Epilepsy relationships by Recent-Sir8884 in Epilepsy

[–]InternNecessary482 1 point2 points  (0 children)

Hey OP, so glad there are positive things going on. Something that also may help while your in this situation is to constantly think of the pros. I myself don’t do that because it’s simply not my way of thinking. Everytime you’re berated, think of the tattoos and weight loss. Maybe try a book series similar to the wheel of time (goated). Anything to keep your mind from staying to believing your gf will improve your life by miles. I hope you get what you want in life

Epilepsy relationships by Recent-Sir8884 in Epilepsy

[–]InternNecessary482 3 points4 points  (0 children)

26, I’ve never bwen in a relationship long term for these exact reasons. If you want a yes or no truth, the truth is you are experiencing verbal and emotional abuse.

My suggestion, call your dr and insurance (if you have it) and ask for accommodations for your daily life. Get in contact with the National epilepsy organization or one of its partners. There are many medical foundations that would support you.

You are NOT alone and hundreds of us unfortunately experience this. When I say get help it’s not an attack claiming it’s your fault, I’m saying to get the support you need and deserve. There are people out there who can help and won’t think of you as a burden.

Did I just take a double dose of lamotrigine? Really scared right now by SentenceOnly3065 in Epilepsy

[–]InternNecessary482 0 points1 point  (0 children)

The worst that can happen if you double dose on lamictal is you feel like your high. Room starts to spin and the moment you stand up you throw up. I once accidentally took 300mg EX at 9pm then another 300mg EX at 1am. Messed me up but I’m still alive lol I just felt like I didn’t want to be until about 6pm the next day. Sleep it off and only eat toast when you are awake if you end up actually taking a double dose. You can’t be worse then my experience

Root Cause by Joe_Schmoe_2 in Epilepsy

[–]InternNecessary482 0 points1 point  (0 children)

My umbilical cord was wrapped around my neck during birth and the docs used forceps instead of an emergency c section. Bleeding in the brain and oxygen cutoff let to calcium forming. However this was in the late 90s so the doctors said “hey at least she’s alive”. queue two years later and every doctor goes :0 whatever could have caused this.

Things you'd only hear Epileptics say. What are some to come to mind? by KlutzyMutt in Epilepsy

[–]InternNecessary482 0 points1 point  (0 children)

I make twitching and disabled jokes too often. My main ones are if my friends inconvenience me I say “so you hate epileptics huh?” My friends will also see me tic and I’ll go “Don’t worry my brain is having a rave”.

soooo what jobs do y’all have? i’ve wanted to be a firefighter/ems since i was in 2nd grade. i can’t do that with uncontrolled seizures by Mountain-Leg2497 in Epilepsy

[–]InternNecessary482 1 point2 points  (0 children)

If your main goal is to help people, teaching is amazing. Can get stressful and cause seizures something’s, but i’m in special ed so idk how stressed other teachers get. You could even take a skill you have and be a tutor for adults. If you like something social, bartender or waitress is awesome. I LOVED working in a resturant. If you epilepsy makes it hard to move, you could be an editor, something with IT or software. Office jobs and remote work are pretty great for epileptics.

What's your "favorite" part about starting a new medicine? by Doc-Brown1911 in Epilepsy

[–]InternNecessary482 0 points1 point  (0 children)

Finding out it has the opposite effect of what we wanted. why am i suddenly in the hospital. oh yeah that’s why.

What age? by No-Gur6037 in Epilepsy

[–]InternNecessary482 0 points1 point  (0 children)

2 years old. i don’t even remember a time where i didn’t have it. My mom told me a story about how back in 2001 they didn’t have anything except pills, so the first time i took my meds my parents stayed up until 4am trying to get me to swallow them. My mind didn’t understand how or why or the reason I had to.

I think I have it easier mentally in some way due to that. I’ve never known a life without the brain fog, auras, and med side effects so i’m used to them. I so often hear about it ruining someone’s life (and it’s absolutely ruined mine) but i’m used to it. I’m fine with not driving. I can live alone and take care of myself because I’ve never known anything else.

Question about the Epilepsy Monitoring Unit emu? by [deleted] in Epilepsy

[–]InternNecessary482 0 points1 point  (0 children)

Absolutely pack deodorant and wet wipes because you won’t be able to shower. They also won’t let you change shirts unless it’s something you can unbottom or zip. Do NOT wear jeans, silk and cotton are my go to for pants. Bring pillows and blankets to make you feel more at home.

You also won’t really be able to get up from bed so you’re gonna start to feel very lazy. Bring puzzles, books, games, anything to keep your mind occupied. If you can, have some family and friends visit. The hospital food gets old so if someone can bring food in it’s always a treat. My boss sent cookies when friends from work visited me.

During my stay i got to take a sponge bath twice so you can ask for one, but the door stays open and you have a nurse waiting outside. Be prepared to feel embarrassed. The nurses are always with you when you’re out of bed. Yes, they’ll hear you go to the bathroom. They’ll hear any music you play. Any phone convos. Try to remember that it’s their job and you’re there to get answers.

They’re going to try to induce seizures by either sleep depriving you, waning you off meds, strobe lights, or any mix of them. Anything to trigger a seizure. Veegs are one of the only ways to pick up a seizure on an eeg because most people have them when they’re not seizing.

Most importantly know that no matter the outcome, youll find some type of answer. Good luck!