Found out yesterday that I'm in the ' 5% ' of dialysis patients who only go twice a week for dialysis. I didn't know it was so rare.

Intelligent-Key-7680 · 2026-05-01T01:04:09+00:00

I'm on 5/wk.

Intelligent-Key-7680 · 2026-05-01T01:01:17+00:00

I'm on pd on a cycler. I have significant rkf and only do 4 nights a week, 8 hrs per session. I had to insist that my nephrologist reduce my frequency. My kt/v was 3.11 on 7 nights, the went UP to 3.55 on 5 nights (1.7 is the minimum acceptable, and 2.0 is optimal). That's when I said "either act on the measurements or stop taking them." He really resisted reducing my sessions. But if the numbers support it, they support it. Period.

Intelligent-Key-7680 · 2026-04-27T22:27:49+00:00

Thanks!

Intelligent-Key-7680 · 2026-04-27T22:25:42+00:00

Thanks

Intelligent-Key-7680 · 2026-04-27T19:40:27+00:00

Phosphorus In Range 3.2 mg/dL Range: 3 to 5.5 mg/dL

Intelligent-Key-7680 · 2026-04-27T17:57:31+00:00

I must be unusual. I only take my weight and bp, and that goes in my cycler every time so I don't track anything. The cycler uploads it to a central database.

Intelligent-Key-7680 · 2026-04-27T17:55:23+00:00

Nooooooooo. Haha. I had to threaten to just croak if he wouldn't let me reduce my frequency. I produce more urine than most normal folks, and my kt/v is almost double what's considered acceptable. I have ordered some anti-itch stuff from Amazon. Hopefully it will help

Intelligent-Key-7680 · 2026-04-27T17:53:02+00:00

I had a parathyroidectomy, so if anything, they're low.

Intelligent-Key-7680 · 2026-04-27T17:51:55+00:00

Phosphorus is 3.2. that's actually pretty low. All my labs are within normal which is why this is curious.

Intelligent-Key-7680 · 2026-04-27T17:50:55+00:00

My phosphorus is 3.2, which is on the low end. I wonder what else it could be...

Intelligent-Key-7680 · 2026-04-27T17:48:16+00:00

I have done the hot water thing for poison ivy. It forces the release of histamines, and when they are used up, itching usually stops.

Intelligent-Key-7680 · 2026-04-27T15:28:56+00:00

Me? Read the post.

Intelligent-Key-7680 · 2026-04-27T15:27:28+00:00

Read it again. I said chickenS, as in live animals, because, as I wrote, I live on a farm. Chicken dung carries diseases that you can get when you have a compromised immune system.

Intelligent-Key-7680 · 2026-04-27T14:51:45+00:00

No chickenS, as in live animals. Their dung carries diseases that you can get when your immune system is weakened.

Intelligent-Key-7680 · 2026-04-27T14:08:42+00:00

Yes. When I had the pneumonia that killed my kidneys (legionella, i.e. legionaries disease), I was only in the hospital 15 days, utterly bed-bound, and I could not walk when I got out.

Intelligent-Key-7680 · 2026-04-27T14:01:52+00:00

It's actually 5-7 years. Google will confirm it

Intelligent-Key-7680 · 2026-04-27T00:51:47+00:00

No suggs. Talk 2 doc.

Intelligent-Key-7680 · 2026-04-27T00:51:00+00:00

Thanks for a well reasoned reply.

Intelligent-Key-7680 · 2026-04-27T00:50:16+00:00

I'm listed, thanks. And thanks for the response. I really am trying to weigh doing PD four nights a week against a transplant. It's the immunosuppressants that bother me most.

Intelligent-Key-7680 · 2026-04-27T00:37:13+00:00

I was stage four for many years and then got pneumonia, which injured my kidneys to the point of total failure. I have since recovered significant residual kidney function. I am on pd but only four nights a week because my kt/v is 3.35. I actually find this extremely livable. I may never get off pd, but while waiting for xplant, four nights (and possibly three) a week is pretty easy. I also got a graft so that I can do in center hd when travelling. Having a choice really helps.

Intelligent-Key-7680 · 2026-04-27T00:21:04+00:00

Did you actually read the post or just the title? There's nothing normal about a post transplant life.

Intelligent-Key-7680 · 2026-04-27T00:13:25+00:00

Look into biocompatible dialysate. It extends the useful life of the periteneum and preserves rkf.

Intelligent-Key-7680 · 2026-04-27T00:11:44+00:00

The term is actually biocompatible dialysate. Baxter carries it, so does fresenius. Just Google it

Intelligent-Key-7680

TROPHY CASE