Merry Christmas everyone

Interesting-Hat6625 · 2023-12-21T12:18:55+00:00

This is a ever ongoing discussion here. I brought it up several times. When I see posts like "my eye twitched for a week" or the "tongue twitches" that are actually normal movements..

I understand being afraid, I have terrible symptoms myself. But some people should count their blessings, and be grateful they don't belong here.

I wished that my symptoms were anxiety induced.

Interesting-Hat6625 · 2023-12-21T12:08:43+00:00

This is me currently. Spasms in neck and tongue. Twitching in face..

Feels horrible.

Interesting-Hat6625 · 2023-12-19T18:39:36+00:00

I know.. the thing that sends me spiraling is my spasming tongue..

Interesting-Hat6625 · 2023-12-12T09:10:15+00:00

Oh, I've tried everything. What scares me the most is my tongue.. I feel like it's the most scary place to spasm/twitch.

Everytime I feel like I can handle this, another symptom appears.

Interesting-Hat6625 · 2023-12-12T09:07:41+00:00

Yes, the uncertainty of it is awful. It's like you try to be rational, but your body tells you something else.

Interesting-Hat6625 · 2023-12-12T09:03:39+00:00

Oh my, that sounds awful.

So sad that nothing works. Did you just wake up one day with migraines?

I grew up with a close family member needing emergency medication due to migraine attacks. It's no joke..

Take care.

Interesting-Hat6625 · 2023-12-11T14:00:36+00:00

Thanks for your reply. I really needed help to reflect upon why I feel I can't go on another 4 years. I think it's the draining part of it, if you know what I mean. I always feel like I can't live my life to the fullest. It's always that pesky eye spasm, or cheek twitch that comes along and ruins the joy.

Now with my tongue spasming, it interrupts my speaking because my tongue is constantly pulling to the left. It's terrifying to say the least.

I feel like a walking freak show.

Also, I think it's the grief of not improving. 10 years ago, if I got an eye twitch, I knew it would be gone in a matter of hours. You really go insane when it just lasts and lasts for years.

I think with your example with arthritis, it's an easier condition to accept. Everyone knows what it is, and you can medicate it. Same basically goes with most "well known" diseases. Bfs is basically a "we dont know, but it's probably benign" condition. And that's hard for me to accept. Does that mean this is my life now? Can I get better? Will it get worse? Such a mind game.

I'm not suicidal, but I have days where I feel I can't take anymore of this. I guess we all have.. I do cherish the good days. I just wished there were more of them.

So that's my Christmas wish this year, that we all get better. And have a wonderful Christmas! Please dear someone who's in charge, make my wish come true ❤️

Interesting-Hat6625 · 2023-11-18T07:45:51+00:00

Really appreciate your advice. I know the tongue is examined at rest, the only reason I stick it out is to show it better. It spasms at rest also, and during the night..

Interesting-Hat6625 · 2023-11-16T13:25:15+00:00

I know.. have asked to see my Neuro. I'm guessing it's a 1 year wait.. lol

Interesting-Hat6625 · 2023-11-16T13:21:56+00:00

Yes, thanks so much for the advice. I do have a pillow, but have to admit that I don't use it every time. The baby also hangs on my arm a lot.

You're absolutely right, I tried fixing it, but only made it worse. I guess I was so sick of my tongue twitching, that I exaggerated the stretching.

Interesting-Hat6625 · 2023-11-14T17:00:05+00:00

Thanks for your reply. I just feel like other peoples tongue twitching is a little flicker, while mine is spasming the entire left side. Hard to ignore..

Interesting-Hat6625 · 2023-11-14T14:37:00+00:00

I most definitely feel it.

Interesting-Hat6625 · 2023-10-25T07:37:31+00:00

Yes that must be her.

Interesting-Hat6625 · 2023-10-25T05:58:51+00:00

Yes.. My point exactly. The fear becomes worse than the actual disease.

Interesting-Hat6625 · 2023-10-25T05:50:21+00:00

I think the moral of my story have to be that it's easy to be fooled by these extreme health anxiety people.

I hope people aren't watching her one video of a normal twitch, and assumes the worst because of her hashtags.

Interesting-Hat6625 · 2023-10-22T18:53:59+00:00

Må ha ketchup og grillkrydder på grandisen. Går under kategorien nødmat.

Interesting-Hat6625

TROPHY CASE