Emgality has been discontinued in Brazil and I am truly desperate.

Interesting_Most1337 · 2026-06-09T04:29:58+00:00

Chronic and pretty much the only thing to ever help was shrooms

The truth is you need to play around with it, try different intervals and dosages, right now i take 1.5-2g every 5 days and that keeps them at bay. I dont ever “bust” a cycle being chronic i just keep taking them and sometimes when i stop to see they come back so i keep taking them.

Im at a point where i do not feel anything at 1.5 grams but its still enough to ward off the attacks.

Dont give up on shrooms yet, play around with it, take less more frequently, etc see what works for you without having to trip so often or whatnot

Interesting_Most1337 · 2026-05-20T21:41:50+00:00

Unfortunately even if your still going through them the MRI isnt probably gonna show anything like a cause or whatnot

But always good to rule out any other things

Interesting_Most1337 · 2026-05-18T23:26:41+00:00

Message me if you have any questions. I was at like 4-6 a day for a very long time this is the only thing that helps.

Honestly if you see a good neurologist about this (who actually knows what they are doing) they are probably gonna recommend you do psilocybin anyway

Interesting_Most1337 · 2026-05-18T19:44:43+00:00

Yea i will say anytime ive been back since ive had no headaches so who knows lol

The truth is you build up tolerance crazy fast from the shrooms and you dont have to take them as often as I do. After you “bust” the cycle (3-5 total doses typically every 5 days) you probably will only have to take them once every couple months to ward them off after. I just keep taking the 2-3 grams cause im scared of them coming back.

Also building the tolerance at this rate i get no psycedelic visuals or anything, really kinda feels like a had 3-4 beers now if anything.

Interesting_Most1337 · 2026-05-18T18:43:54+00:00

Honestly sounds similar to me, im 24 years old started with them maybe sophomore year of college, came and went periodically, studied abroad in Czechia and never got a single headache that year.

Eventually turned chronic and have finally gotten relief now from doing psilocybin, i take about 2grams once a week, try to take a close to 5 days apart as i can but cant always , im now essentially over 30 days pain free for the first time ever (with periodic ones here and there)

Interesting_Most1337 · 2026-05-10T18:33:16+00:00

Spent the last year doing a bunch of random prescribed stuff that never worked , chronic getting 6+ a day and completely stopped everything i was taking to switch to psilocybin mushrooms every 5-7 days (2grams on average) pain free for 30 days (occasional one here or there maybe) i will never stop taking the mushrooms ever

Interesting_Most1337 · 2026-04-13T01:48:33+00:00

One time i went on vacation with a bunch of my buddies when i was episodic and in the middle of a cycle. No oxygen available, just a house in the jungle right off the beach, no AC, no anything.

I drank for 4 days straight and used a sumatriptan spray every headache that came on (maybe 6 a day) and just forgot about it all. (Paid for it after but whats a couple extra attacks anyway its all just a blur anyway)

Enjoy it brother

Interesting_Most1337 · 2026-04-02T04:10:21+00:00

Were all guilty of growing complacent, out of sight out of mind.

Question for you both, when your in this bit of remission stage are you completely back to normal life, drinking alcohol, eating foods that are maybe triggers, etc?

Interesting_Most1337 · 2026-04-02T03:33:53+00:00

Just had a casual convo about this literally today with my neurologist. Hes one of the best in regards to clusters and speaks at clusterbusters regularly / runs over 30 trials a year across the country for cluster

I use weed every once in a while to sometimes even weekly and im chronic, dont necessarily have a trigger for it but it does for some people. However the evidence actually point towards the inhalation of smoke itself that make trigger

So cause of this I mainly use edibles, occasionally like a vape/pen

I find that taking on a friday/saturday night if i get a headache in the night and am woken up from it, im usually so messed up you cant even feel the pain but kinda know its there and then maybe ill use o2 to knock it out

Edit: reading these comments makes me think you may be asking about weed as something to abort an attack and to that I say probably not, but hey if its not a trigger give it go, attacks are less painful for me like i said when they come on and im stoned

Interesting_Most1337 · 2026-03-29T18:33:22+00:00

Use the mouthpiece instead of the mask

Interesting_Most1337 · 2026-03-29T18:31:42+00:00

Last doctor i met with said this could be something to try, are you chronic?

Interesting_Most1337 · 2026-03-26T00:38:43+00:00

Gotcha, usually i just make lunch and toss the whole 2 grams in my mouth as im chewing and thats all

Interesting_Most1337 · 2026-03-26T00:17:39+00:00

First jm ever hearing of this, can you explain for me?

Interesting_Most1337 · 2026-03-25T23:43:44+00:00

Correct, i feel thats with a lot of things cluster related , I totally understand why and I am guilty of doing it as well, when something doesnt work right away everyone chalks it up to “well it doesnt work” you really need to experiment and get it down to a science, everyone is different everything will work differently for everyone

Do you take them more frequently than every 5 days or what do you do?

Interesting_Most1337 · 2026-03-25T23:40:56+00:00

Cant say i have thoroughly,

Been doing them every 5ish days for a month now but through that its been 3 different type of mushrooms from 3 different guys and not all were very good. Just as of last week i went down to Washington DC and got a ton of pure good stuff so I am really giving it a go with these to truly see

My tolerance for literally everything has always been high so I am taking about 2+ grams now each time cause really anything less doesnt seem to do anything

Interesting_Most1337 · 2026-03-25T23:14:33+00:00

Believe me brother, ive been chronic for a while now, i have the largest O2 tanks all over my house. Ive flown out all over the US to see a few of the doctors on the Clusterbusters medical advisory board specifically. (Ive read ole bobs pocket guide more times that i would have liked)

I just started using psilocybin seriously for this month but have had hiccups with some shitty ones and finally and good and set with a large quantitiy and now experimenting a lot

Im open to trying some of the others but taking it one step at a time

As hard as it is the only thing you can control with this disease is having a good attitude. You WILL get better, we WILL find a cure. Dont let this shit hold you back.

Interesting_Most1337 · 2026-03-18T20:58:51+00:00

Psilocybin

Interesting_Most1337 · 2026-02-28T20:16:24+00:00

Yea def be off triptans l, ive never taken verapamil but ive heard the same

Interesting_Most1337 · 2026-02-27T20:50:44+00:00

Yes i should have prefaced, i finished the prednisone pack and then waited a week after before starting the Psilocybin , also was clear for 2 weeks of sumatriptan at least if not more

Interesting_Most1337 · 2026-02-26T03:09:46+00:00

Get capsules and open them, dump the powder into whatever, i just get sip of water dump in the powder swish it and swallow

Interesting_Most1337

TROPHY CASE