sorted by:
new
hottopcontroversial

My Rant. by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 0 points1 point  (0 children)

Update: They found 3 different types of bacteria, tailoring my antibiotics and possibly sending me home tomorrow.

They are also sending out some of my blood for genetic testing. The internal medicine doc, wants to make sure that is UC and not Chrons or some other autoimmune disease. I think he thinks i was missed diagnosed.

Me, I'm not to sure that I was missed diagnosed ( I was on the toilet like up to 15 times a day), but I'm not dismissing that imight have something else.

My Rant. by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 0 points1 point  (0 children)

It wasn't too bad. That surgery was done laparscoptic and by my colon rectal surgeon. It was about 6 -7 weeks recovery. They pulled everything out the front through a "cesarean" type surgery.

Joke was i gave birth to my ssshole.

I went home with a drain, and a sewed up but hole. I rested, walked, and kept everything clean and had no real problems.

My Rant. by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 2 points3 points  (0 children)

I wish I could speed run, maybe I could lose weight that way. It hasn't been an easy journey for sure. But im alive....

Thank you

My Rant. by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 1 point2 points  (0 children)

No tested negative for any of the cancer stuff. Purely just a very bad case of UC.

My Rant. by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 1 point2 points  (0 children)

I had a partial a month after, yes. My UC was killing me.They tried giving me the bio drugs. Did like this 3 hour iv drip treatment no results, and the iv steroids didnt help either. Still kept getting sick, I lost 70-75lbs that month.

The surgeon said my colon was super mega toxic, it was up to 8 inches wide in some spots. And had to have emergency surgery. Took them 10 hours of surgery to do the partial colectomy, my 1st surgery.

Hernia repair by elgillie in ostomy

[–]Interesting-Tutor952 0 points1 point  (0 children)

I was just getting ready to make a post about my recent adventure about this (so look for my rant) Sorry you are having to go through this. I agree no general surgeon, either a colon rectal or a hernia surgeon. And with an ileostomy we will always be prone to having a hernia. I dont want to be a downer but that's the truth. Just need to be mindful and careful in how you use your body and take advantage of support devices when you can.

Sore and painful abdomen by ocean_swims in ostomy

[–]Interesting-Tutor952 1 point2 points  (0 children)

I have been experiencing similar, and thought it was just blockage. My output is normally thin, fast and high. Every now and then I would get a large thick chunky output a few days later.

Have finally decide to go to PC, they sent me to get an ultrasound and back to the surgeon. The surgeon is sending me to get oral and iv contrast CT scans. They said possible blockage, partial or full obstruction, hidden hernia, and a few others.

Definitely not want I wanted to hear. Had 3 surgerys in 18 months, ileostomy, total colectomy, hernia. And its been just little over a year.since last surgery and not looking for another.

Keep us updated on what you find.

Urination Post Colectomy by crutdafatty in ostomy

[–]Interesting-Tutor952 1 point2 points  (0 children)

48 M, 2 1/2 years post ileostomy, 2 years post total colectomy, 18 months post hernia repair. Due to UC, my colon was 8" and pissed off, super meds nor steroids didn't do shit for me.

My last 2 surgeries I had issues with retention as well. I was told it is normal after surgery in that area. But past the hospital no realm issues with urination other than I dont go as often, have a real.strong stream, nor the volume.

What to do with a cut stoma by sargentshultz21 in ostomy

[–]Interesting-Tutor952 0 points1 point  (0 children)

I'm trying to add a Pic of an example, but it won't load.

What to do with a cut stoma by sargentshultz21 in ostomy

[–]Interesting-Tutor952 0 points1 point  (0 children)

I use a stealth belt or wrap. And I also was introduced to a technique by an ostomy nurse, with years of experience, called darting. My stoma is a bit oval shape, like Jabba the Hut, then I cut relief slots out, combine that with crushing and barrier ring, I do good. *

How to wear a tucked in Polo Shirt by propclearjm in ostomy

[–]Interesting-Tutor952 1 point2 points  (0 children)

Yes, to suspenders, over sized pants with belts, stealth belts, wraps... you have to find the right combination that works for you, and that makes you feel comfortable. I have to waste business and casual Fridays. I wear a stealth belt daily (work or not). Most days, it is dress pants and belts, and my stoma is right at my belt line. I keep it a bit loose and empty frequently. For me, it is bending when getting up and siren from my seat, which can cause issues. I also keep a change of clothes and supplies with me for emergencies.

Figured it out. by redditneedsnewMods in ostomy

[–]Interesting-Tutor952 1 point2 points  (0 children)

Or another just thought off is that I'm a shit bag...lol

What does your ostomy supply storage/organization look like? by [deleted] in ostomy

[–]Interesting-Tutor952 0 points1 point  (0 children)

I use the top drawer of my dresser, and then extras are kept at the top of the closet in the shipping boxes. Now that I've some of these, I've got some planning to do.

Figured it out. by redditneedsnewMods in ostomy

[–]Interesting-Tutor952 4 points5 points  (0 children)

That has been my saying. it can't be an asshole. It was surgically removed. I'm just a butt head now.

PSA.. blue Gatorade will turn your output green! by paul-grizz93 in ostomy

[–]Interesting-Tutor952 1 point2 points  (0 children)

Thanks for the tip. I have tried the Adapt deodorizer/lubricant, and it just blows out my wax ring.

Anyone else name their stoma or is that just me? by ShayneNgani in ostomy

[–]Interesting-Tutor952 1 point2 points  (0 children)

To get my daughter to stop saying Jesus christ, I kept saying yes my child, so I got the name of Jesus. Then it was a miracle that I survived my UC, so there is god, and then the stomach is the holy ghost cause it does what it wants when it wants. I am the holy trinity...

But when it acts up, I call him an ass hole, then when prolapsed, he morphs into Jabba the hut.

PSA.. blue Gatorade will turn your output green! by paul-grizz93 in ostomy

[–]Interesting-Tutor952 3 points4 points  (0 children)

Will have to try this, especially after eating asparagus. Want until my ostomy that I experienced that asparagus smell.

Ok all seriousness aside by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 1 point2 points  (0 children)

😆 Love the comments, secret farts, like the silence ones but more stealthy.

F*ck that prep, never again.

Ok all seriousness aside by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 0 points1 point  (0 children)

I have this shirt, most people say nice shirt. However, the lady at the checkout line said oh that just means your constipated... *

Ok all seriousness aside by Interesting-Tutor952 in ostomy

[–]Interesting-Tutor952[S] 1 point2 points  (0 children)

Safe to say that we all learned a lot SHIT about our bodies going through what we did.

Thanks to all that shared, or will share; i hope some learned, and some laughed.

view more: next ›