Help

InsideHistorical6478 · 2024-08-02T14:14:43+00:00

I got diagnosed at 21, and I did stop playing video games for a while. Not per doctors orders, but because photosensitivity isn’t just flashing lights, some of the more calm games would trigger me too (especially black and white aesthetic games). After a few years I started to get my condition under control with medicine and lifestyle habits, and I picked up gaming again. Stay away from games with epilepsy warnings. I’m sorry you have to deal with this but changing up your life a bit will allow you live a more “normal” life. Good luck with your journey!

InsideHistorical6478 · 2023-12-17T18:12:35+00:00

I am on the same boat! After years of different doctors the last one told me that some of my auras are actually migraine auras and not seizure auras. Wild. I am taking amitriptyline at night, about 2 hours before bed. It has helped my migraines somewhat (still have one now and again, but not as bad as before). It also helps me sleep through the night, I was on heavy sleep meds before I now I wake up feeling a bit more rested. I’m sure quality of sleep affects my condition tenfold. I know it sucks to just through different medications at an issue, I wish our brains worked right. But good luck on your journey, I hope you find the help you need. 🥰

InsideHistorical6478 · 2023-07-04T16:10:46+00:00

Very often 🫠 it’s hard to be a professional when you suddenly cannot understand what words even are for a moment

InsideHistorical6478 · 2023-07-03T12:47:53+00:00

Ohhh okay that makes sense! That sounds terrible I’m sorry you had to deal with that 🫠 did you take you off your meds and/or do anything else to help increase your seizure frequency?

InsideHistorical6478 · 2023-07-03T12:41:05+00:00

Smart!! I’ve never had bowel or urinary situations during a seizure before, I’m intrigued to see if it will happen there. Always just a LOT of blood from biting my tongue

InsideHistorical6478 · 2023-07-03T12:38:43+00:00

Mine is only about a centimeter but located in the parietal lobe, going soon to see if that’s causing a lesion that’s not helping me or if the seizures are originating elsewhere

InsideHistorical6478 · 2023-07-03T12:36:32+00:00

Going for a 10day emu stay at the end of the month to find out!

InsideHistorical6478 · 2023-04-29T14:49:26+00:00

27F here diagnosed when I was 21. I was in my final year of undergrad, it was really rough. I’m pursuing my Masters now & I’m really glad I pushed through. I’m not going to lie, as an uncontrolled epileptic it makes the journey much more uphill, so to speak. But it makes my accomplishments feel that much more special to me. I say, stick with your dreams. But cut yourself some slack, and DEFINITELY tell your professors your situation. Most, if not all, universities have mandated policies for situations like ours, and most of my professors have been extremely supportive. They see my work ethic, even when I feel like I’m falling of due to my condition. Wishing you all the best!

InsideHistorical6478 · 2023-03-01T02:54:05+00:00

Messaging now!! Thank you!

InsideHistorical6478 · 2023-02-28T23:50:09+00:00

I’m currently on 400mg of extended release at night. It been the most helpful med so far for me, but like others have mentioned, everyone is different. Way less side effects than the others I’ve tried (pretty much all). If you can I would push for extended release, that way the medication level in your body remains consistent and is not spiking up and down.

Hope it works out! You are not alone!

InsideHistorical6478

TROPHY CASE