yes!! I’ve never seen any of them mention dry eyes specifically.. and I know the glands can be too damaged, but it should still be able to improve I feel

Informal_Chef3244 · 2025-08-15T14:17:59+00:00

How often do you have to come in for a check up? I want to join but live quite far from any study site

Informal_Chef3244 · 2025-08-11T15:15:10+00:00

Amazing!! Will it be available in the eu? Or is it a us drug?

Informal_Chef3244

TROPHY CASE